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On the lower FEF25-75 days, my FEV1 was both up and down by several percentage points, like as much as up 3 and down 10 points. The PEFR (peak expiratory flow rate) also varied a lot, both up and down.

Some of you out there are doing PFTs at home and are able to get numbers for FEF25-75. Yesterday, when demo'ing out a portable spirometer at the cysticfibrosis.com home office, I got FEF25-75 numbers that were more than 20 percentage points better than what I get at home on the same machine or...

Thank you for hosting me, Jeanne. It was great to see you, Ennio and Peter. I'm excited about home spirometry, and I even noticed something interesting about my numbers yesterday. I'll be asking for input in the forums later today.

Why jump to shutting down and walking away from an activity when it still hasn't been determined with data and the advice of medical professionals whether this shortness of breath is dangerous. Nor have possible solutions such as an albuterol neb and oxygen been tested. Sprinting sports make...

I hope you can resolve this for your daughter. I bet she gets so much joy and health out of participating in this sport. Beware of getting messed up readings on oximeters if your daughter is bouncing and flying around. I'm not sure if the one recommended above is able to handle a lot of...

PharmaNAC (n acetylcistene for glutathione production boost, lung repair) Vit D / Calcium (I'm chronically just below normal on D which helps immune system i think, i use inhaled steroids and occasionally oral which depletes bone mass) I don't have a third :) hopefully you get more responses...

In the pregnancy forum (edited because i just realized i'm in the pregnancy forum lol), you'll find a few posts dealing with the topic of having another child--the physical ramifications and the stresses it can put on your body, family and lifestyle. Also, the hows of handling treatments and...

Calebf, Ditto Tammy's thanks for sharing your spreadsheet methodology. I'm going to try to do something like that as well ...now that i have electricity again!

What a great point. I want home spirometry to look at trends in my numbers, and what you're saying makes a lot of sense. That it is not just day-to-day ups and downs that are interesting. Over a longer period of time--one that may include ups and downs--you might see a larger trend that could...

The language used in the news show is confusing (not the CF dr's language, but the medical and legal experts on the show). I figured they were not using the term "carrier" correctly i.e. having one gene mutation. Otherwise, what? 1 in 25 kids would need to be transferred out of the school. I...

((Hugs)) I read your MAC cavity thread, didn't have anything useful to add, but meant to offer my sympathies there, so i am offering them now. Some way to cut corners are cooking big and then morphing the leftovers into meals from day to day. a dozen soft boiled eggs: breakfast with toast...

Here is one way to look at it: My sweat test is 9 or 11 (I can't remember). No CF. Yet, my whole life my BMI has been close to underweight despite heavy eating (complete with the accusations of bulimia from high school counselors). I have had serious environmental allergies since I was a...

Being around smokers is bad news and a likely cause of his hemoptysis. He may have to figure this out on his own though. Independence is glorious but if it lands him in the hospital, it won't feel like independence anymore. I'm sorry your hands are tied and that he has this to deal with when...

Humans no doubt have a cruel selfish "Lord of the Flies" side, but we also have a heroic community-oriented side. Why assume someone stepping on your lawn is out to get you? Why escalate the interaction to guns? Maybe it's my husband coming by to give you some of his homebrew. Having been in...

I think this is another way of saying "asthma that is probably temporary." I know of more than a few kids and adults without CF who are prescribed pulmicort or flovent (and albuterol) after infections because they have inflammation/asthma for several weeks post-infection. The idea being to...

Buenos Aires is beautiful and very fun. My aunts, who lived and died of old age there, seemed to have great health care, though some neighborhoods have better hospitals than others, just like in US cities. More buses and cars use diesel, and more bathroom cleaners seem to be heavily scented...

What media are you watching/reading? My sources (The NY Times, NPR and Bloomberg News Radio) would maaaaybe have me thinking to stockpile some corn syrup and soybeans (drought), but that's about it...and I'm mostly kidding since I won't be making my own breakfast cereal. :-) To answer your...

Deb, That is awesome to hear. Congrats on such great improvement in your endurance / cardiovascular health and lung function. And props for doing it after having a lung removed. I know that would have made me spooked about pushing myself at least at first.

Vascularity among body builders is partly because of low body fat AND partly because of anabolic steroid use, which thins skin. It's really not something to aim for. Focusing on the outside aspects/benefits of exercise can be disheartening (and I think why people give up on workout routines)...

Well, aren't we a pair of scientists! :-) Great idea to get your husband and son to try it. I do wonder why they didn't have the same amount of artifact as you...and I love that your husband's O2 actually went UP with exercise (obviously there is a margin of error), but still! Maybe that...