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Your routine?
- Thread starter Faust
- Start date
I get up in the mornings around 8-9am take my meds, Prevacid, Zithromax,Zyrtec, Paxil CR, Xanax, Buspar.
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
I get up in the mornings around 8-9am take my meds, Prevacid, Zithromax,Zyrtec, Paxil CR, Xanax, Buspar.
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
I get up in the mornings around 8-9am take my meds, Prevacid, Zithromax,Zyrtec, Paxil CR, Xanax, Buspar.
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
I get up in the mornings around 8-9am take my meds, Prevacid, Zithromax,Zyrtec, Paxil CR, Xanax, Buspar.
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
I get up in the mornings around 8-9am take my meds, Prevacid, Zithromax,Zyrtec, Paxil CR, Xanax, Buspar.
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
Than I go brush my teeth and all that jazz. Than I sit down at my computer test my blood surgar and do my Xopenex, Vest 20 minutes, and than Colistin, and than I take my Advair.
Then I eat breakfast and take my Lantus insulin and my Novolog insulin, and take 6 Ultrase 20's and my ABDEK vitamin.
Then I head for a shower and plan my afternoon.
I eat lunch taking my Novolog with lunch also my 6 Ultrase MT 20's and my Buspar.
We eat supper around 5pm once again Taking Novolog, 6 Ultrase MT20's, and my ABDEK vitamin.
Then at night usually start around 7pm I do a Xopenex, Vest 20 minutes, and Colistin. I take a puff of my Advair, and take my Singular, Benedryl and Buspar before bed. I sometimes have to take cough medicine before bed also to help me get through the night with out coughing all the time. Night time my cough works over time not sure why. Dr just gives me Tussionex to take before bed to help.
Go to bed and wake up next day do all over again.........
Hmm, good question. Everything I do is so mechanical at this point, it is like brushing my teeth only it takes longer LOL!
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hmm, good question. Everything I do is so mechanical at this point, it is like brushing my teeth only it takes longer LOL!
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hmm, good question. Everything I do is so mechanical at this point, it is like brushing my teeth only it takes longer LOL!
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hmm, good question. Everything I do is so mechanical at this point, it is like brushing my teeth only it takes longer LOL!
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hmm, good question. Everything I do is so mechanical at this point, it is like brushing my teeth only it takes longer LOL!
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
In the am...time is dependent on how tired I am in the morning. I am a homebody, am disabled due to respiratory failure (live on vent...myopathy related). Anyhow...I wake up, go to the BR and do my business, all the while bagging myself. I come off the vent for this. I usually clean myself up for the day at the same time, hey, why waste energy?? When I am all through, the really fun stuff begins. I hook myself back up to the vent and proceed with my nebs. First, I neb Xopenex, then Pulmozyme. Next is my vest, which is much more comfortable now that I have the proper size. Not to get off of the subject, but boy does a properly fitting vest make a difference!!! I start at 10 MHz, pressure 3 for 10 min. Increased to 14 MHz for an add'l 10 min. Then, I up it to 16 MHz for 5 min and finally up to 18 MHz for a final 5 min. I cough, suction if needed and then do my TOBI when I am on that rotation. Flovent is last. I take my meds(Nexium, Synthroid, Verapamil, Zithromax 500mg on MWF, vitamins, iron, calcium, coumadin, baclofen etc...), check my sugars and then eat. I never eat prior to doing my vest, it is very uncomfortable!!! I take my enzymes with my meal, about 3 Creon 20's depending on how much fat etc...is in the meal. I don't eat big meals, it is uncomfortable to eat alot. Being on the vent, too much food in my stomach presses on my diaphragm making my breathing effort more difficult, also...my GERD acts up more with a very full stomachl
After meals, I do my trach care...change the dressing or "bib", clean the area near the stoma etc. Change the inner cannula, check to see what my sputum looks like. I also make sure that my suction catheter is clean, if it is due to be changed then I change it. During the day, I make sure there is enough humidification in my vent circuit...I add sterile water to the resevoir.
If I go out, I make sure that my back up vent is okay, the batteries are charged etc...and the HME (provides humidity) is changed. I also make sure that my emergency bag is fully stocked...there is nothing worse than having a problem with either my circuit, my trach..anything that may compramise my breathing, and not being prepared! My wheelchair is also checked to make sure that it is also fully charged.
I do take naps on and off during the day. I also eat frequently throughout the day, small meals and check my blood sugars and cover as necessary. At 2pm, I neb another dose of Xopenex. If I have a sever coughing fit, sometimes I nebulize Lidocaine to soothe my raw lungs. Works like a charm!
In the PM, I repeat my am CPT and nebulized meds routine and take my pm meds and insulin, Lantus. Finally, I am off to la la land until the next day begins. Currently, I have a PICC line that isn't being used, so I flush the lines and make sure that the dressing is intact. I change it as needed.
Like most of you, taking care of myself is a full time job! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
I'm 8 1/2 years post transplant, and right now my routine is extremely easy:
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
I'm 8 1/2 years post transplant, and right now my routine is extremely easy:
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
I'm 8 1/2 years post transplant, and right now my routine is extremely easy:
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
I'm 8 1/2 years post transplant, and right now my routine is extremely easy:
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
I'm 8 1/2 years post transplant, and right now my routine is extremely easy:
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.
10 am: take a handful of pills
10 pm: take another handful of pills.
Insulin pump throughout & Ultrase MT 12 with meals.
Now granted, there are a lot of pills, but still it's awesome: no nebs and no vest--never thought I'd be living that dream.