EmilysMomma
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EmilysMomma</b></i>
I have CF and so does my daughter
</end quote></div>
i'm always interested when i hear CF patients having CF kids.
was the baby's father not tested for CF carrier status?
sorry if I'm too personal - just curious.</end quote></div>
I totally don't mind the question at all, otherwise I wouldn't be posting on here <img src="i/expressions/face-icon-small-wink.gif" border="0">
First off please excuse any spelling/grammar errors, I am going to try to type fast lol
My husband actually didn't have any genetic testing done. I'd been off birth control 3 years and weren't trying or preventing, I had always wanted to have a child but never really thought when the time came that I'd be able to, and I thought that it would be something that I'd really have to plan and try hard at and possibly even get help with,I had planned to have my husband tested but it just happened. we got married , bought a house, and one month later all of a sudden I was pregnant, we hadn't done anything different and like I said I'd been off the pill 3 years.
I feel like it was just meant to be. I felt like it was truly a miracle that I even got pregnant, and so I even opted out of having tests done while I was pregnant to see if she had cf. I never really thought she would have it because I never would have thought my husband was a carrier because his family didn't even know what cf was. I just didn't think he would be that 1 in 20 or 25 person that would be a carrier and then even if he was it was still a 50/50 chance to have a child with cf.
Anyhow my daughter was born 3 weeks early, I had spent the last month in the hospital, pregnancy was hard on my body, I developed diabetes (that I still have now) and they finally induced me at 37 weeks, she was 5 ls 9 oz and very healthy at birth. Actually the doctors had no reason to believe she had cf, no symptoms. they said we should wait until at least 6 months of age to start sweat testing, the only reason we were doing the test was b/c of the possibility not b/c we thought she had it. well to my surprise she had 2 postive sweat tests and then we did the dna testing and after 3 weeks of waiting i got the call that she was positive.
i knew there was the possibility but i still hoped and prayed she could just be healthy, with all that I went through and how hard the pregnancy was ... I was so hopeful b/c the dr didnt think she had it and she didnt seem like she did and i went almost 9 months thinking my body actually created a healthy baby.
it turns out though the copy of the gene she got from my husband makes it so she has it milder than myself,so far she is even pancreatic sufficient, but we have to keep an eye on that , her dr says it could change. actually her dr is my former pulmonologist.
so yea it's definitely really difficult at times to care for her and myself. she does the vest and pulmozyme so far. she's doing really well she has only had a few minor infections from colds but she bounces back really quick and doesnt even always need an antibiotic.
Sometimes i feel really guilty and I hate so much that she has to have this crappy disease too ... but it just makes her even more special to me and is why we have such a stronger connection and I can really relate with her on another level and I know how she feels and know what it feels like .
by the way I am interested too when it comes to cf mother having cf kids, I want to think there was another girl on here but I'm not sure, I just know its not so common.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EmilysMomma</b></i>
I have CF and so does my daughter
</end quote></div>
i'm always interested when i hear CF patients having CF kids.
was the baby's father not tested for CF carrier status?
sorry if I'm too personal - just curious.</end quote></div>
I totally don't mind the question at all, otherwise I wouldn't be posting on here <img src="i/expressions/face-icon-small-wink.gif" border="0">
First off please excuse any spelling/grammar errors, I am going to try to type fast lol
My husband actually didn't have any genetic testing done. I'd been off birth control 3 years and weren't trying or preventing, I had always wanted to have a child but never really thought when the time came that I'd be able to, and I thought that it would be something that I'd really have to plan and try hard at and possibly even get help with,I had planned to have my husband tested but it just happened. we got married , bought a house, and one month later all of a sudden I was pregnant, we hadn't done anything different and like I said I'd been off the pill 3 years.
I feel like it was just meant to be. I felt like it was truly a miracle that I even got pregnant, and so I even opted out of having tests done while I was pregnant to see if she had cf. I never really thought she would have it because I never would have thought my husband was a carrier because his family didn't even know what cf was. I just didn't think he would be that 1 in 20 or 25 person that would be a carrier and then even if he was it was still a 50/50 chance to have a child with cf.
Anyhow my daughter was born 3 weeks early, I had spent the last month in the hospital, pregnancy was hard on my body, I developed diabetes (that I still have now) and they finally induced me at 37 weeks, she was 5 ls 9 oz and very healthy at birth. Actually the doctors had no reason to believe she had cf, no symptoms. they said we should wait until at least 6 months of age to start sweat testing, the only reason we were doing the test was b/c of the possibility not b/c we thought she had it. well to my surprise she had 2 postive sweat tests and then we did the dna testing and after 3 weeks of waiting i got the call that she was positive.
i knew there was the possibility but i still hoped and prayed she could just be healthy, with all that I went through and how hard the pregnancy was ... I was so hopeful b/c the dr didnt think she had it and she didnt seem like she did and i went almost 9 months thinking my body actually created a healthy baby.
it turns out though the copy of the gene she got from my husband makes it so she has it milder than myself,so far she is even pancreatic sufficient, but we have to keep an eye on that , her dr says it could change. actually her dr is my former pulmonologist.
so yea it's definitely really difficult at times to care for her and myself. she does the vest and pulmozyme so far. she's doing really well she has only had a few minor infections from colds but she bounces back really quick and doesnt even always need an antibiotic.
Sometimes i feel really guilty and I hate so much that she has to have this crappy disease too ... but it just makes her even more special to me and is why we have such a stronger connection and I can really relate with her on another level and I know how she feels and know what it feels like .
by the way I am interested too when it comes to cf mother having cf kids, I want to think there was another girl on here but I'm not sure, I just know its not so common.