Search results

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    Pulmozyme

    I do Pulmozyme 2x/day, monring and night
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    Tay-Sachs' child on Colistin

    I'm just reaffirming what my mom said-- it is amazing to me how much less Colistin foams while in the SideStream.
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    a game!!!

    I say BLUE! (my eye color), but my mom says BROWN! (hers) <img src="i/expressions/face-icon-small-smile.gif" border="0"> Broadcast news or a newspaper?
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    Pics - Let's see 'em

    Carey, you still are being listed as an anonymous user. I don't know what's wrong? PS: Bono was on the cover of the NY Times Magazine this Sunday--- you should try to get your hands on it <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    What do you think? ...for WinAce

    <blockquote>Quote<br><hr>But since Moore is doing a special on HMOs next, as I said, I'm willing to deal with the "forces of evil." =) <hr></blockquote> I should read more carefully <img src="i/expressions/face-icon-small-blush.gif" border="0">
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    What do you think? ...for WinAce

    I think Michael Moore's next movie is about HMOs, medical care in our country, etc., so he could very well be interested.
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    Guess What?

    Happy Birthday! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    a game!!!

    I like a fountain pen when I'm writing something to hand in, a Biro for note taking. Waffles or Pancakes?
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    a game!!!

    Good. Hamburger or Hot Dog?
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    where are the HIP diseased folks.

    Haha I was just realizing I am practically the only person on here with an iPod, and most other people claimed too poor to have one. Well, I don't think I would be owning one except for the fact my friends all ganged up and bought me one for my sweet sixteen. The $200 a normal kid would have for...
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    Hi there, I am new here....

    Welcome!
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    Pulmozyme

    Q]I was doing it at night, but the doc said that it was not doing the best it could being given at night. <hr></blockquote> Kathie, do you and Samantha both have CF?
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    First bronch surgery

    I've had several bronchs. I don't remember anything from any of them (although I once saw the film of what they saw inside my lungs, that was interesting). The one thing I can say that is notable about the post-bronch time is that I had a slightly sore throat, but nothing that wasn't cured by a...
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    Medication in America

    If you are only staying in New York for a few months, could your doctors write you prescriptions for 6 months (or whatever amount necessary to cover your entire stay here?)
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    ***HELP< HELP COLISTIN MIXING

    For Colistin, my mom and I have B-D brand 5ml 22gauge, 1 1/2 inch 'precision glide' syringes. These work well for us.
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    Why hasn't the number changed?

    The anonymous poster who wrote about genetic screening brings up a good point. More and more people are getting genetic screening, and even those who don't screen the embryo before implantation (PGD) can still have amnio. The amnio can tell you whether the baby will be a CFer or not, and the...
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    Random thought about equipment. . .

    I'm obviously, also a Rent fan, and looking forward to the movie. It will be interesting to see how they modify the stage version (with its different type of set-- a non-set if you will) to the screen. My mom is also a big fan-- her username is SeasonsOfLove. <img...
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    Random thought about equipment. . .

    I agree, but then that's true of a lot of things (like the saying goes). Are you a Rent fan? I ask becuase MeasureInLove a line from "Seasons of Love". <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    All you "cool" people

    I agree that smoking pot is kind of foolish when you have CF... particularly if you have more severe lung involvement. I have never experimented with any drugs because I know my health would suffer for it, and so I plan not to ever. However, I think that for CFers who were healthier in their...
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    where are the HIP diseased folks.

    We're right here. Have you seen the MANNNY 'hip' posters on here? Did you look through very carefully at all. There are tons of people who would understand a subtle pop culture reference. Because this is a CF board, discussions of pop culture don't come up often, but we DO go to movies and...
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