Search results
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M
anybody have the gene R117H?
Oh man, Jada, I am sorry to hear your news. I am stunned. Wow. I'm looking forward (hopefully) to seeing you on Monday. I'll pm you my phone number if you want to talk. -
M
anybody have the gene R117H?
Oh man, Jada, I am sorry to hear your news. I am stunned. Wow. I'm looking forward (hopefully) to seeing you on Monday. I'll pm you my phone number if you want to talk. -
M
anybody have the gene R117H?
Oh man, Jada, I am sorry to hear your news. I am stunned. Wow. I'm looking forward (hopefully) to seeing you on Monday. I'll pm you my phone number if you want to talk. -
M
Meconium illeus at birth
Leila had meconium ileus as well. It resolved with two gastrografin enemas. We were extremely relieved not to need surgery. See her mutations in my signature. -
M
Meconium illeus at birth
Leila had meconium ileus as well. It resolved with two gastrografin enemas. We were extremely relieved not to need surgery. See her mutations in my signature. -
M
Meconium illeus at birth
Leila had meconium ileus as well. It resolved with two gastrografin enemas. We were extremely relieved not to need surgery. See her mutations in my signature. -
M
My CF-savvy kid
We have a couple stories, too. Recently my daughter was admitted for a tune-up. The nurse came in at one point to access her PICC line and didn't have her gloves on. I heard my daughter say, rather matter-of-factly "You don't have your gloves on." The nurse looked surprised and told her she... -
M
My CF-savvy kid
We have a couple stories, too. Recently my daughter was admitted for a tune-up. The nurse came in at one point to access her PICC line and didn't have her gloves on. I heard my daughter say, rather matter-of-factly "You don't have your gloves on." The nurse looked surprised and told her she... -
M
My CF-savvy kid
We have a couple stories, too. Recently my daughter was admitted for a tune-up. The nurse came in at one point to access her PICC line and didn't have her gloves on. I heard my daughter say, rather matter-of-factly "You don't have your gloves on." The nurse looked surprised and told her she... -
M
trick to sterilizing nebs?
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Oh no, Jenn! That sounds terrible. I laughed when I read your post because I could just imagine the look on your face when you saw all of that stuff melting. I'm sorry that happened. Okay, you don't suck at boiling, you just... -
M
trick to sterilizing nebs?
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Oh no, Jenn! That sounds terrible. I laughed when I read your post because I could just imagine the look on your face when you saw all of that stuff melting. I'm sorry that happened. Okay, you don't suck at boiling, you just... -
M
trick to sterilizing nebs?
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Oh no, Jenn! That sounds terrible. I laughed when I read your post because I could just imagine the look on your face when you saw all of that stuff melting. I'm sorry that happened. Okay, you don't suck at boiling, you just... -
M
How often do you sterilize nebs?
Hey Jenn, We also wash with hot, soapy water, rinse, and then boil every single time. I am paranoid about what could happen if we don't. I have 3 sets for xopenex and then 1 set for pulmozyme, so I can wait to boil until I have a whole pile. I also buy purified water so that our (very) hard... -
M
How often do you sterilize nebs?
Hey Jenn, We also wash with hot, soapy water, rinse, and then boil every single time. I am paranoid about what could happen if we don't. I have 3 sets for xopenex and then 1 set for pulmozyme, so I can wait to boil until I have a whole pile. I also buy purified water so that our (very) hard... -
M
How often do you sterilize nebs?
Hey Jenn, We also wash with hot, soapy water, rinse, and then boil every single time. I am paranoid about what could happen if we don't. I have 3 sets for xopenex and then 1 set for pulmozyme, so I can wait to boil until I have a whole pile. I also buy purified water so that our (very) hard... -
M
CVS - testing fetus for CF
I did CVS testing with our third child. It was done at 11 weeks, 2 day. We had to travel about 1.5 hours to another city where they are routinely done. I wanted to make sure the doctor had lots of experience. When I arrived I visited with the genetic counselor who explained that we would... -
M
CVS - testing fetus for CF
I did CVS testing with our third child. It was done at 11 weeks, 2 day. We had to travel about 1.5 hours to another city where they are routinely done. I wanted to make sure the doctor had lots of experience. When I arrived I visited with the genetic counselor who explained that we would... -
M
CVS - testing fetus for CF
I did CVS testing with our third child. It was done at 11 weeks, 2 day. We had to travel about 1.5 hours to another city where they are routinely done. I wanted to make sure the doctor had lots of experience. When I arrived I visited with the genetic counselor who explained that we would...