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Does anyone have a child with CF, or anyone with CF<u> NOT</u> taste salty?

Does anyone have a child with CF, or anyone with CF<u> NOT</u> taste salty?

I have always been on the more constipated side of life! Ask your doctor if when it seems really bad if you can give her alittle mineral oil.... it doesnt taste great but boy does it work... kinda like having a lube job to be frank but when you hurt anything is worth feeling better... just...

I have always been on the more constipated side of life! Ask your doctor if when it seems really bad if you can give her alittle mineral oil.... it doesnt taste great but boy does it work... kinda like having a lube job to be frank but when you hurt anything is worth feeling better... just...

I have always been on the more constipated side of life! Ask your doctor if when it seems really bad if you can give her alittle mineral oil.... it doesnt taste great but boy does it work... kinda like having a lube job to be frank but when you hurt anything is worth feeling better... just...

I have always been on the more constipated side of life! Ask your doctor if when it seems really bad if you can give her alittle mineral oil.... it doesnt taste great but boy does it work... kinda like having a lube job to be frank but when you hurt anything is worth feeling better... just...

I have always been on the more constipated side of life! Ask your doctor if when it seems really bad if you can give her alittle mineral oil.... it doesnt taste great but boy does it work... kinda like having a lube job to be frank but when you hurt anything is worth feeling better... just...

I am sure this is very hard on her... she might even be going through a slight post tramatic syndrome..since she is scared to get sick... what if she decorates her mask the night before going to school....gives it time to dry if she uses markers... and let her "make it her own".... she might...

I am sure this is very hard on her... she might even be going through a slight post tramatic syndrome..since she is scared to get sick... what if she decorates her mask the night before going to school....gives it time to dry if she uses markers... and let her "make it her own".... she might...

I am sure this is very hard on her... she might even be going through a slight post tramatic syndrome..since she is scared to get sick... what if she decorates her mask the night before going to school....gives it time to dry if she uses markers... and let her "make it her own".... she might...

I am sure this is very hard on her... she might even be going through a slight post tramatic syndrome..since she is scared to get sick... what if she decorates her mask the night before going to school....gives it time to dry if she uses markers... and let her "make it her own".... she might...

I am sure this is very hard on her... she might even be going through a slight post tramatic syndrome..since she is scared to get sick... what if she decorates her mask the night before going to school....gives it time to dry if she uses markers... and let her "make it her own".... she might...

I am still very new to all this myself..we are still in testing phase, but my son is on pancreas...i read in the pamphlets that the pellets can burn the inside of the mouth...so she is good to get the meds another way right now.. i am sure it wont take long to get the mouth to heal and you can...

I am still very new to all this myself..we are still in testing phase, but my son is on pancreas...i read in the pamphlets that the pellets can burn the inside of the mouth...so she is good to get the meds another way right now.. i am sure it wont take long to get the mouth to heal and you can...

I am still very new to all this myself..we are still in testing phase, but my son is on pancreas...i read in the pamphlets that the pellets can burn the inside of the mouth...so she is good to get the meds another way right now.. i am sure it wont take long to get the mouth to heal and you can...

I am still very new to all this myself..we are still in testing phase, but my son is on pancreas...i read in the pamphlets that the pellets can burn the inside of the mouth...so she is good to get the meds another way right now.. i am sure it wont take long to get the mouth to heal and you can...

I am still very new to all this myself..we are still in testing phase, but my son is on pancreas...i read in the pamphlets that the pellets can burn the inside of the mouth...so she is good to get the meds another way right now.. i am sure it wont take long to get the mouth to heal and you can...

Thank you again!! For us, even a simple bit of information is helpful! April

steve, i sent you a PM to see if you could just tell me if my sons blood samples have arrived... the lab at eh hospital had never used the kit before..or at least the girls drawing the blood. she was hoping she got enough, and the nurse at the Dr's office had never used the kit before so I hope...

yep, he has had an endo and sigmoid and they took about 12 biopsies at that time..he was tested for celiac, eosinophilic gastro and endo and even a sugar intolerance (special test that had to be sent to NY). So we are getting close to the end of the testing line... he had a U/S that couldnt see...