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Allie, you are SO right - and eloquent!My husband has never been selfish about things with regard to CF. We have made lots of hard decisions together and in most of them CF was a factor (not usually the deciding factor, though). I work parttime, because we need me to and I am able, but anytime I...

I don't have any personal axperience with pregnancy post-transplant. There isn't much information out there, because it just hasn't been done much. I have some of the information on <A...

My old clinic didn't do this, but my new one has some sterile policies. If you come in sick (contagious), have MRSA or Cepacia, you are given a mask to wear in the waiting room. We are all given gloves to wear when we touch common equipment (PFTs) and the docs all wash their hands in our rooms...

If Celiac is diagnosed there are lots of really delicious recipes out there. We mostly just eliminated things, but there are great products (Pamela's) for cakes, pancakes, cookies, bread, etc. that are gluten-free. There is also a neat recipe book for kids foods (Gluten Free Foods for Kids). It...

To the 29 weeks pregnant mom:You mentioned being sick and wanting to get to the stage where you can have a c-section. Why are you planning a c-section? I'm curious because c-sections are not recommended for CF patients - based on research. I would encourage you to consider if vaginal delivery is...

Celiac Sprue is an autoimmune condition in which the body (intestines specifically) begin to attack themselves and break down the lining when gluten is ingested. It can cause a host of symptoms and complications including stunted growth, anemia, learning delays, chronic pain, large amounts of...

I usually say something like,"I've made some phone calls and have done a little reading and I wonder about X. Can you tell me if this might be an option for me? Why don't you think that is a good option? Would you be willing to let me give it a try for a week (or month or six months) before we...

I also swam as a kid (from about 12-18) on the city and school teams. It was great exercise and did wonders for keeping my lungs clear when I didn't want to do treatments - those were the days!End of August, I found a local pool and got back in the water. I started with 3 days a week doing 30...

There was an article in one of the recent issues of CF Roundtable about the CF Rankings and the differences between clinics and the fact that the ranks are not made public. There are some things you can do that can help you be informed. You can ask very specific questions of your current or...

I see the Neti Pot was mentioned. Can you tell me more about your experience with this? It has been suggested to me. I was told about using the recipe mentioned above (water with salt and baking soda). I have also found that Grapefruit Seed Extract (Citrus Seed Extract) can be added to the...

PS - I had trouble conceiving, but my pregnancy was very normal (actually healthier than my norm). I had a homebirth with a midwife that was fabulous. Only 11 hours start to finish, no interventions, no complications. I healed up well. I breastfed exclusively for 13 months and my daughter...

It really isn't true that women with CF having kids is a new thing. What IS new is that our docs aren't always discouraging it and there is some good research being done. In many of the studies and literature I've looked at, they state that the earliest account of a CFer bearing a child was in...

That's weird. I've donated blood before. I tried a few times and wasn't allowed, but it was because my weight was too low. When I DID donate, no one mentioned any problems, they did the usual check and I qualified. Once when I was really sick and needed a couple of transfusions, a few friends...

I had "failure to thrive" as my indiciation for testing. They tested with a sweat test when I was 7 months old. I don't know what amount of sweat I came up with, but my numbers were overwhelmingly positive. 60 is absolutely positive, mine was 112.

CF can affect menstrual cycles INDIRECTLY. Hormones and reproductive functions are inextricably linked to nutrition. If you are lacking in certain nutrients or have an overall deficit in nutrients your reproductive system will have a high likelihood of malfunction. Make sure you have a good...

Hey Margaret, Thanks for sharing your ideas and opinions and for letting me do so as well. It is so nice when we can have an open honest discussion without people getting all huffy <img src="i/expressions/face-icon-small-smile.gif" border="0">I haven't "spoken" totally clearly. I also attended...

I'm obviously playing devil's advocate, but let's play this out.I homeschooled part of high school, graduated two years early and then attended the local community college. All of my friends were public schoolers. We were friends when I homeschooled and friends when I went to CC. We had...

<P>Is your pain solely in the nipple/areola area? Usually newly pregnant nipples and areolas are hypersensitive, but there is also usually breast ternderness accompanying. Is the nipple/areola skin chapped looking? That could be a sign of thrush. It isn't common for a non-lactating woman to get...

What am I taking?Reliv nutritional supplements (1 scoop Now 2xday, 1 scoop Innergize 2xday, 1/2 scoop Fibrestore 1xday, 1/2 scoop Provantage 1xday)Albuterol aerosols (2xday)Tobi aerosols (2xday, one month course)Pulmozyme aerosols (1xday)Ultrase MT20 (3 w/ meals, 1-2 w/ snacks)Prevacid...

I thought of another couple of things to throw into the mix after I got off last night. - Homeschooling would NOT be a good idea for a laid-back, non-goal-oriented family. You know yourself. Will you be able to get up each day and maximize the teachable moments, set goals, be regular in...