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  1. M

    Today is Ry's birthday

    Happy Birthday, Ry!!!!!!!!!! <img src="i/expressions/present.gif" border="0">
  2. M

    Just starting PFT's in a 5 yr old

    Reece has done pfts about 4~5x. His best was 67%. Worse like 29%. BUT his doc always says..."well he is ONLY 3"... Sometimes she even throws out the bad ones. We pinch his nose sometimes so NO air escapes. He is easily persuaded w/ bouncy balls or stickers to do his BEST!!!!!! Good Luck!!!!!
  3. M

    Atten: Port users

    Just wondering if you use your vest while you are acessed? It is soooo time consuming to do "love pats" every 4-6 hours, (he is also getting iv antibotics every 6 hours (4x day) and one that is 1x day...so a total of 5 iv antibotics a day... WHEW!!! It would be way easier to use the vest. BUT I...
  4. M

    Julie.. PLease update on you and the kiddos... and Mark

    I think the twins will be boys....and maybe just maybe baby A is a girl.....but with the hearbeat still in the 160s it could be a boy...... Leah
  5. M

    Julie.. PLease update on you and the kiddos... and Mark

    So glad to hear you are feeling as good as you do!!!! About clothes..have you tried the consignment stores for babies...usually they have maternity stuff too...just a thought. So you are still working??? Good for you... I quit when I was about 3 1/2 months. Just take it easy. I would hate to...
  6. M

    Sputum question

    Thanks everyone!!!! He has a dr. appt. this fri. I just hope they dont admit him coughing the way he has ( just in the morn though) he always coughs in morning and thats when his appt is 9:15am. Alot of times they go by his O2 if its under like 91/92 they usually get him a room. I just HATE...
  7. M

    CF related???

    Reece also has VERY dry skin. Even his face is affected. The last time he was in the hosptial the nurses gave him a cream called Eurcin (sp) It helped ALOT!!! I always wondered that too.
  8. M

    Josh is still sick

    <img src="i/expressions/musicnote.gif" border="0">HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO JOSH, HAPPY BIRTHDAY TO YOU<img src="i/expressions/musicnote.gif" border="0"> Good thing he could'nt hear me...LOL
  9. M

    Sputum question

    This morning Reece woke up coughing his head off. He got a nosebleed and was coughing up alll kinds of stuff. Ever since he started TOBI he has been coughing alot. (TOBI is treating Psued.) AND coughing up junk. This morning had blood streaked through it and bright green sputum. As I was...
  10. M

    Josh is still sick

    Oh Jane, I feel for Josh....who wants to be in the hosptial, especially on your birthday. Im praying for a fast recovery and that they find out exactly what it is causing the fevers. Tell him to hang in there even though its rough...Reece would say givem' a high five!!!! ( that always gets a...
  11. M

    Great Strides Walk

    Our walk is tomorrow. What is the usaual done at ya'll walks? Do you have games, clowns, music? The last three that we have attended have been ok. We usually talk about updates on the local CFers. Then we have a nice "rose ceromony". 65 Roses are give out to one person on a team and they call...
  12. M

    Vest

    We bring ot w/ us. It comes with a duffle bag for easy carry and storage..although its pretty heavy....but we still take it. Its not that bad. You will love the vest..glad your getting it soon!
  13. M

    UPDATE on Josh

    Jane, Im so sorry they have to be in there on their b~days. What a bummer<img src="i/expressions/face-icon-small-frown.gif" border="0">. Reece got red man syndrome also!! Praying all goes well and you get to come home soon!!!! It seems your boys and Reece have alot in common....sinuses...mickey...
  14. M

    where are your toddler's Port lines?

    Reeces' port is on his right side under his nipple ( well anout 2~3 in down. Right side cuz he has alot of damage on his left side and we wanted to be able to do CPTs easy when he is sick instead of the vest. Also under nipple cuz surgeon said bandage when acessed would lay flat vs. up on his...
  15. M

    How far to your clinic?

    We're about 20 min away. Right through the tunnel and we're there!!!! Sometimes it takes just another 10 min. ~ 15 min. w/ tunnel traffic in the morning. We love being soooo close when he's in the hosptial.
  16. M

    coughing up white bubbly mucous

    The last 2 mornings he has been coughing this up, I cant tell if its saliva mixed in with it or if its someting else. Can you help me out...have yall coughed up stuff like this. Reece has never really coughed up stuff AND spit it out. Its probably normal BUT just wanted to make sure. Thanks.
  17. M

    just seeing if this works

    You go to your profile and click edit or update.
  18. M

    when will it STOP?????????

    Jane, Reeces button is good...lol thanks for asking. The resident called today too about that said to keep putting that triamcinolone around it for the granulation. I was thinking a sunny place with a cool breeze and a nice fruity drink to sip on. Someone giving me a massage and catering to my...
  19. M

    when will it STOP?????????

    Reece DOES also have MRSA....I know he will be fine but its that intial etched in stone. You just dont want your child to be sick.... I just feel he is ONLY 3 and has been in the hosptial 5x with "bad" lungs. He already has a great deal of lung damage to his lower left lobe, and some to his...
  20. M

    just seeing if this works

    guess not....help how do i get my pic in with my signuture.
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