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  1. R

    Thank you all for honoring the life of Randy Snider.

    <br> My family and I just wanted to thank those of you who visited Randy Snider's memorial web site, http://www.randysnider.com/ . He passed away August 19, 2005 from CF. He was a Son, a Grandson and a Nephew. He was only 15.<br> <br> Family encouraged us to share the site with others on the...
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    My Dad is done fighting he's at peace

    <b>Amy,<br> </b><br> I am so sorry for your loss. It will be most difficult for you and family. Just know that you were much loved by your Father. He is at rest now and with his Bothers. Please let us know how you are doing.<br> <br> <b>Randford</b>, 43/CF/Ostio
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    new to the website

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i> hello everyone, my name is tom and i've finally decided to join this club after checking this site out for a few months. i'm 29 yrs old dx at 3months.</end quote></div><br> <br> <b>Tom,<br> </b><br> Welcome to the...
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    We Love You Randy.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i> I'm sorry to hear!</end quote></div><br> <br> <br> <b>Newfy,<br> </b><br> It's OK. He's in a better place.<br> <br> Thanks,<br> <br> <b>Randford</b>, 43/CF/Ostio
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    We Love You Randy.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i> Welcome to the site RF, what a touching memorial. What a sad story, but look how many people he's touched in his short life! Wish we'd known him....</end quote></div><br> <br>...
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    We Love You Randy.

    <b>Risa</b>,<br> <br> I'm so glad that you and everyone is visiting the site. Only family knew about it but one member encouraged me to share it with everyone. I'm glad that I did. Randy would be so proud.<br> <br> Hang in there and thanks.<br> <br> <b>Randford</b>, CF/Ostio
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    We Love You Randy.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> This stupid F***ing disease robs yet another brilliant young life. I am so sorry for your loss, the website you linked is a lovely tribute to a fine young man.</end quote></div><br> <br> <b>Prussian,</b><br> <br> I...
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    We Love You Randy.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i> No problem. Your log in seems to be working well now too!!! I keep going back to that site, I really like the dedication of the tree. I forwarded it to my family, they love stuff like that. Hope you stick around...
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    We Love You Randy.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i> What a beautiful website, the red maple dedication brought me to tears. I am so sorry for your loss. Surely he is looking down watching out for all those he loves. Thank you for sharing this website.</end...
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    We Love You Randy.

    I'm having a problem logging on as Randford. Anyway, thanks for all for the kind comments about Randy and the web site. I feel like all of you are my family. I pray that one day no child will be born with CF. No child should suffer. In the mean time the battle wages on.<br> <br> Thank you...
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    We Love You Randy.

    Thanks, DRB. In his honor and all of the children who suffer, I just want to help others now.<br> <br> Randford, 43/CF/Ostio
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    John My Heavens newest Angel

    Jenny,<br> <br> I'm so sorry for your loss. I'm choking back tears as I read of how you spent your last moments together. It was the same with my Nephew Randy. There are no words to describe the pain and heartache. But there is much love. John is looking down from heaven with love and watching...
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    makes you wonder

    <strong>Dramamama,</strong><br> <br> I copied your information for future reference. That really makes me wonder. You see I was diagnosed with adult CF 8 months after my Nephew died at 15 from P. aeruginosa finding a path from the left lung to the right hemisphere of the brain, causing an...
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    OK, I'm confused...

    <strong>Diane,</strong><br> <br> As simple as that sounds, you have a point. I am taking vitamin supplements until I get the full report on how bad the problem is. I never get sun. Guess I might do it now.<br> <br> <b>Randford</b>, 43/CF
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    Oil of Oregano

    <strong>boyfriendofCFer,</strong><br> <br> I've taken oil of oregano but I couldn't tell if it really made a difference. Since it's expensive, I stopped taking it.  I do hear that it is very good for a variety of aliments. It certainly can't  hurt.<br> <br> <b>Randford</b>, 43/CF
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    OK, I'm confused...

    OK, what gives? I just found out that I have CF-related Osteoporosis. I'm sure I'll be placed on some medical regiment. Then I see this article and now I'm confused. Is there any truth to this?<br> <br> http://www.medicalnewstoday.com/medicalnews.php?newsid=27487<br> <br> <b>Randford</b>, 43/CF
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    NEWS ALERT!!

    <strong>Diane,</strong><br> <br> I never though of it that way. You're right. I was exited to share the news but I'm new. I'm sure you hear these "break-throughs" all the time. I just want to raise everyone's spirits but I can see where it gets repetitive and old.<br> <br> Hang in there.<br>...
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    CF and Androgen Levels

    I'm wondering if any CF male patients have had erratic androgen levels -- low testosterone. My CF doctor said that it is a distinct possibility although I'm not sure of any direct studies on this issue. The term is call hypogonadism and is listed in Bone Mass Density studies as a culprit. It...
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    CF-Related Osteoporosis

    <strong>MyNewfy,</strong><br> <br> Thanks for the info. It's funny. At 40 I started taking a supplement as a deterrent. Too much Paul Harvey, I guess. Then I stopped taking it. You know how that goes. Life gets in the way. After diagnosis, I bought some supplements on the way home from the...
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    NEWS ALERT!!

    <strong>Lynda,</strong><br> <br> That's the first time I've heard of a link between cancer and CF. I'm learning something new every day. If you you find out anything, let us know. I will do the same.<br> <br> <b>Randford</b>, 43/CF
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