noncompliant

jamie6girl

New member
You just have to do it. Make it a habit each day. I went a long time without doing the things that I should have done.. and I thought by something SOMETHING it was better than nothing.. but it wasn't enough. Now, I make sure I do my treatments twice a day, and even have started walking. What did it? I just started doing it. I got really sick last year, and decided that I had to take control of my life and I was tired of being sick. I was sick of being tired. So I got up one morning and just started doing my treatments. I hope that you find what it takes to find your peace and you are able to start being compliant. Take Care, and Good luck. <img src="i/expressions/heart.gif" border="0">
 

jamie6girl

New member
You just have to do it. Make it a habit each day. I went a long time without doing the things that I should have done.. and I thought by something SOMETHING it was better than nothing.. but it wasn't enough. Now, I make sure I do my treatments twice a day, and even have started walking. What did it? I just started doing it. I got really sick last year, and decided that I had to take control of my life and I was tired of being sick. I was sick of being tired. So I got up one morning and just started doing my treatments. I hope that you find what it takes to find your peace and you are able to start being compliant. Take Care, and Good luck. <img src="i/expressions/heart.gif" border="0">
 

jamie6girl

New member
You just have to do it. Make it a habit each day. I went a long time without doing the things that I should have done.. and I thought by something SOMETHING it was better than nothing.. but it wasn't enough. Now, I make sure I do my treatments twice a day, and even have started walking. What did it? I just started doing it. I got really sick last year, and decided that I had to take control of my life and I was tired of being sick. I was sick of being tired. So I got up one morning and just started doing my treatments. I hope that you find what it takes to find your peace and you are able to start being compliant. Take Care, and Good luck. <img src="i/expressions/heart.gif" border="0">
 

jamie6girl

New member
You just have to do it. Make it a habit each day. I went a long time without doing the things that I should have done.. and I thought by something SOMETHING it was better than nothing.. but it wasn't enough. Now, I make sure I do my treatments twice a day, and even have started walking. What did it? I just started doing it. I got really sick last year, and decided that I had to take control of my life and I was tired of being sick. I was sick of being tired. So I got up one morning and just started doing my treatments. I hope that you find what it takes to find your peace and you are able to start being compliant. Take Care, and Good luck. <img src="i/expressions/heart.gif" border="0">
 

jamie6girl

New member
You just have to do it. Make it a habit each day. I went a long time without doing the things that I should have done.. and I thought by something SOMETHING it was better than nothing.. but it wasn't enough. Now, I make sure I do my treatments twice a day, and even have started walking. What did it? I just started doing it. I got really sick last year, and decided that I had to take control of my life and I was tired of being sick. I was sick of being tired. So I got up one morning and just started doing my treatments. I hope that you find what it takes to find your peace and you are able to start being compliant. Take Care, and Good luck. <img src="i/expressions/heart.gif" border="0">
 

jaimers

Super Moderator
like others have said, joining here and talking to other people going through the same things you are who actually understand what your talking about is so helpful! i wish i had found this place a lot sooner than i did....anyway with the compliance thing, it took me blowing off doing pretty much any treatments my entire freshman year of college and getting to the point where i couldn't even make it up a flight of stairs to realize what i was doing to myself and that if i wanted to be able to do anything in life i was gonna have to get my butt in gear. as amy/bittyhorse said take it a little at a time. here i am, 5 years later, still struggling to exercise consistently but i'm almost 100% compliant with nebs, vest, etc. i'm not going to even pretend i never skip a treatment here and there because i most certainly do and hey, it happens so don't beat yourself up if you don't wake up tomorrow and suddenly are 100% compliant to everything you're supposed to be doing. you can do it though! and we're all here behind you to help as little or as much as you want <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jaimers

Super Moderator
like others have said, joining here and talking to other people going through the same things you are who actually understand what your talking about is so helpful! i wish i had found this place a lot sooner than i did....anyway with the compliance thing, it took me blowing off doing pretty much any treatments my entire freshman year of college and getting to the point where i couldn't even make it up a flight of stairs to realize what i was doing to myself and that if i wanted to be able to do anything in life i was gonna have to get my butt in gear. as amy/bittyhorse said take it a little at a time. here i am, 5 years later, still struggling to exercise consistently but i'm almost 100% compliant with nebs, vest, etc. i'm not going to even pretend i never skip a treatment here and there because i most certainly do and hey, it happens so don't beat yourself up if you don't wake up tomorrow and suddenly are 100% compliant to everything you're supposed to be doing. you can do it though! and we're all here behind you to help as little or as much as you want <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jaimers

Super Moderator
like others have said, joining here and talking to other people going through the same things you are who actually understand what your talking about is so helpful! i wish i had found this place a lot sooner than i did....anyway with the compliance thing, it took me blowing off doing pretty much any treatments my entire freshman year of college and getting to the point where i couldn't even make it up a flight of stairs to realize what i was doing to myself and that if i wanted to be able to do anything in life i was gonna have to get my butt in gear. as amy/bittyhorse said take it a little at a time. here i am, 5 years later, still struggling to exercise consistently but i'm almost 100% compliant with nebs, vest, etc. i'm not going to even pretend i never skip a treatment here and there because i most certainly do and hey, it happens so don't beat yourself up if you don't wake up tomorrow and suddenly are 100% compliant to everything you're supposed to be doing. you can do it though! and we're all here behind you to help as little or as much as you want <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jaimers

Super Moderator
like others have said, joining here and talking to other people going through the same things you are who actually understand what your talking about is so helpful! i wish i had found this place a lot sooner than i did....anyway with the compliance thing, it took me blowing off doing pretty much any treatments my entire freshman year of college and getting to the point where i couldn't even make it up a flight of stairs to realize what i was doing to myself and that if i wanted to be able to do anything in life i was gonna have to get my butt in gear. as amy/bittyhorse said take it a little at a time. here i am, 5 years later, still struggling to exercise consistently but i'm almost 100% compliant with nebs, vest, etc. i'm not going to even pretend i never skip a treatment here and there because i most certainly do and hey, it happens so don't beat yourself up if you don't wake up tomorrow and suddenly are 100% compliant to everything you're supposed to be doing. you can do it though! and we're all here behind you to help as little or as much as you want <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jaimers

Super Moderator
like others have said, joining here and talking to other people going through the same things you are who actually understand what your talking about is so helpful! i wish i had found this place a lot sooner than i did....anyway with the compliance thing, it took me blowing off doing pretty much any treatments my entire freshman year of college and getting to the point where i couldn't even make it up a flight of stairs to realize what i was doing to myself and that if i wanted to be able to do anything in life i was gonna have to get my butt in gear. as amy/bittyhorse said take it a little at a time. here i am, 5 years later, still struggling to exercise consistently but i'm almost 100% compliant with nebs, vest, etc. i'm not going to even pretend i never skip a treatment here and there because i most certainly do and hey, it happens so don't beat yourself up if you don't wake up tomorrow and suddenly are 100% compliant to everything you're supposed to be doing. you can do it though! and we're all here behind you to help as little or as much as you want <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NYCLawGirl

New member
Wow, who knew there were so many of us noncompliant CFers out there! I have to agree with everything everyone has said...I was pretty noncompliant for a LONG time. I would do nebs and AC when I was sick, but I always bounced back and then fell off the wagon because I felt fine. It's weird because I'm very disciplined and even hard on myself in other areas of life, but doing treatments made me feel "sick" and not doing them made me feel "healthy."

My big awakening was when I suddenly realized that not doing nebs/treatments was actually making it impossible for me to keep up my ignorance is bliss style routine - as in, the more I ignored the treatments so that I could feel "normal" the less "normal" I became, and the less able to do the things I loved. After losing quite a bit of lung function in a relatively short span I got my act together. The simple fact is some people with CF are healthier on a day to day basis than others, some of us get away without treatments for days, months or even years, but eventually we all have to face the fact that our bodies need a little extra help and attention. I don't believe in scare tactics, but I can tell you from experience that an ounce of prevention is worth a pound of treatment later.

My advice to you is to pick something you REALLY love doing and use that as your motivation. Maybe you enjoy dancing with your husband? Or early morning jogs? Hiking, biking, walking the dog, evenings out with your friends, whatever it is. Then everytime you want to skip a treatment think to yourself "this is 20 minutes of inconvenience that will help me be able to __(fill in fun activity here)___ for the rest of my life." It keeps the focus on the positive and makes it clear why we put up with all this crap to be healthy. Then reward yourself. I'm personally a big fan of ice cream post TOBI neb. Kills the nasty taste and makes me feel like I deserve a treat!

Good luck!
 

NYCLawGirl

New member
Wow, who knew there were so many of us noncompliant CFers out there! I have to agree with everything everyone has said...I was pretty noncompliant for a LONG time. I would do nebs and AC when I was sick, but I always bounced back and then fell off the wagon because I felt fine. It's weird because I'm very disciplined and even hard on myself in other areas of life, but doing treatments made me feel "sick" and not doing them made me feel "healthy."

My big awakening was when I suddenly realized that not doing nebs/treatments was actually making it impossible for me to keep up my ignorance is bliss style routine - as in, the more I ignored the treatments so that I could feel "normal" the less "normal" I became, and the less able to do the things I loved. After losing quite a bit of lung function in a relatively short span I got my act together. The simple fact is some people with CF are healthier on a day to day basis than others, some of us get away without treatments for days, months or even years, but eventually we all have to face the fact that our bodies need a little extra help and attention. I don't believe in scare tactics, but I can tell you from experience that an ounce of prevention is worth a pound of treatment later.

My advice to you is to pick something you REALLY love doing and use that as your motivation. Maybe you enjoy dancing with your husband? Or early morning jogs? Hiking, biking, walking the dog, evenings out with your friends, whatever it is. Then everytime you want to skip a treatment think to yourself "this is 20 minutes of inconvenience that will help me be able to __(fill in fun activity here)___ for the rest of my life." It keeps the focus on the positive and makes it clear why we put up with all this crap to be healthy. Then reward yourself. I'm personally a big fan of ice cream post TOBI neb. Kills the nasty taste and makes me feel like I deserve a treat!

Good luck!
 

NYCLawGirl

New member
Wow, who knew there were so many of us noncompliant CFers out there! I have to agree with everything everyone has said...I was pretty noncompliant for a LONG time. I would do nebs and AC when I was sick, but I always bounced back and then fell off the wagon because I felt fine. It's weird because I'm very disciplined and even hard on myself in other areas of life, but doing treatments made me feel "sick" and not doing them made me feel "healthy."

My big awakening was when I suddenly realized that not doing nebs/treatments was actually making it impossible for me to keep up my ignorance is bliss style routine - as in, the more I ignored the treatments so that I could feel "normal" the less "normal" I became, and the less able to do the things I loved. After losing quite a bit of lung function in a relatively short span I got my act together. The simple fact is some people with CF are healthier on a day to day basis than others, some of us get away without treatments for days, months or even years, but eventually we all have to face the fact that our bodies need a little extra help and attention. I don't believe in scare tactics, but I can tell you from experience that an ounce of prevention is worth a pound of treatment later.

My advice to you is to pick something you REALLY love doing and use that as your motivation. Maybe you enjoy dancing with your husband? Or early morning jogs? Hiking, biking, walking the dog, evenings out with your friends, whatever it is. Then everytime you want to skip a treatment think to yourself "this is 20 minutes of inconvenience that will help me be able to __(fill in fun activity here)___ for the rest of my life." It keeps the focus on the positive and makes it clear why we put up with all this crap to be healthy. Then reward yourself. I'm personally a big fan of ice cream post TOBI neb. Kills the nasty taste and makes me feel like I deserve a treat!

Good luck!
 

NYCLawGirl

New member
Wow, who knew there were so many of us noncompliant CFers out there! I have to agree with everything everyone has said...I was pretty noncompliant for a LONG time. I would do nebs and AC when I was sick, but I always bounced back and then fell off the wagon because I felt fine. It's weird because I'm very disciplined and even hard on myself in other areas of life, but doing treatments made me feel "sick" and not doing them made me feel "healthy."

My big awakening was when I suddenly realized that not doing nebs/treatments was actually making it impossible for me to keep up my ignorance is bliss style routine - as in, the more I ignored the treatments so that I could feel "normal" the less "normal" I became, and the less able to do the things I loved. After losing quite a bit of lung function in a relatively short span I got my act together. The simple fact is some people with CF are healthier on a day to day basis than others, some of us get away without treatments for days, months or even years, but eventually we all have to face the fact that our bodies need a little extra help and attention. I don't believe in scare tactics, but I can tell you from experience that an ounce of prevention is worth a pound of treatment later.

My advice to you is to pick something you REALLY love doing and use that as your motivation. Maybe you enjoy dancing with your husband? Or early morning jogs? Hiking, biking, walking the dog, evenings out with your friends, whatever it is. Then everytime you want to skip a treatment think to yourself "this is 20 minutes of inconvenience that will help me be able to __(fill in fun activity here)___ for the rest of my life." It keeps the focus on the positive and makes it clear why we put up with all this crap to be healthy. Then reward yourself. I'm personally a big fan of ice cream post TOBI neb. Kills the nasty taste and makes me feel like I deserve a treat!

Good luck!
 

NYCLawGirl

New member
Wow, who knew there were so many of us noncompliant CFers out there! I have to agree with everything everyone has said...I was pretty noncompliant for a LONG time. I would do nebs and AC when I was sick, but I always bounced back and then fell off the wagon because I felt fine. It's weird because I'm very disciplined and even hard on myself in other areas of life, but doing treatments made me feel "sick" and not doing them made me feel "healthy."
<br />
<br />My big awakening was when I suddenly realized that not doing nebs/treatments was actually making it impossible for me to keep up my ignorance is bliss style routine - as in, the more I ignored the treatments so that I could feel "normal" the less "normal" I became, and the less able to do the things I loved. After losing quite a bit of lung function in a relatively short span I got my act together. The simple fact is some people with CF are healthier on a day to day basis than others, some of us get away without treatments for days, months or even years, but eventually we all have to face the fact that our bodies need a little extra help and attention. I don't believe in scare tactics, but I can tell you from experience that an ounce of prevention is worth a pound of treatment later.
<br />
<br />My advice to you is to pick something you REALLY love doing and use that as your motivation. Maybe you enjoy dancing with your husband? Or early morning jogs? Hiking, biking, walking the dog, evenings out with your friends, whatever it is. Then everytime you want to skip a treatment think to yourself "this is 20 minutes of inconvenience that will help me be able to __(fill in fun activity here)___ for the rest of my life." It keeps the focus on the positive and makes it clear why we put up with all this crap to be healthy. Then reward yourself. I'm personally a big fan of ice cream post TOBI neb. Kills the nasty taste and makes me feel like I deserve a treat!
<br />
<br />Good luck!
 
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