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  1. M

    Exercise & Sats

    edited to add: I am so happy your tests came out well! 1) My opinion is that #1 is the issue: the oxymeter is inaccurate for jogging, which is too bouncy. 2) I agree that jogging is more intense than the bike, but this is usually represented in your heartrate as well. Here's what I mean...
  2. M

    Exercise & Sats

    I hope your heart/lung stress tests and echo come out well. Let us know how you're doing.
  3. M

    Exercise & Sats

    I did a bunch of searches, trying to see what level of oxygen saturation is okay when doing intense workouts. I like for some of my workout to be at my personal HR max 165+ (not "fat burning" nor "aerobic" but anaerobic). I have no idea what my sats are at these points (during certain songs of...
  4. M

    just curious how other people go about excercise

    monds1234, One thing you can do is make sure to stretch before exercising, and if you can, make part of that stretching be postural drainage: lying on your back, sides etc. and hacking up the loose stuff. This doesn't mean I don't still cough while exercising, but at least it's the more...
  5. M

    coughing and update

    I hope the tune-up goes well. Was your son's CT scan done while he was sick? I have one scan that shows bronchiectasis all over my lungs, but it was about a week after finishing a course of antibiotics for being pretty sick. The "permanent" damage actually resolved in some of the areas of...
  6. M

    Infection fighting benefits of exercise

    http://ntmnews.com/index.php/natural-compounds-and-therapies/exercise This is an inspiring article. It explains some ways in which exercise helps fight infection. Explains why my past yrs of heavy exercise have meant fewer exacerbations for me even through my FEV1 keeps dropping. (hey, you...
  7. M

    What is a good yoga workout?

    I have had this pilates dvd for ages. It is very core focused in my opinion, and challenging and easy to follow, too. I don't do it as often as I should because I prefer other activities, but I like the production quality of this, the price $8.99, and the intensity. My husband, who's at a...
  8. M

    Idea on fun ways to get little ones "running?"

    I'm the one with the lung problems not my kids, but one thing we started doing together--inspired by watching American Ninja Warrior--is going to the playground and inventing obstacle courses. Then we use my phone, a stopwatch app, to time ourselves doing the course (one at a time so as not to...
  9. M

    Side effects from Cipro

    Does anyone know when inhaled Cipro is going to be available? I know its in the works and i hope it avoids the joint issues.
  10. M

    I am 23.. And surviving (My small story)

    Welcome and thanks for sharing your story. You and your parents have been through a lot. I'm so glad you can get the community and sharing here that you can't have in your home culture.
  11. M

    Swimming

    Hi, I'm resurrecting this thread rather than starting a new one...to complain of how cruddy my lungs felt when I tried to swim laps today. This is not something I ever do, so I knew it would be hard. But every time I stopped (which was A LOT in the 25 minutes I swam) it was like someone was...
  12. M

    Follow up with Dr Harry

    Congrats on the PFT and weight increases! (I love zumba too :-)
  13. M

    Beating CF - I Am A Spartan

    Congratulations!! 27th in your age group - WOW! Great piece of writing too. I hope it gets published on the Spartan site. I ran the Warrior Dash recently (and I believe I came in 3000-something-th lol). It was a 5k and no electric shock -- I'm spooked about that. Do the spartan races have that?
  14. M

    Asthma or pneumonia???

    Sounds like an infection to me, but sometimes a virus or even a bacterial flare gets worked out on its own with the immune system and tons of mucus clearance. Asthma can cause the SOB and a plug can cause the pain in the lobe/chest, but achy body says infection to me. I hope the feeling...
  15. M

    Just Joined! How are you guys and girls on running??

    Mills, I think a 10:30 miles is awesome, and Sabrina, wow on the 1/2 marathon and 7:30 mile (that's about my high school time--when I barely had asthma). I ran the 400m and hurdles in track in h.s. I do cardio dance these days and rock climbing, and occasionally sign up for a 5k race for...
  16. M

    coughing etiquette

    Sara, ...and the baby bat/humans locate the mama using "cough-location" whereby hacking noises transmit information about proximity.
  17. M

    Ovulation causing breathing probelms that time of month?

    http://www.emaxhealth.com/11306/estrogen-aggravates-cystic-fibrosis-reports-new-study (This May, a study in Ireland showed higher levels of estrogen, produced in the follicular phase (pre-ovulation), encourage the conversion/growth of mucoid PA in women and may be responsible for the worse...
  18. M

    coughing etiquette

    Mamerth, My youngest son said a few months ago that he knows how to find me in the house by following the sound of coughing. Like your neighbors knowing you're in the yard.
  19. M

    Looking for chart showing bacteria/average age of detection.

    Jbrandyn, Thanks for sharing. I do get lower-left-achy lobe when the air is damp. Aboveallislove, You're welcome.
  20. M

    Symbicort vs advair

    The meds are similar enough that your heartrate issues may appear on symbicort like they did with advair. I would expect similar PFT response from either as well. This was years ago now, but I did not like the powdered form of advair and was very happy with my switch to symbicort. Nowadays...
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