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  1. Z

    6 months to live...

    I know i havent been on in a while so there are alot of people who are new and dont know me or my daughter zoey. Zoey is 11 months old and has cf. She is tpn dependent and has a mickey button. I took her to the doctor the other day and they said if they cant get her off the tpn that in six...
  2. Z

    oops

    sry
  3. Z

    hit the button too many times

    sry
  4. Z

    6 months to live...

  5. Z

    here is some pics of zoey

    <img src="http://i99.photobucket.com/albums/l285/mome2zoey/zoey.jpg">
  6. Z

    havent been on in a while....

    I think the last time i was on was to inform everyone of my miscarriage.Well here i am 2 months later and my husband has left me. Zoey has a g-tube and a femur line that she receives tpn and lipids through. It is really stressful trying to get everything hooked up in the evenings. She also...
  7. Z

    miscarriage :(

    Hey everybody! Well as the topic says Ive had a miscarriage. I was 11 1/2 weeks along. The doctor said that it looked like the baby never formed. I have never been through this before so if anyone has any advice please tell me. I am really brokenhearted as is my husband. I have been bleeding but...
  8. Z

    Nissen Surgery

    Hey guys!! Zoey is back in the hospital getting ready to have a g tube put in. Because she has so much scar tissue they arent going to be able to do it laparoscopically. <img src="i/expressions/face-icon-small-sad.gif" border="0"> They were also talking about the nissen surgery because she...
  9. Z

    possible pneumonia

    Hey! Zoey has had a horrible cough since thursday. She was put on a medicine that I talked about in a previous thread call ceron dm. I quit giving it to her after talking to a pharmacist. I called her cf clinic today and they set up an appointment for tomorrow. She gets to coughing so heard and...
  10. Z

    Favorite meal of the day

    What is your favorite meal of the day? Breakfast,Lunch,or Dinner? What is your favorite thing to eat at that meal?
  11. Z

    What is wrong with my pediatrician?!

    ok Zoey was in the hospital from saturday to thursday. Running a high fever. They did blood work and a bunch of different things and couldnt ever figure out where the fever was coming from. Finally said it was a stomach bug. They put her on 3 antibiotics while they were waiting on test results...
  12. Z

    For the mothers out there....

    Zoey has a really bad diaper rash. Its like blisters on her rear. I've tried sensacare,stoma powder,nystatin ointment and powder,and it still wont go away. They bleed too so she literally screams and throws a fit when I change her diaper. Anyone else have or had a problem like this? Please tell...
  13. Z

    Has anyone heard.....

    has anyone heard the song Alyssa Lies? Its a sad song about a girl who is abused. It made me cry just thinking about all the kids out there like her. I tried to find a way to put it on here but couldn't. If you have time try to find it and listen to it.here are the lyrics: my little girl...
  14. Z

    wanna laugh?

    just watch this <a target=_blank class=ftalternatingbarlinklarge href="http://www.killsometime.com/Video/video.asp?ID=773">http://www.killsometime.com/Video/video.asp?ID=773</a>
  15. Z

    HELP HELP HELP

    hey. Zoey just starting throwing up alot and ended up yanking her ng tube out of her nose. On the end that goes in her stomach it is a dark brown. Is this normal? I never seen it looking like this before. We think its her formula that is making her throw up all the time,but her doctor wont...
  16. Z

    robitussin

    thought some of you might want to see this.... "Dear Cathy and Jim, My Wife and her friend pulled your article, "A Primer on Natural Family Planning ," down from the internet. It is a well-written document that gives a compelling case for Natural Family Planning. However, on page 7 you...
  17. Z

    Viokase

    anyone else use this? we are about to start using to put down zoeys ng tube cuz she wont take her enzymes by mouth anymore
  18. Z

    pari trek

    hey guys we have one of the pari trek portable nebulizers and it is reallllllllly slow for doing tobi. on top of having a 6 month old who is really impatient....any suggestions on how to ask for a faster one from medicaid?
  19. Z

    baby names

    hey I need some boy baby name ideas. his middle name will be Raymond so any ideas will be appreciated thanks Sarah 20 cf carrier mom to zoey (almost6 months) with cf expecting another baby in august
  20. Z

    G tubes

    Hey! Well zoey has almost completely lost her sucking reflexes. she will only nipple 15 cc at the most out of her bottle. They have a ng tube in right now but it is really irritating her stomach causing her to throw up blood and poop blood. She wont take her enzymes by mouth either and i cant...
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