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    Bacterial crowding?

    Yeah, it is difficult to say. I have been told that treating mycobacterium might just allow pseudomonas to grow rampant etc... Sometimes I feel that antibiotics dont do all that much because it's generates a cycle of kill this, then kill that, then back to this first one again. Like all...
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    Genotyping, John's Hopkin's research

    Not sure where to best post this or even how to word it. I have seen several people in various threads talk about how they are going to find out their 2nd or both mutations soon. I am also doing this soon through the John's Hopkin's mapping study. I have one F508 mutation, but the other is...
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    Genotyping, John's Hopkin's research

    Not sure where to best post this or even how to word it. I have seen several people in various threads talk about how they are going to find out their 2nd or both mutations soon. I am also doing this soon through the John's Hopkin's mapping study. I have one F508 mutation, but the other is...
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    CFRD

    I have been diabetic since I was 14, so roughly 14 years. During this time I tried pills, then various types of insulin, long-term/short term etc, a pump, and now back to insulin in shot/pen form. Your ratio for insulin is pretty good. Maybe you can get by without insulin and just incorporate...
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    CFRD

    I have been diabetic since I was 14, so roughly 14 years. During this time I tried pills, then various types of insulin, long-term/short term etc, a pump, and now back to insulin in shot/pen form. Your ratio for insulin is pretty good. Maybe you can get by without insulin and just incorporate...
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    Hearing Loss

    Hi, I lost my hearing unrelated to antibiotics but likely related to CF. I had meningitis and lost all my hearing before I was even admitted to hospital. I did also lose all my balance but it gradually came back over the years and now I have fairly good balance. I can stand on one foot etc, and...
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    recieving benefits

    It doesn’t matter how much money your parents make if they do not support you then you can and should be considered independent. This particularly is applicable if you did your own tax return this year. I am enrolled in a Medicaid program called "Health Care for Workers with Disabilities." Each...
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    recieving benefits

    It doesn’t matter how much money your parents make if they do not support you then you can and should be considered independent. This particularly is applicable if you did your own tax return this year. I am enrolled in a Medicaid program called "Health Care for Workers with Disabilities." Each...
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    Good FEV 1s and bronchiectasis

    I have either mild or moderate bronchiectasis (lower right lobe) and last PFT was 109% about a week ago. Some people are mentioning tightening of the chest feeling etc.. I used to have that all the time and could not explain this to the doctors adequately. My new dr told me this is a symptom of...
  10. F

    Good FEV 1s and bronchiectasis

    I have either mild or moderate bronchiectasis (lower right lobe) and last PFT was 109% about a week ago. Some people are mentioning tightening of the chest feeling etc.. I used to have that all the time and could not explain this to the doctors adequately. My new dr told me this is a symptom of...
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    For those with CFRD (diabetes)

    I am curious as to how others manage their diabetes and the severity of their diabetes? I have been diabetic for over ten years and insulin dependent the whole time. While I always need insulin it seems like I need more or less just given the season or day of the week or anything and this is...
  12. F

    For those with CFRD (diabetes)

    I am curious as to how others manage their diabetes and the severity of their diabetes? I have been diabetic for over ten years and insulin dependent the whole time. While I always need insulin it seems like I need more or less just given the season or day of the week or anything and this is...
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    pari trek nebulizer compressor

    I tried to get a trio but my nurse said it doesn't work with my tobi even though the trio folks told me I can get my tobi changed to allow it to work, just as cf4life mentioned. She seems to want me to buy the trek, but I also heard it doesn't work well with pulmozyme and tobi! I will...
  14. F

    pari trek nebulizer compressor

    I tried to get a trio but my nurse said it doesn't work with my tobi even though the trio folks told me I can get my tobi changed to allow it to work, just as cf4life mentioned. She seems to want me to buy the trek, but I also heard it doesn't work well with pulmozyme and tobi! I will...
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    pari trek nebulizer compressor

    multitude of typos!! I meant nebulizer and battery
  16. F

    pari trek nebulizer compressor

    multitude of typos!! I meant nebulizer and battery
  17. F

    pari trek nebulizer compressor

    I am buying a portable nebulzier compressor for traveling. I have read conflicting reports of whether Pari trek works well for pulmozyme and tobi. My nurse has suggested this one to me... Anyone know? If anyone has suggestions for other portable nebulizers, It needs to be dual voltage and also...
  18. F

    pari trek nebulizer compressor

    I am buying a portable nebulzier compressor for traveling. I have read conflicting reports of whether Pari trek works well for pulmozyme and tobi. My nurse has suggested this one to me... Anyone know? If anyone has suggestions for other portable nebulizers, It needs to be dual voltage and also...
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    doc and I disagree

    <p style="font-size: 12px; border-style: initial; border-color: initial; background-color: rgb(250, 250, 250); ">Pulmozyme=5-10 minutes<p style="font-size: 12px; border-style: initial; border-color: initial; background-color: rgb(250, 250, 250); ">Albuterol=5-10 minutes<p style="font-size: 12px...
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    doc and I disagree

    <p style="font-size: 12px; border-style: initial; border-color: initial; background-color: rgb(250, 250, 250); ">Pulmozyme=5-10 minutes<p style="font-size: 12px; border-style: initial; border-color: initial; background-color: rgb(250, 250, 250); ">Albuterol=5-10 minutes<p style="font-size: 12px...
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