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  1. C

    What point to worry?

    Don't deny him the fun camp, its great exercise for his lungs. Just supplement with high sodium foods and lots of fluids. Gatorade (low sugar if cfrd) and v8 juice are good. If he will drink it add some salt to his water. I sort of crave v8 juice and pretzels as a snack after I come in from...
  2. C

    Clear Lungs herbal formula

    Came across this herbal product.  Wondering if anyone has tried or uses the product<span style="font-weight: bold;">?  I guess I am feeling a bit bored in my supplement usage these days and was thinking of giving it a try, though my expectations are pretty...
  3. C

    Clear Lungs herbal formula

    Came across this herbal product. Wondering if anyone has tried or uses the product<span style="font-weight: bold;">? I guess I am feeling a bit bored in my supplement usage these days and was thinking of giving it a try, though my expectations are pretty...
  4. C

    Clear Lungs herbal formula

    Came across this herbal product. Wondering if anyone has tried or uses the product<span style="font-weight: bold;">? I guess I am feeling a bit bored in my supplement usage these days and was thinking of giving it a try, though my expectations are pretty...
  5. C

    Bactrim

    Make sure you are drinking plenty of water. As with any antibiotic you should drink extra water; however, I believe this is especially important with sulfa drugs like bactrim.
  6. C

    Bactrim

    Make sure you are drinking plenty of water. As with any antibiotic you should drink extra water; however, I believe this is especially important with sulfa drugs like bactrim.
  7. C

    Bactrim

    Make sure you are drinking plenty of water. As with any antibiotic you should drink extra water; however, I believe this is especially important with sulfa drugs like bactrim.
  8. C

    Eflow

    You just need to find something that works for you and go with it. I see no reason to rinse with distilled water. In my opinion, if you soak the head in alcohol and boil only the plastic pieces I see no huge gain to using distilled water. If you are going to boil the head or use a baby bottle...
  9. C

    Eflow

    You just need to find something that works for you and go with it. I see no reason to rinse with distilled water. In my opinion, if you soak the head in alcohol and boil only the plastic pieces I see no huge gain to using distilled water. If you are going to boil the head or use a baby bottle...
  10. C

    Eflow

    You just need to find something that works for you and go with it. I see no reason to rinse with distilled water. In my opinion, if you soak the head in alcohol and boil only the plastic pieces I see no huge gain to using distilled water. If you are going to boil the head or use a baby bottle...
  11. C

    Swim team

    Swimming is great exercise. An outside private well maintained pool is best, but if it is something he loves to do I would not take it away. If it is something you are somewhat pushing him into then maybe not. If he is really into it then the exercise and his happiness out weighs the risk in...
  12. C

    Swim team

    Swimming is great exercise. An outside private well maintained pool is best, but if it is something he loves to do I would not take it away. If it is something you are somewhat pushing him into then maybe not. If he is really into it then the exercise and his happiness out weighs the risk in...
  13. C

    Swim team

    Swimming is great exercise. An outside private well maintained pool is best, but if it is something he loves to do I would not take it away. If it is something you are somewhat pushing him into then maybe not. If he is really into it then the exercise and his happiness out weighs the risk in...
  14. C

    Danger if vest settings too high?

    You should not need to change the vest settings because she has a cough, just maybe do it longer or more often. You want to choose the settings that are most effective regardless of symptoms.  You should follow something like the protocol that came out of Minnesota.<br>
  15. C

    Danger if vest settings too high?

    You should not need to change the vest settings because she has a cough, just maybe do it longer or more often. You want to choose the settings that are most effective regardless of symptoms. You should follow something like the protocol that came out of Minnesota.<br>
  16. C

    Danger if vest settings too high?

    You should not need to change the vest settings because she has a cough, just maybe do it longer or more often. You want to choose the settings that are most effective regardless of symptoms. You should follow something like the protocol that came out of Minnesota.<br>
  17. C

    So discouraged- UPDATE

    So discouraged! He could give 3% a shot for a bit and then try the 7%. Also thinking he could have tapered off the prednisone too quickly. There is currently a good thread on cf2chat about this.
  18. C

    So discouraged- UPDATE

    So discouraged! He could give 3% a shot for a bit and then try the 7%. Also thinking he could have tapered off the prednisone too quickly. There is currently a good thread on cf2chat about this.
  19. C

    So discouraged- UPDATE

    So discouraged! He could give 3% a shot for a bit and then try the 7%. Also thinking he could have tapered off the prednisone too quickly. There is currently a good thread on cf2chat about this.
  20. C

    So discouraged- UPDATE

    So discouraged! Unfortunately feeling 'junky' can be a baseline. I know as I have gotten older I am more 'junky' then I used to be in between exacerbations. I think it is just the nature of the disease and the antibiotics not working as well as they used to. Is he able to clear himself out...
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