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The first time I was hospitalized w/ pneumonia in 1963 I was given a shot of pennicilin every 4 hours, I think, because that was all there was. When I got out the Dr. told my parents to keep me as active as possible and to think of antibiotics as a last resort because any bacteria not...

Last time I went to see the Dr. she told me that I would never be able to run again. While that might have been a tiny bit dissapointing to some people it was pretty good motivation for me. I have spent my life, for better or worse, doing things that people told me I couldn't do. I have been...

Last time I went to see the Dr. she told me that I would never be able to run again. While that might have been a tiny bit dissapointing to some people it was pretty good motivation for me. I have spent my life, for better or worse, doing things that people told me I couldn't do. I have been...

My wife would like to be part of that group too. She has been putting up w/ me for 27 years and I'm sure she could use a place to vent. Please PM me your fb name and I will pass it on to her. Thanks.

My wife would like to be part of that group too. She has been putting up w/ me for 27 years and I'm sure she could use a place to vent. Please PM me your fb name and I will pass it on to her. Thanks.

23% right now but I am determined to get it up one way or another. My O2 is about 95 when I'm resting. I don't use any O2 but Dr. has tried to get me to.

23% right now but I am determined to get it up one way or another. My O2 is about 95 when I'm resting. I don't use any O2 but Dr. has tried to get me to.

Ditto. I often tell my wife that I feel like such a hipocrit because if I hear or see anybody coughing I will try to stay away form them as much as possible.

Ditto. I often tell my wife that I feel like such a hipocrit because if I hear or see anybody coughing I will try to stay away form them as much as possible.

I have been wondering about this for a while but never had access to a group of CF'rs before. My lungs, while they don't work very well any more, are a good 2 to 3 inches longer than they normaly would be. I finally got worried about having to have all my X-Rays done twice so now I tell them...

I have been wondering about this for a while but never had access to a group of CF'rs before. My lungs, while they don't work very well any more, are a good 2 to 3 inches longer than they normaly would be. I finally got worried about having to have all my X-Rays done twice so now I tell them...

I was in the same position as you are about 4 1/2 years ago. I had no insurance and my lung function was getting worse in a hurry. It came down to either getting a Vest or go on disability so I got one from Hill Rom. Dealing w/ the billing dept. at Hill Rom has been a real pain( they lose...

I was in the same position as you are about 4 1/2 years ago. I had no insurance and my lung function was getting worse in a hurry. It came down to either getting a Vest or go on disability so I got one from Hill Rom. Dealing w/ the billing dept. at Hill Rom has been a real pain( they lose...

Aspergillis has done more damage to my lungs in the last 10 years than Pseudomonas has done in the last 50 years. I wish I knew what the answer was but I do know that it is next to impossible to get Drs. to treat it.

Aspergillis has done more damage to my lungs in the last 10 years than Pseudomonas has done in the last 50 years. I wish I knew what the answer was but I do know that it is next to impossible to get Drs. to treat it.

Iron is what holds the Oxygen in your blood. If you have any breathing problems then you need to have ALL the iron in your blood that you can get. When you get to low 20's on your FEV's, and I hope you don't, you can feel the difference in a few days when you start getting extra iron.

Iron is what holds the Oxygen in your blood. If you have any breathing problems then you need to have ALL the iron in your blood that you can get. When you get to low 20's on your FEV's, and I hope you don't, you can feel the difference in a few days when you start getting extra iron.

Don't ever let other people decide what you can't do. I'm 56 have a lung function in the low 20's and am a full time over the road truck driver. If you want to travel around the country in an RV then do it and have fun doing it. People have been trying to tell me what I can't do for the last 50...

Don't ever let other people decide what you can't do. I'm 56 have a lung function in the low 20's and am a full time over the road truck driver. If you want to travel around the country in an RV then do it and have fun doing it. People have been trying to tell me what I can't do for the last 50...

If working w/ the teacher w/ CF is going to keep her doing gymnastics then as long as both of them are aware of the need to take care of each other it seems like a good thing. It would be worse to have her quit doing gymnastics than to have her around the teacher IF both of them are healthy...