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  1. I

    Vitamin D = IBS symptoms?

    I tried taking larges doses of vitamin D, didnt make any difference in my levels. THen I started consciously trying to sit out in the sun for 20+ minutes a day. My D levels normalized , as well as my calcium levels, and my infection rate plummeted. If the D is messing up your GI tract, you...
  2. I

    Newly diagnosed 20 yr old

    hmm, azithromax made me feel tired and icky too. Also made my reflux much worse. So I stopped. Know thyself.
  3. I

    Newly diagnosed 20 yr old

    hmm, azithromax made me feel tired and icky too. Also made my reflux much worse. So I stopped. Know thyself.
  4. I

    HTS ineffective

    The two most motivating emotions- fear and hope. A new med for CF preys upon both : 0
  5. I

    HTS ineffective

    The two most motivating emotions- fear and hope. A new med for CF preys upon both : 0
  6. I

    Becoming pregnant w medical help :)

    Vampy, if you have one kiddo, you certainly know what you're getting yourself in to! My only concern is with your CF, your sons symptoms, you could be adding another CF germ carrier to your immediate pool. Are you thinking about screening embryos for CF?
  7. I

    Coughing

    I was also told no cough meds, primarily because it might keep me from coughing stuff up. UMM, ok, if I am coughing super hard every minute and breaking ribs, that is not good. The cough meds damp the coughing down to once every 5 minutes. I have a super-reactive cough reflex. Yes, you...
  8. I

    Coughing

    I was also told no cough meds, primarily because it might keep me from coughing stuff up. UMM, ok, if I am coughing super hard every minute and breaking ribs, that is not good. The cough meds damp the coughing down to once every 5 minutes. I have a super-reactive cough reflex. Yes, you...
  9. I

    Coughing

    I like an extra nebbie, tussin CF, a cold coke, cold slightly humidified air, toss back a few ibuprofin, maybe some prednisone, and if things get really sucky, a hydrocodone. I know what your talking about. Constantly broke ribs several times a year for a decade due to uncontrolled coughing...
  10. I

    Coughing

    I like an extra nebbie, tussin CF, a cold coke, cold slightly humidified air, toss back a few ibuprofin, maybe some prednisone, and if things get really sucky, a hydrocodone. I know what your talking about. Constantly broke ribs several times a year for a decade due to uncontrolled coughing...
  11. I

    HTS ineffective

    Hmm, thats really interesting. I know the HTS mixed with albuterol has been very helpful personally, whereas every other single CF med that's come out in the past two decades (tobi, pulmozyme, etc) has been ineffective or made me worse. I am pretty darn skeptical about stuff until I try it...
  12. I

    HTS ineffective

    Hmm, thats really interesting. I know the HTS mixed with albuterol has been very helpful personally, whereas every other single CF med that's come out in the past two decades (tobi, pulmozyme, etc) has been ineffective or made me worse. I am pretty darn skeptical about stuff until I try it...
  13. I

    Coughing judgment at the gym (or any public space)

    People can be incredibly cruel, but they can also be kind, understanding, and helpful. Dont let a few jerks change how you live your life. Keep in mind that sometimes peoples' lack of understanding and compassion is purely a fear response and sense of self-preservation. Doesnt make it any...
  14. I

    Coughing judgment at the gym (or any public space)

    People can be incredibly cruel, but they can also be kind, understanding, and helpful. Dont let a few jerks change how you live your life. Keep in mind that sometimes peoples' lack of understanding and compassion is purely a fear response and sense of self-preservation. Doesnt make it any...
  15. I

    Anesthesia issues?

    Very interesting study. Enhanced specific drug metabolism in CF is NOT well known among the general CF population. Thanks so much for posting this Havoc!
  16. I

    Anesthesia issues?

    Very interesting study. Enhanced specific drug metabolism in CF is NOT well known among the general CF population. Thanks so much for posting this Havoc!
  17. I

    Airline travel

    I have never had any problems taking medications and a (both handheld and plug in) nebulizer on a plane. To be safe, have them in the origional packaging with the script info. I'd never pack meds in checked luggage, far too scary. We have traveled quite a bit, not an issue. But do be...
  18. I

    Airline travel

    I have never had any problems taking medications and a (both handheld and plug in) nebulizer on a plane. To be safe, have them in the origional packaging with the script info. I'd never pack meds in checked luggage, far too scary. We have traveled quite a bit, not an issue. But do be...
  19. I

    Anesthesia issues?

    Hmm, I get over the effects of ambien very quickly too, but a small amount of alcohol makes me loopy AND always sets of an attack of gout.
  20. I

    Anesthesia issues?

    Hmm, I get over the effects of ambien very quickly too, but a small amount of alcohol makes me loopy AND always sets of an attack of gout.
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