Your routine?

[princessjdc]

I guess I'll share my routine so here it goes.....

Tues-Fri I get up at 6:00am if Im on Tobi, 6:30 when Im off of tobi, so I get up go pee like many of us probably do then I go to the kitchen where ALL my meds are.

First I take a puff of combivent and after that then I pour some water out of my tea kettle and pour into my nasal bottle, then stick that into the microwave for about 20 sec to make it a little warm, I tend to gag when its cold, anywho once that is done then I take my last puff of combivent.

Then I open up the nasal package and pour into the nasal bottle then seal it with the funny looking lid, after thats all done I go to the sink and squirt it up nose at equal amounts on both sides until the water is out. I rinse it out (bottle) wash the lid with soap then put it back in its place.

Next is my advair I take a puff of that then get some water to rinse my mouth out so I dont get thrush ewww.

After that comes the flonase 2 squirts in each nostril then I squirt Astelin in each side 2 times.

Then I grab 2 or 3 neb cups labeled by what goes in it, and depending if Im Tobi then Ill grab 3 neb cups, if not then 2. I put pulmozine in one and hypertonic saline in the other.

Head on to the bedroom and start pulmozine up after 10 min I switch to HS for 15 min then I put the vest on for 20min with 4 different settings: 10-5min, 12-5 min, 14-5 min and 16 -5 min and the pressure is set to 7.

After the vest I start tobi when Im on it.

When I finish my treatments Ill get up and eat breakfast then get ready for work, sometimes I fall back to sleep instead which makes me about 5 min late for work but no big deal, Im working on getting better at it. So anywho it take 15 min to get to work and I work from 8 to 5 and when I get home I dont start my evening treatments until about 11, I know kind of late but Im working on that, Im going to try and get in the habit of doing them right when I get home from work.

The only difference with my evening routine is I dont do pulmozym and on flonase its 1 squirt on each side other than those two every thing else is the same.

I forgot I take bactrim 3x a day. at 9:00 in the morning I take one bactrim then my vit. E(400i.e) then 2 multi vit. then at 3:00pm I take my second pill of bactrim and at 9pm I take the last pill for bactrim.

On the weekends which is partly sat, cause I go in at 8 pm on Saturday nitghts but still consider it part of the weekend cause I get to sleep in. Anywho I sometimes dont start my treatments until almost 1-3 in the afternoon but then I stay up late on the weekends so I do my evening treatments late also. I did tell my mom I will try and do my treatments at the same time so Ive been doing good the last 3 days at doing them at the same time, so I had been getting up at 7 in the morning to start my treatments and then go back to sleep. I was off this whole week so I done good Thurs and Fri with getting up at 7 oh sat I got up at 7 too. I was bad at taking my vit though I did however take them this morning, <img src="i/expressions/face-icon-small-happy.gif" border="0">
I very rarely take my vit on the weekends which is bad on my part.

That was my routine not too bad.

I forgot to mention that I do get some exercise in sometimes with the eliptical machine or hubby and I go to the park and walk. Not all the time . I also take Creon 20 7 with meals and 3 w/snacks.

 

[princessjdc]

I guess I'll share my routine so here it goes.....

Tues-Fri I get up at 6:00am if Im on Tobi, 6:30 when Im off of tobi, so I get up go pee like many of us probably do then I go to the kitchen where ALL my meds are.

First I take a puff of combivent and after that then I pour some water out of my tea kettle and pour into my nasal bottle, then stick that into the microwave for about 20 sec to make it a little warm, I tend to gag when its cold, anywho once that is done then I take my last puff of combivent.

Then I open up the nasal package and pour into the nasal bottle then seal it with the funny looking lid, after thats all done I go to the sink and squirt it up nose at equal amounts on both sides until the water is out. I rinse it out (bottle) wash the lid with soap then put it back in its place.

Next is my advair I take a puff of that then get some water to rinse my mouth out so I dont get thrush ewww.

After that comes the flonase 2 squirts in each nostril then I squirt Astelin in each side 2 times.

Then I grab 2 or 3 neb cups labeled by what goes in it, and depending if Im Tobi then Ill grab 3 neb cups, if not then 2. I put pulmozine in one and hypertonic saline in the other.

Head on to the bedroom and start pulmozine up after 10 min I switch to HS for 15 min then I put the vest on for 20min with 4 different settings: 10-5min, 12-5 min, 14-5 min and 16 -5 min and the pressure is set to 7.

After the vest I start tobi when Im on it.

When I finish my treatments Ill get up and eat breakfast then get ready for work, sometimes I fall back to sleep instead which makes me about 5 min late for work but no big deal, Im working on getting better at it. So anywho it take 15 min to get to work and I work from 8 to 5 and when I get home I dont start my evening treatments until about 11, I know kind of late but Im working on that, Im going to try and get in the habit of doing them right when I get home from work.

The only difference with my evening routine is I dont do pulmozym and on flonase its 1 squirt on each side other than those two every thing else is the same.

I forgot I take bactrim 3x a day. at 9:00 in the morning I take one bactrim then my vit. E(400i.e) then 2 multi vit. then at 3:00pm I take my second pill of bactrim and at 9pm I take the last pill for bactrim.

On the weekends which is partly sat, cause I go in at 8 pm on Saturday nitghts but still consider it part of the weekend cause I get to sleep in. Anywho I sometimes dont start my treatments until almost 1-3 in the afternoon but then I stay up late on the weekends so I do my evening treatments late also. I did tell my mom I will try and do my treatments at the same time so Ive been doing good the last 3 days at doing them at the same time, so I had been getting up at 7 in the morning to start my treatments and then go back to sleep. I was off this whole week so I done good Thurs and Fri with getting up at 7 oh sat I got up at 7 too. I was bad at taking my vit though I did however take them this morning, <img src="i/expressions/face-icon-small-happy.gif" border="0">
I very rarely take my vit on the weekends which is bad on my part.

That was my routine not too bad.

I forgot to mention that I do get some exercise in sometimes with the eliptical machine or hubby and I go to the park and walk. Not all the time . I also take Creon 20 7 with meals and 3 w/snacks.

 

[princessjdc]

I guess I'll share my routine so here it goes.....

Tues-Fri I get up at 6:00am if Im on Tobi, 6:30 when Im off of tobi, so I get up go pee like many of us probably do then I go to the kitchen where ALL my meds are.

First I take a puff of combivent and after that then I pour some water out of my tea kettle and pour into my nasal bottle, then stick that into the microwave for about 20 sec to make it a little warm, I tend to gag when its cold, anywho once that is done then I take my last puff of combivent.

Then I open up the nasal package and pour into the nasal bottle then seal it with the funny looking lid, after thats all done I go to the sink and squirt it up nose at equal amounts on both sides until the water is out. I rinse it out (bottle) wash the lid with soap then put it back in its place.

Next is my advair I take a puff of that then get some water to rinse my mouth out so I dont get thrush ewww.

After that comes the flonase 2 squirts in each nostril then I squirt Astelin in each side 2 times.

Then I grab 2 or 3 neb cups labeled by what goes in it, and depending if Im Tobi then Ill grab 3 neb cups, if not then 2. I put pulmozine in one and hypertonic saline in the other.

Head on to the bedroom and start pulmozine up after 10 min I switch to HS for 15 min then I put the vest on for 20min with 4 different settings: 10-5min, 12-5 min, 14-5 min and 16 -5 min and the pressure is set to 7.

After the vest I start tobi when Im on it.

When I finish my treatments Ill get up and eat breakfast then get ready for work, sometimes I fall back to sleep instead which makes me about 5 min late for work but no big deal, Im working on getting better at it. So anywho it take 15 min to get to work and I work from 8 to 5 and when I get home I dont start my evening treatments until about 11, I know kind of late but Im working on that, Im going to try and get in the habit of doing them right when I get home from work.

The only difference with my evening routine is I dont do pulmozym and on flonase its 1 squirt on each side other than those two every thing else is the same.

I forgot I take bactrim 3x a day. at 9:00 in the morning I take one bactrim then my vit. E(400i.e) then 2 multi vit. then at 3:00pm I take my second pill of bactrim and at 9pm I take the last pill for bactrim.

On the weekends which is partly sat, cause I go in at 8 pm on Saturday nitghts but still consider it part of the weekend cause I get to sleep in. Anywho I sometimes dont start my treatments until almost 1-3 in the afternoon but then I stay up late on the weekends so I do my evening treatments late also. I did tell my mom I will try and do my treatments at the same time so Ive been doing good the last 3 days at doing them at the same time, so I had been getting up at 7 in the morning to start my treatments and then go back to sleep. I was off this whole week so I done good Thurs and Fri with getting up at 7 oh sat I got up at 7 too. I was bad at taking my vit though I did however take them this morning, <img src="i/expressions/face-icon-small-happy.gif" border="0">
I very rarely take my vit on the weekends which is bad on my part.

That was my routine not too bad.

I forgot to mention that I do get some exercise in sometimes with the eliptical machine or hubby and I go to the park and walk. Not all the time . I also take Creon 20 7 with meals and 3 w/snacks.

 

[princessjdc]

I guess I'll share my routine so here it goes.....

Tues-Fri I get up at 6:00am if Im on Tobi, 6:30 when Im off of tobi, so I get up go pee like many of us probably do then I go to the kitchen where ALL my meds are.

First I take a puff of combivent and after that then I pour some water out of my tea kettle and pour into my nasal bottle, then stick that into the microwave for about 20 sec to make it a little warm, I tend to gag when its cold, anywho once that is done then I take my last puff of combivent.

Then I open up the nasal package and pour into the nasal bottle then seal it with the funny looking lid, after thats all done I go to the sink and squirt it up nose at equal amounts on both sides until the water is out. I rinse it out (bottle) wash the lid with soap then put it back in its place.

Next is my advair I take a puff of that then get some water to rinse my mouth out so I dont get thrush ewww.

After that comes the flonase 2 squirts in each nostril then I squirt Astelin in each side 2 times.

Then I grab 2 or 3 neb cups labeled by what goes in it, and depending if Im Tobi then Ill grab 3 neb cups, if not then 2. I put pulmozine in one and hypertonic saline in the other.

Head on to the bedroom and start pulmozine up after 10 min I switch to HS for 15 min then I put the vest on for 20min with 4 different settings: 10-5min, 12-5 min, 14-5 min and 16 -5 min and the pressure is set to 7.

After the vest I start tobi when Im on it.

When I finish my treatments Ill get up and eat breakfast then get ready for work, sometimes I fall back to sleep instead which makes me about 5 min late for work but no big deal, Im working on getting better at it. So anywho it take 15 min to get to work and I work from 8 to 5 and when I get home I dont start my evening treatments until about 11, I know kind of late but Im working on that, Im going to try and get in the habit of doing them right when I get home from work.

The only difference with my evening routine is I dont do pulmozym and on flonase its 1 squirt on each side other than those two every thing else is the same.

I forgot I take bactrim 3x a day. at 9:00 in the morning I take one bactrim then my vit. E(400i.e) then 2 multi vit. then at 3:00pm I take my second pill of bactrim and at 9pm I take the last pill for bactrim.

On the weekends which is partly sat, cause I go in at 8 pm on Saturday nitghts but still consider it part of the weekend cause I get to sleep in. Anywho I sometimes dont start my treatments until almost 1-3 in the afternoon but then I stay up late on the weekends so I do my evening treatments late also. I did tell my mom I will try and do my treatments at the same time so Ive been doing good the last 3 days at doing them at the same time, so I had been getting up at 7 in the morning to start my treatments and then go back to sleep. I was off this whole week so I done good Thurs and Fri with getting up at 7 oh sat I got up at 7 too. I was bad at taking my vit though I did however take them this morning, <img src="i/expressions/face-icon-small-happy.gif" border="0">
I very rarely take my vit on the weekends which is bad on my part.

That was my routine not too bad.

I forgot to mention that I do get some exercise in sometimes with the eliptical machine or hubby and I go to the park and walk. Not all the time . I also take Creon 20 7 with meals and 3 w/snacks.

 

[princessjdc]

I guess I'll share my routine so here it goes.....

Tues-Fri I get up at 6:00am if Im on Tobi, 6:30 when Im off of tobi, so I get up go pee like many of us probably do then I go to the kitchen where ALL my meds are.

First I take a puff of combivent and after that then I pour some water out of my tea kettle and pour into my nasal bottle, then stick that into the microwave for about 20 sec to make it a little warm, I tend to gag when its cold, anywho once that is done then I take my last puff of combivent.

Then I open up the nasal package and pour into the nasal bottle then seal it with the funny looking lid, after thats all done I go to the sink and squirt it up nose at equal amounts on both sides until the water is out. I rinse it out (bottle) wash the lid with soap then put it back in its place.

Next is my advair I take a puff of that then get some water to rinse my mouth out so I dont get thrush ewww.

After that comes the flonase 2 squirts in each nostril then I squirt Astelin in each side 2 times.

Then I grab 2 or 3 neb cups labeled by what goes in it, and depending if Im Tobi then Ill grab 3 neb cups, if not then 2. I put pulmozine in one and hypertonic saline in the other.

Head on to the bedroom and start pulmozine up after 10 min I switch to HS for 15 min then I put the vest on for 20min with 4 different settings: 10-5min, 12-5 min, 14-5 min and 16 -5 min and the pressure is set to 7.

After the vest I start tobi when Im on it.

When I finish my treatments Ill get up and eat breakfast then get ready for work, sometimes I fall back to sleep instead which makes me about 5 min late for work but no big deal, Im working on getting better at it. So anywho it take 15 min to get to work and I work from 8 to 5 and when I get home I dont start my evening treatments until about 11, I know kind of late but Im working on that, Im going to try and get in the habit of doing them right when I get home from work.

The only difference with my evening routine is I dont do pulmozym and on flonase its 1 squirt on each side other than those two every thing else is the same.

I forgot I take bactrim 3x a day. at 9:00 in the morning I take one bactrim then my vit. E(400i.e) then 2 multi vit. then at 3:00pm I take my second pill of bactrim and at 9pm I take the last pill for bactrim.

On the weekends which is partly sat, cause I go in at 8 pm on Saturday nitghts but still consider it part of the weekend cause I get to sleep in. Anywho I sometimes dont start my treatments until almost 1-3 in the afternoon but then I stay up late on the weekends so I do my evening treatments late also. I did tell my mom I will try and do my treatments at the same time so Ive been doing good the last 3 days at doing them at the same time, so I had been getting up at 7 in the morning to start my treatments and then go back to sleep. I was off this whole week so I done good Thurs and Fri with getting up at 7 oh sat I got up at 7 too. I was bad at taking my vit though I did however take them this morning, <img src="i/expressions/face-icon-small-happy.gif" border="0">
I very rarely take my vit on the weekends which is bad on my part.

That was my routine not too bad.

I forgot to mention that I do get some exercise in sometimes with the eliptical machine or hubby and I go to the park and walk. Not all the time . I also take Creon 20 7 with meals and 3 w/snacks.

 

[AnD]

Crumbs! I left out my 2nd Advair before bed in my post, but I don't want to redo my smilies to add it- lol. I just didn't want to infer that I only do it once a day <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I will also be adding a diabetes med this week, and it a couple of weeks, starting homeschool for a couple of days a week (Tuesday and Thursday).

And I drink about 7- 16 to 20 oz. bottles of flavored water a day (water consumption insisted on by GI dr. for my liver).

 

[AnD]

Crumbs! I left out my 2nd Advair before bed in my post, but I don't want to redo my smilies to add it- lol. I just didn't want to infer that I only do it once a day <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I will also be adding a diabetes med this week, and it a couple of weeks, starting homeschool for a couple of days a week (Tuesday and Thursday).

And I drink about 7- 16 to 20 oz. bottles of flavored water a day (water consumption insisted on by GI dr. for my liver).

 

[AnD]

Crumbs! I left out my 2nd Advair before bed in my post, but I don't want to redo my smilies to add it- lol. I just didn't want to infer that I only do it once a day <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I will also be adding a diabetes med this week, and it a couple of weeks, starting homeschool for a couple of days a week (Tuesday and Thursday).

And I drink about 7- 16 to 20 oz. bottles of flavored water a day (water consumption insisted on by GI dr. for my liver).

 

[AnD]

Crumbs! I left out my 2nd Advair before bed in my post, but I don't want to redo my smilies to add it- lol. I just didn't want to infer that I only do it once a day <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I will also be adding a diabetes med this week, and it a couple of weeks, starting homeschool for a couple of days a week (Tuesday and Thursday).

And I drink about 7- 16 to 20 oz. bottles of flavored water a day (water consumption insisted on by GI dr. for my liver).

 

[AnD]

Crumbs! I left out my 2nd Advair before bed in my post, but I don't want to redo my smilies to add it- lol. I just didn't want to infer that I only do it once a day <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I will also be adding a diabetes med this week, and it a couple of weeks, starting homeschool for a couple of days a week (Tuesday and Thursday).

And I drink about 7- 16 to 20 oz. bottles of flavored water a day (water consumption insisted on by GI dr. for my liver).

 

[Momtana]

this would be great for our CF care providers to read - they just prescribe the stuff, but I bet hearing about everyone's routines would enlighten them.

 

[Momtana]

this would be great for our CF care providers to read - they just prescribe the stuff, but I bet hearing about everyone's routines would enlighten them.

 

[Momtana]

this would be great for our CF care providers to read - they just prescribe the stuff, but I bet hearing about everyone's routines would enlighten them.

 

[Momtana]

this would be great for our CF care providers to read - they just prescribe the stuff, but I bet hearing about everyone's routines would enlighten them.

 

[Momtana]

this would be great for our CF care providers to read - they just prescribe the stuff, but I bet hearing about everyone's routines would enlighten them.

 

[cysticfibrosisgirl]

Ok up at 6:30am set up my meds that go down my G-tube (this is allot) grab a med cup to mix one of the meds. then go into the frage to grab my mucomist grab a clean shot with a needle poke it into the mucomist cap bring up 2 1/2 ml take out the shot and tap it to clear any air.

set it down on the table with my other meds for the day. then fill up a new shot with my Regaln (tummy med) put it in a cup mix it with 0.9% Rx water then fill a large shot about up to 60ml and set that down with rest of my meds. My mom comes out to help me set up the others. She get a clean shot and fills it with 6ml of my Arothromayilln (think this is how you spell this?) set that down with my other meds.

Then we fill a new shot with Loctose to help me have stools. set that with the others. Then I get out one pack of Maralax 17 grams. mix that into a cup of hot tea. drank it all up. Then I take my CF ADEK's my Cymbalta, Abilify then my pain pills bacuse of the G-tube. then my Singulair, a B-2 and a B-12 pill then a big white pill for my bones.

Then I take two puffs of my Atrovent inhaler and my Pulocourt inhaler. then two sparys of my Nosonex and sailne. Pop about five Pancarsecarb MS 20 enzymes for my tube-feeding I had over night. Then I set up my nebulizer treatments by cleaning my ned cups from the night before. So I boil them in hot water for 10mins. and then fill up the ml cap of part 10% saline and part 9% saline put that into a clean neb cup. Get out my Pulozyme Albuterol put them in a clean cup marked with there names on them.

Go down stars to my Vest. Start my albuterol then set up my tummy for the vest. start my vest up.. when thats over I go up to my room and try to get into the shower and get cleaned up. so take off the dressings on my G-tube. get into the shower and get my jenes on and a clean top.

Then I go into the kitchen to two cans of Pepatmen get out some gloves and a new feeding bag and my feeding pump and carring case. set up my feeds for the day. as all this is going on I have Hilary Duff playing on my CD player. to keep me moveing. after that I start putting on my make-up. by this time I am sleepy and mom finds me sleeping on my bed.

And I do all this at night and at noon also...
this is my Cystic fibrosis day..

 

[cysticfibrosisgirl]

Ok up at 6:30am set up my meds that go down my G-tube (this is allot) grab a med cup to mix one of the meds. then go into the frage to grab my mucomist grab a clean shot with a needle poke it into the mucomist cap bring up 2 1/2 ml take out the shot and tap it to clear any air.

set it down on the table with my other meds for the day. then fill up a new shot with my Regaln (tummy med) put it in a cup mix it with 0.9% Rx water then fill a large shot about up to 60ml and set that down with rest of my meds. My mom comes out to help me set up the others. She get a clean shot and fills it with 6ml of my Arothromayilln (think this is how you spell this?) set that down with my other meds.

Then we fill a new shot with Loctose to help me have stools. set that with the others. Then I get out one pack of Maralax 17 grams. mix that into a cup of hot tea. drank it all up. Then I take my CF ADEK's my Cymbalta, Abilify then my pain pills bacuse of the G-tube. then my Singulair, a B-2 and a B-12 pill then a big white pill for my bones.

Then I take two puffs of my Atrovent inhaler and my Pulocourt inhaler. then two sparys of my Nosonex and sailne. Pop about five Pancarsecarb MS 20 enzymes for my tube-feeding I had over night. Then I set up my nebulizer treatments by cleaning my ned cups from the night before. So I boil them in hot water for 10mins. and then fill up the ml cap of part 10% saline and part 9% saline put that into a clean neb cup. Get out my Pulozyme Albuterol put them in a clean cup marked with there names on them.

Go down stars to my Vest. Start my albuterol then set up my tummy for the vest. start my vest up.. when thats over I go up to my room and try to get into the shower and get cleaned up. so take off the dressings on my G-tube. get into the shower and get my jenes on and a clean top.

Then I go into the kitchen to two cans of Pepatmen get out some gloves and a new feeding bag and my feeding pump and carring case. set up my feeds for the day. as all this is going on I have Hilary Duff playing on my CD player. to keep me moveing. after that I start putting on my make-up. by this time I am sleepy and mom finds me sleeping on my bed.

And I do all this at night and at noon also...
this is my Cystic fibrosis day..

 

[cysticfibrosisgirl]

Ok up at 6:30am set up my meds that go down my G-tube (this is allot) grab a med cup to mix one of the meds. then go into the frage to grab my mucomist grab a clean shot with a needle poke it into the mucomist cap bring up 2 1/2 ml take out the shot and tap it to clear any air.

set it down on the table with my other meds for the day. then fill up a new shot with my Regaln (tummy med) put it in a cup mix it with 0.9% Rx water then fill a large shot about up to 60ml and set that down with rest of my meds. My mom comes out to help me set up the others. She get a clean shot and fills it with 6ml of my Arothromayilln (think this is how you spell this?) set that down with my other meds.

Then we fill a new shot with Loctose to help me have stools. set that with the others. Then I get out one pack of Maralax 17 grams. mix that into a cup of hot tea. drank it all up. Then I take my CF ADEK's my Cymbalta, Abilify then my pain pills bacuse of the G-tube. then my Singulair, a B-2 and a B-12 pill then a big white pill for my bones.

Then I take two puffs of my Atrovent inhaler and my Pulocourt inhaler. then two sparys of my Nosonex and sailne. Pop about five Pancarsecarb MS 20 enzymes for my tube-feeding I had over night. Then I set up my nebulizer treatments by cleaning my ned cups from the night before. So I boil them in hot water for 10mins. and then fill up the ml cap of part 10% saline and part 9% saline put that into a clean neb cup. Get out my Pulozyme Albuterol put them in a clean cup marked with there names on them.

Go down stars to my Vest. Start my albuterol then set up my tummy for the vest. start my vest up.. when thats over I go up to my room and try to get into the shower and get cleaned up. so take off the dressings on my G-tube. get into the shower and get my jenes on and a clean top.

Then I go into the kitchen to two cans of Pepatmen get out some gloves and a new feeding bag and my feeding pump and carring case. set up my feeds for the day. as all this is going on I have Hilary Duff playing on my CD player. to keep me moveing. after that I start putting on my make-up. by this time I am sleepy and mom finds me sleeping on my bed.

And I do all this at night and at noon also...
this is my Cystic fibrosis day..

 

[cysticfibrosisgirl]

Ok up at 6:30am set up my meds that go down my G-tube (this is allot) grab a med cup to mix one of the meds. then go into the frage to grab my mucomist grab a clean shot with a needle poke it into the mucomist cap bring up 2 1/2 ml take out the shot and tap it to clear any air.

set it down on the table with my other meds for the day. then fill up a new shot with my Regaln (tummy med) put it in a cup mix it with 0.9% Rx water then fill a large shot about up to 60ml and set that down with rest of my meds. My mom comes out to help me set up the others. She get a clean shot and fills it with 6ml of my Arothromayilln (think this is how you spell this?) set that down with my other meds.

Then we fill a new shot with Loctose to help me have stools. set that with the others. Then I get out one pack of Maralax 17 grams. mix that into a cup of hot tea. drank it all up. Then I take my CF ADEK's my Cymbalta, Abilify then my pain pills bacuse of the G-tube. then my Singulair, a B-2 and a B-12 pill then a big white pill for my bones.

Then I take two puffs of my Atrovent inhaler and my Pulocourt inhaler. then two sparys of my Nosonex and sailne. Pop about five Pancarsecarb MS 20 enzymes for my tube-feeding I had over night. Then I set up my nebulizer treatments by cleaning my ned cups from the night before. So I boil them in hot water for 10mins. and then fill up the ml cap of part 10% saline and part 9% saline put that into a clean neb cup. Get out my Pulozyme Albuterol put them in a clean cup marked with there names on them.

Go down stars to my Vest. Start my albuterol then set up my tummy for the vest. start my vest up.. when thats over I go up to my room and try to get into the shower and get cleaned up. so take off the dressings on my G-tube. get into the shower and get my jenes on and a clean top.

Then I go into the kitchen to two cans of Pepatmen get out some gloves and a new feeding bag and my feeding pump and carring case. set up my feeds for the day. as all this is going on I have Hilary Duff playing on my CD player. to keep me moveing. after that I start putting on my make-up. by this time I am sleepy and mom finds me sleeping on my bed.

And I do all this at night and at noon also...
this is my Cystic fibrosis day..

 

[cysticfibrosisgirl]

Ok up at 6:30am set up my meds that go down my G-tube (this is allot) grab a med cup to mix one of the meds. then go into the frage to grab my mucomist grab a clean shot with a needle poke it into the mucomist cap bring up 2 1/2 ml take out the shot and tap it to clear any air.

set it down on the table with my other meds for the day. then fill up a new shot with my Regaln (tummy med) put it in a cup mix it with 0.9% Rx water then fill a large shot about up to 60ml and set that down with rest of my meds. My mom comes out to help me set up the others. She get a clean shot and fills it with 6ml of my Arothromayilln (think this is how you spell this?) set that down with my other meds.

Then we fill a new shot with Loctose to help me have stools. set that with the others. Then I get out one pack of Maralax 17 grams. mix that into a cup of hot tea. drank it all up. Then I take my CF ADEK's my Cymbalta, Abilify then my pain pills bacuse of the G-tube. then my Singulair, a B-2 and a B-12 pill then a big white pill for my bones.

Then I take two puffs of my Atrovent inhaler and my Pulocourt inhaler. then two sparys of my Nosonex and sailne. Pop about five Pancarsecarb MS 20 enzymes for my tube-feeding I had over night. Then I set up my nebulizer treatments by cleaning my ned cups from the night before. So I boil them in hot water for 10mins. and then fill up the ml cap of part 10% saline and part 9% saline put that into a clean neb cup. Get out my Pulozyme Albuterol put them in a clean cup marked with there names on them.

Go down stars to my Vest. Start my albuterol then set up my tummy for the vest. start my vest up.. when thats over I go up to my room and try to get into the shower and get cleaned up. so take off the dressings on my G-tube. get into the shower and get my jenes on and a clean top.

Then I go into the kitchen to two cans of Pepatmen get out some gloves and a new feeding bag and my feeding pump and carring case. set up my feeds for the day. as all this is going on I have Hilary Duff playing on my CD player. to keep me moveing. after that I start putting on my make-up. by this time I am sleepy and mom finds me sleeping on my bed.

And I do all this at night and at noon also...
this is my Cystic fibrosis day..