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    cf centers in washington

    does anyone go to the cf center at deaconess in spokane? i am consider a move there, and want to know if it's a good center. specifically i'm curious about info on individual doctors, what the hospital rooms are like (is there internet possibilities if i bring my laptop?), are you stuck in...
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    at the end of my rope

    I've been battleing depression for five or six years now. I take prozac. I've yet to find a therapist who works for me (although I give up easily so I haven't tried that hard to find a good one). <br><br> I am on all the typical CF meds that take time and effort. I go in for IV's once or twice a...
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    Replacing nebs every six months

    I just decided after years of having the same nebulizers i should replace them since they all say to do so every six months. why is that?
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    A Good Read

    Hey Everyone, I wanted to let you know about a book I've just read. It was written by 'my priest' (I am not religious, let alone catholic). This man has been a huge influence on my life, and the lives of hundreds of children with CF and other unfortunate circumstances. I met him when I was a...
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    myspace

    hey all, just made a new myspace page. www.myspace.com/bahati622 would love some cystic friends <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    in

    hey all, haven't been on the site in a while since my home computer doesn't let me log in (!). But i'm back in for a week or so i'll have access again. my health is going down, but so is my compliance. i'm still planning to return to africa, adopt my boys, the whole 9 yards. im hoping this...
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    my roommate, Ella

    I'm in the hospital right now for a routine clean out, but I am concerned about my roommate. my docs put me in isolation whenever they can, but in the winter the floor is usually so full that i have a roomie. anyway, this trip my roomie is a baby, who i think is a month or so old. she is the...
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    colistin

    I have been on tobi (28 days on/28 days off) since i was 10 (19 now), and my germs have grown resistant to it. my docs are switching me to colistin. my doctor said they dont usually perscribe this med. any one know why they wouldn't perscribe it? just wondering... also, i haven't had any...
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    night time oxygen

    hey all, I am thinking about asking my doc about getting some oxygen at night, but i am a little nervous. my pfts are good, and my o2 stats are usually in the mid-high 90s when i'm sitting, or standing, but drop to the 89-91 range when i am laying down or sleeping (this is based off of my...
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