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I was in the same position as your husband. Until I was about 30 I was determined that I wasn't going to die from CF (my motto was live fast and die young). I didn't die but I didn't do myself any good either. He is going to have to decide whether he wants to stay alive or not. If he really...

Pseudomonas is one of the most common bacteria. It is virtually everywhere. The problem is when the thick mucus in your lungs traps it, you can very easily get a lung infection and once you get pseudomonas it is very hard to get rid of.

When I started taking L-Glutathion orally it made a big difference in all body fluids. Don't know the right way to put it in mixed company but semen output went from almost nothing to almost normal. I don't know about sperm motility but there were sure a lot more of them getting a chance to do...

If you've ever had a lung infection, bronchitis etc., that is what it looks like. If it is clear then it isn't really coming out of the lungs. If there isn't any mucus and breathing is OK then you should be thanking whatever Diety you believe in. Keep your child as active as you possibly can...

when you quit getting regular VIGOROUS exercise you will probably start to go downhill although it may take a while for you to realize it. You are still so young that it is a shame to have you worry about going down hill. Just live life to the fullest that you possibly can and you will be far...

I don't know the answer to this question but I would try to find out if there is some other Pancreatic disorder that might account for her inability to digest fat.

You aren't breathing the air from the Vest. Clean it the best you can and use it. If it works great. If it doesn't Hill Rom will replace it very quickly. At least you should try to use it.

I make my own. 88 cents for a gallon of water. Mortons sea salt and a little baking soda. If you really think that what goes into your lungs has to be sterile then you better buy a big plastic bubble and a heppa filter air cleaner to fill it.

It is NOT TRUE that a simple calories in calories out equation is the answer. Think about it. If your body doesn't absorb those calories it doesn't matter if you eat 5000 calories a day. I am supprised that a person w/ CF would say that. What does figure into that equation and makes it a much...

several times there have been Vests for free on the list but I don't know if they would work in England. It would be worth finding out if one could be changed over. I can tell you from personal experience that a Vest will literally change your life. If I didn't have mine I would not be able to...

The only time I get stomach aches is if I don't take anywhere close to enough enzymes. If you are having that much trouble w/ digestion you should really insist that something be changed. More enzymes or different ones. If we're talkingh about the same thing the stomach aches are probably...

I don't know you or your boyfriend but CF doesn't make you any better or worse of a person. Most people with CF have grown up w/ the idea that they will never live to be very old. I have been married for over 25 years and have told my wife that if she wants out I won't hold it against her. So...

Do you use Pulmozyme? I know it causes me to lose my voice. If I quit using it for a while I get a lot better.

Glutathione is what thins the mucus and what we don't make naturally. I have been taking 1000 mg/day and have seen some improvement. There are also things you can take that are supposed to improve the natural production of glutathione but I haven't tried any of them.

If she is going overseas I don't think her vest will do her any good. Their power is not the same over there. I may be wrong but I would check before she drags it over there for no reason.

I take 2 ibuprofen every morning. Drs have said that that won't make a difference but my biggest problem is w/ inflamation in my lungs. The main purpose of ibuprofen is to act as an anti-inflamatory. I have taken other anti-inflamatories in the hospital and they tore my stomach up so bad that I...

Yellow to green. They deeper it comes up from the darker it will be. I have had pseudo since before it had its own name( used to be just a kind of staph). When I have a flare-up it will get a lot more and also darker. Back in '03 I got something, I think it was SARS but couldn't convince anyone...

It is actually likely to be easier for you because you don't have a layer of fat that you have to get rid of. All you have to do is put in the time working out and eating high protien diet. 30 years ago I gained 30 lbs of muscle by eating 25 grams of protien 6 times a day and working out 5 days...

I was diagnosed w/ CF in 1963. At that time there were no really good enzymes to take so I was raised on a very low fat diet. Not vegan because I drank a lot of non-fat milk but I ate almost no meat at all until I was 14. I was always thin, but grew up fine, at least as far as diet went.

Back in the good old days, before they had time release enzymes and we had to try to eat low fat diet and put up w/ the consequences of our mistakes I got a bowel obstruction once. Believe me once is more than enough. If you get a complete blockage ANYTHING that goes down will come back up very...