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  1. M

    How often do you boil your ned cups

    Just thinking how Reece is ALWAYS sick.....wondering if its the way we clean our neb cups or wait too long to replace them. We have the disposable cups for his albeutrol and pulmozyme & Pari plus for the TOBI. I have never boiled the disposable kind...I use vinegar once a week.....BUT after...
  2. M

    a "normal" family time together

    a "normal Sorry that was me above about watching movies all day....cuz its raining here too!!!!!
  3. M

    Toddlers Chest PT

    Well we try to do all together 20 min atleast..sometimes 30 if he coperates....so about 3~4 min on each side.I do 2 min a lobe...I just do 2 lobes on each side,front and back...thats why the vest is sooooo much eaiser. How old is your son?
  4. M

    Toddlers Chest PT

    They have said NOT to do the tilt method now. When Reece is in the hosptial they like him to lay on his sides and do the sides, lay on his back to do the front, lay on his front to do the back....BUT alot of times he does sit up and do the front and back. reason for NOT using the tilting is I'm...
  5. M

    for those on SSI & SSDI

    well reece does get SSI and YES it took us 18 months to get it..we kept appealing. BUT I just didnt want to miss something that could help us out further...My husband is the only one that is working and I really only worked part time jobs and didnt make enough anyways...I didnt know that you...
  6. M

    for those on SSI & SSDI

    What is the difference besides all the above between SSI & SSDI????? How do you apply for SSDI or should I say what are the qualifactions to receive SSDI??
  7. M

    Finding Out (Your Child has CF)

    Reece was born w/ mecoium elis (sp) BUT we had NO idea. As soon as he was born the docs noticed something....he did not take to the breast very well....to me the first sign looking back....(his tummy was all screwed up) then they noticed that his tummy was bloated. He was born on the...
  8. M

    1st Birthday

    <img src="i/expressions/present.gif" border="0">Happy Birthday, Craig!
  9. M

    What happened to those emoticons?

    I always used the angel.....I was wondering where they went as well.
  10. M

    To Parents of CF Kids - how do you de-stress?!

    sorry wasnt signed in above.....
  11. M

    Zyvox

    Reece has Medicaid so all his meds are covered through the state. When he first cultured MRSA they put him on just Timemintin & Tobra. Then the second time they put him on Vancomycin.....he got "redman syndrome" BUT they continued it and gave him benedryl before each dose. The last two times he...
  12. M

    our puppy needs a name......

    Cute names guys...thanks for the ideas.....
  13. M

    Help me laugh.

    Oh yeah...she thought Reece had Croup!!!!!!! And these docs get how much money?
  14. M

    Help me laugh.

    One time when Reece was an infant I was "new" I took him to his PCP for a cold. He was coughing and had a fever. This was an after hours visit so his regular doc was not there. She said she came & got us immediately as soon as she heard him cough. She brought us to a room and was asking us all...
  15. M

    side effects from antibotics

    Well thank you vey much.<img src="i/expressions/face-icon-small-happy.gif" border="0">
  16. M

    side effects from antibotics

    Reece has been off IVs for about 2 days now. I noticed that he started walking funny about a week ago. Its like his shoes are too small OR hes not bending his ankles..... his doc looked at his legs and did some neuro tests....thinking it could be a balance thing due to the IVs.....this is what...
  17. M

    Symptoms - self diagnosis.

    Glad to hear that your feeling better AGAIN!!!!! Take care and take it easy.<img src="i/expressions/face-icon-small-happy.gif" border="0">
  18. M

    our puppy needs a name......

    Our dog had four puppies on my husbands birthday in April. We are gonna keep one BUT we havent figured out which one. One of them is all black and very playful already ( hes the boy) go figure...lol... The girl is kinda laid back & she is also black w/ brown markings like a rotweiler.......she...
  19. M

    To take the 1 in 4 chance?

    Sorry fogot to sign in.....that was me about deciding to "try for another miracle baby"
  20. M

    Home IVs for toddlers

    I agree on the scheduling thing......Reece just got off IVs yesterday....YAY!! I was staying up til 12:30~1am to give him his last dose of Timentin. He was getting it at 6am, 12:30noon, & 6pm......then Tobra at 8pm. Plus ALL the other treatments in between. He adjusts soooo well w/ IVs...having...
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