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hi guys, i'm back! so i have SVT associated with pulmonary issues from my CF. i developed it several years pre-tx and it has stuck around even post. i take beta blockers for it, but have been told several times that it's not particularly dangerous. i did have a close friend with CF who died...

hi guys, i'm back! so i have SVT associated with pulmonary issues from my CF. i developed it several years pre-tx and it has stuck around even post. i take beta blockers for it, but have been told several times that it's not particularly dangerous. i did have a close friend with CF who died...

hi guys, i'm back! so i have SVT associated with pulmonary issues from my CF. i developed it several years pre-tx and it has stuck around even post. i take beta blockers for it, but have been told several times that it's not particularly dangerous. i did have a close friend with CF who died...

jen -- i went to col pres. have had a very positive experience (great docs, amazing surgeons, very thorough center). my one complaint about them is that they are large, and that is great b/c it means they get a lot of lungs and do a lot of txs, but bad in the sense that you can get lost in the...

jen -- i went to col pres. have had a very positive experience (great docs, amazing surgeons, very thorough center). my one complaint about them is that they are large, and that is great b/c it means they get a lot of lungs and do a lot of txs, but bad in the sense that you can get lost in the...

jen -- i went to col pres. have had a very positive experience (great docs, amazing surgeons, very thorough center). my one complaint about them is that they are large, and that is great b/c it means they get a lot of lungs and do a lot of txs, but bad in the sense that you can get lost in the...

first of all, julie i'm really glad you're going with the t-shirt idea. i think you'll do well with that, support the walk, AND get your message out. good luck with it and in your upcoming meeting with UW! as to the other points: the CEO makes about .40 on every $100 earned by the CFF. the...

first of all, julie i'm really glad you're going with the t-shirt idea. i think you'll do well with that, support the walk, AND get your message out. good luck with it and in your upcoming meeting with UW! as to the other points: the CEO makes about .40 on every $100 earned by the CFF. the...

first of all, julie i'm really glad you're going with the t-shirt idea. i think you'll do well with that, support the walk, AND get your message out. good luck with it and in your upcoming meeting with UW! <br /> <br />as to the other points: <br /> <br />the CEO makes about .40 on every $100...

many if not most centers will remove you from the list for ANY tobacco use -- including snuff or other forms of ingestion. same is true for almost any other addictive drug or substance. three words: not worth it.

many if not most centers will remove you from the list for ANY tobacco use -- including snuff or other forms of ingestion. same is true for almost any other addictive drug or substance. three words: not worth it.

many if not most centers will remove you from the list for ANY tobacco use -- including snuff or other forms of ingestion. same is true for almost any other addictive drug or substance. three words: not worth it.

Hey beautiful fellow transplantees/waiters: So in apologize in advance for the bragging, but last weekend at the CFF's annual Volunteer Leadership Conference I was beyond honored to receive the Alex Award - named after Alex DeFord and presented by her father. This is the Foundation's highest...

Hey beautiful fellow transplantees/waiters: So in apologize in advance for the bragging, but last weekend at the CFF's annual Volunteer Leadership Conference I was beyond honored to receive the Alex Award - named after Alex DeFord and presented by her father. This is the Foundation's highest...

Hey beautiful fellow transplantees/waiters: <br /> <br />So in apologize in advance for the bragging, but last weekend at the CFF's annual Volunteer Leadership Conference I was beyond honored to receive the Alex Award - named after Alex DeFord and presented by her father. This is the...

dude, come hang with me in the village and i'll take you to gyrotonic. or better yet, send your lovely wife and you and sonett can go, i dunno, run laps or something while we work out <img src="i/expressions/face-icon-small-wink.gif" border="0"> i'm super impressed with you guys (all of you)...

dude, come hang with me in the village and i'll take you to gyrotonic. or better yet, send your lovely wife and you and sonett can go, i dunno, run laps or something while we work out <img src="i/expressions/face-icon-small-wink.gif" border="0"> i'm super impressed with you guys (all of you)...

dude, come hang with me in the village and i'll take you to gyrotonic. or better yet, send your lovely wife and you and sonett can go, i dunno, run laps or something while we work out <img src="i/expressions/face-icon-small-wink.gif" border="0"> <br /> <br />i'm super impressed with you guys...

i'm not a med skipper (post-tx that's a SUPER bad idea, lol) and i was never much of a treatment skipper pre-tx, but i AM a huge proponent of the occasional "break for life." if i want to go out and i know that it will cost me some energy, i'm still likely to do it. if it's a little crowded on...

i'm not a med skipper (post-tx that's a SUPER bad idea, lol) and i was never much of a treatment skipper pre-tx, but i AM a huge proponent of the occasional "break for life." if i want to go out and i know that it will cost me some energy, i'm still likely to do it. if it's a little crowded on...