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  1. S

    vest wanted

    I know you don't want to wait too long but it seems like several times a year somebody has one that they either want to give away or sell very cheap.
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    New Member with Question about Hormones/CF

    If it comes down to a choice between gaining weight and physical activity I would choose physical activity every time. Weight will sort itself out if you are eating good quality food but every day that you don't get any exercise is a day that you can never get back.
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    Help! Blue fingers

    Great to hear that you are OK, but would sure like to hear an explanation of what happened.
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    doctor visits feel like a fight. something always happens. what is your visits like?

    To anybody reading this, I hope it doesn't come out the wrong way, but I absolutely refuse to be a COMPLIANT PATIENT. Nobody knows my body or cares what happens to me as much as I do. I do tend to alienate most doctors because I won't just do what they tell me to do. I am pretty intelligent and...
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    Pharmacutical vs Herbal -> Well researched herbal alternatives

    As I understand it the 2 things that cause problems for us and for most people really, just worse for us, is inflamation and build up of mucus from being too thick. It seems like the 2 things pretty much go hand in hand to the point that it is hard to tell which is the cause and which is the...
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    Simple question for cf'ers who are under 30% FEV1 (or post-transplant) see inside

    I have been under 30% for probably 10-12 years. I don't use any O2 and I work full time as an over-the-road truck driver. I am not saying that life is great but I do manage to get through each day. If you are looking to get an idea of what life is like below 30% I can tell you that every point...
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    Questions about PharmaNAC regarding CFRD

    pharmanac is a product that increases the amount of glutathione that you produce. Glutathione does many good things but the most important for us is it thins out the mucus so you can get rid of it easier. It also is an anti-inflamitory and helps oxygen bond to your red blood cells better...
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    Questions about PharmaNAC regarding CFRD

    At least some CF diabeties is caused by mucus plugging up the pancreas. It's not that you're not making insulin it is just not able to get into your blood system. The major purpose of taking the pharmanac is to increase your glutathione levels which thins all the mucus in your body. So when you...
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    New website on CF nutrition and natural health care

    Looks really good. I didn't have time to read over whole thing but it looks like you have brought together a lot of helpful info into one place. Might be a good website to direct your doctors to.
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    Trying to rid PA!

    I am happy for you and really glad to hear that you are looking for other choices besides dangerous drugs and hospital stays severasl times a year. Ask your son if he would rather drink a green shake and go play or spend 2 weeks in the hospital. I bet I know what his answer will be, and as...
  11. S

    Staph problems

    I have cultured staph for the last 50 years now. You all seem much more fluent in medical speak than I am but I will try to tell what my situation is like. The only thing is that we all start off different and as time goes by different courses of treatment make us even more unique, so what...
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    Pushing Yourself To Far? Please Help!!

    You can get an O2 meter for about $60 that will give you a pretty acurate picture of when you need to slow down and let your O2 level catch up.
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    first symptoms and diagnosis of CF at age 73

    As a 57 year old that has been struggling w/ CF my whole life my comments on this thread all have to be censored. You have made it to 72 and the majority of us on this list have very little hope of ever living that long. I should say congratulations for living this long but some how I just can't.
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    Does mucinex work?

    Active ingredient is Guafinicin? the same thing as cough syrup. Other things probably work better but as long as you don't have high blood pressure it shouldn't do any harm and it will help some to loosen up phlegm. I take just 1 400mg. w/ all my other goodies every morning.
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    how long do you give oral antibiotics before you give up?

    Unless you get other directions from the Dr. you should NEVER stop taking a course of antibiotics before it is done. If you don't think they are working or having a bad reaction then you need to get hold of the Dr. again but please don't stop taking the antibiotics once you start them. That is...
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    Antibiotics

    I think if you read the directions on the bottle it should say not to eat before or after you take Cipro.
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    My best friend has CF -

    If he's in his 20's and only in the hospital once then he must have a pretty good handle on things. As a friend I would say just encourage him to stay active and keep doing what he's doing.
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    Very Low Fat Diet & CF

    I was raised w/out enzymes on a very low fat diet. I grew up that way and while it wasn't always fun, digestionwise, I lived a very active almost normal life. I didn't start taking enzymes until my late 20's. I am 5'11" and weigh 130 so maybe I'm not a poster child for that diet but there wasn't...
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    i'm gonna suffer in years too come!!

    There is a big difference between rebelling against authority and trying to get to know your own body. Especially w/ CF each case is so different that if you don't take charge of your own life and do some research on your own you won't last long. But the typical acting out that most all of us...
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    How long do you have to eat after taking pills? Do you have to eat within 5 mins?

    I know that it isn't what you are supposed to do, and if I had thought about it back when I started taking them I would have done it diferent, but I have always taken them after I eat. It seems like if I take them within about half an hour they work just fine. I'm certainly not telling anyone...
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