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  1. M

    Looking for chart showing bacteria/average age of detection.

    You're welcome, Tonya. (Nice work shuffling threads, btw.) This article doesn't discuss age, but it says Aspergillus is a risk factor for development of M. Abscessus. "In conclusion, severe nontuberculous mycobacterial lung disease, particularly with Mycobacterium abscessus, is becoming a...
  2. M

    Crackling When Exhaling

    LOL that your son is entertained too. Good luck getting better!
  3. M

    Crackling When Exhaling

    Good luck with the Bactrim. I didn't reply when you first posted, but I just want to say I've had this, and pretty darn loud --to the point my six-year-old found me reading to him to be a gurgley, crackly laughable mess most of this winter. It eventually went away. I can't tell if it was the...
  4. M

    Who cooks?

    I thought I would resurrect this happy thread with some pictures of my homegrown, homemade nice-n-salty pickled cukes and jalapenos.  I got a new recipe for pickles out of the New York Times Magazine from this past Sunday.  (Usually, I wing it with vinegar, salt, sugar and herbs.)  I doubled the...
  5. M

    Looking for chart showing bacteria/average age of detection.

    I googled "cf bacteria age of colonization" There is a chart here: http://mic.sgmjournals.org/content/153/4/917.full And an interesting article with other charts. http://www.the-aps.org/mm/Publications/Journals/PIM/starner-pdf.pdf
  6. M

    negative genetic testing, two postive sweat tests

    You might consider PM'ing a woman on this site: Jennifershope She has been dx and un-dx and re-dx with CF. Her sweats were positive but then attributed to thyroid issues. Of her two gene mutations; one was called disease-causing, then called benign, then disease-causing again. She had the...
  7. M

    Neuropsychiatric events with Singulair

    I think you're right to look into it, and when you note that often meds affect developing brains differently (accutane is the one that immediately comes to mind).
  8. M

    Neuropsychiatric events with Singulair

    I had issues with lucid dreaming from my early teens untill about 22 yrs, toward the latter half of that time, terrifying dreams and sleep paralysis-- where you wake up but cant move and in my case feel terror/negativity. I was on no meds then. and yet, I've been on singulair now for yrs w no...
  9. M

    Two Carrier Parents

    Most of the posts in this section deal with CFers who are pregnant or trying to get pregnant. Some parents might see your post here, but you could re-post your question in the "Families" section. Best wishes on your pregnancy and great job finding this site to get information.
  10. M

    Really scared...

    Unless your husband travels extensively or works 18-hr days, he should do the treatments himself. Heck even with a horrid schedule, he could do the treatments when he is around. Ask the social worker for info on a support group.
  11. M

    Really scared...

    Something dawned on me a few years ago with regard to parenting: This. Is. It. You don't get a second chance to raise your kid. There is no "do-over." The childhood they get is the one you and fate give them. You can't control fate, but you can do your best on your end of things. Of course my...
  12. M

    Pneumonia

    ...adding in emphasis on getting sputum cultures done, especially AFB (the one that takes 5 weeks to complete).
  13. M

    Pneumonia

    Susan, Was it the same bacteria all three times? Did you feel it was treated aggressively enough? Were you back to baseline in between the pneumonias? I'm sorry you've had a rough six months. Personally, I've had some years be better than others. This year, I spent Oct to mid-May either...
  14. M

    Who cooks?

    Amber, That looks so good! I am a huge fan of nachos of all sorts and that recipe is right up my alley. (My standard late-night snack is to spread chips on a plate, cover with chunks of cheddar cheese and slices of pickled jalapeno, then pop in microwave until cheese is melted.)Here is tonight's...
  15. M

    Acid food and cold water

    Has he been evaluated for aspirating his food? They would give him barium food of various consistencies and see if it goes into his lungs. I would imagine acidic food might be more irritating to the airways right off the bat. FWIW, when I eat citrus fruits, I cough up noticeably more mucus...
  16. M

    Xolair vs. other Steriods

    Xolair is not a steroid so you should be fine on the weight/face front. Xolair lowers the IgE response. Here is the wiki on it. http://en.wikipedia.org/wiki/Omalizumab In contrast, steroids are "anti-inflammatory by preventing phospholipid release, decreasing eosinophil action and a number...
  17. M

    Who cooks?

    Jonathan, Your Chicken Vindaloo looks great. Do you use chicken breasts rather than thighs for a particular reason? My husband likes dark meat--says it's more moist and flavorful--so I buy the boneless/skinless thighs. I was also under the impression dark meat has more fat, more protein too...
  18. M

    Who cooks?

    Frank, i meant to say also, your food looks great!! and 4am, wow.
  19. M

    Who cooks?

    This is my lunch today. (I won't eat the whole chocolate bar, and what I do eat will probably be around 2 pm. Okay, I lied, I just ate some while resizing my pic.) Check out the almost identical plate design and counter with Incomudrux's. Spoooooky. Lentils: boil a bag of pink lentils in water...
  20. M

    What allergy medicenes do you take that helps?

    Jeana, I remember (hopefully correctly) Nightwriter's doctor nixing allergy shots because she felt the immune reaction, even so small and carefully calculated, could be of concern to CFers. Hopefully more people will weigh in. (I do allergy shots and have no problem; the backs of my arms are...
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