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    Anxiety on Orkambi?

    Hello all- I was wondering if anyone else on an anti-depressant or anxiety medication is experiencing anxiety or mood cycling on Orkambi? I am prescribed 10mg of escilatopram (Lexapro) for generalized anxiety, and have not had issues for years. However, I noticed within the first week that I...
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    Moving to Oregon...need doctor recommendations.

    Is there anybody in the Portland area that uses the adult CF clinic there? I'm moving to Corvallis shortly and would like to get a couple doctor recommendations if I could.
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    Alcohol Consumption and CF

    I'm a fifth year college student (I graduated last year and am getting ready for masters school). I just finished for the semester, and I'm going into summer vacation. I promised myself a fun summer, and in a small college town that means going out on the weekends. I was just wondering how bad...
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    Stomach Pain...

    So ever since I moved to a new town, about a month ago, I have been having stomach issues (mainly loose stools). I sort of assumed it was the stress/water, but then I was put on Clarithromycin about a week ago, and I have had pretty much constant stomach pain. I know what a CF stomach ache...
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    New Diabetes 'Cure'?

    So some of you may have heard of the new lettuce-vectored insulin treatment that they say could help people with Type I diabetes. I hate these news releases because they dumb down stuff so much that I can't understand how it would work. The press release says that it makes the body learn how...
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    One more question: How much water do you drink?

    So after my follow-up with my urologist due to my most recent kidney stone, he said that I should be drinking FOUR liters of water a day- that's eight pounds of water going into a 112 pound, 5' 1" chick. Not to mention the hyponatremia (sodium deficiency)- I got yelled at by some chick at the...
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    Uhhh...Pulmozyme co-pay?

    Has anybody else experienced a steep increase in copay for pulmozyme? I don't think copay has even reached $200 before. I was just curious to see what everybody thought and if they had any ideas as to why this happened.
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    Foul smell in sinuses? Sinus surgery 5/23

    They didn't pack it or anything, but I have this sour-like smell in my nose if I sniff just 'right'. I think it's probably just dried blood up there. I'm not especially worried but it's kinda gross. Is this normal or do I need some new ABx?
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    A Book about CF?

    So I've been writing poetry and short stories since I was in Jr. High, and just graduated with a minor in literature. Lately I've come up with a lot of stuff, and thought maybe if I could pull it off I'd love to write a book about CF and get it published. I don't know how to go about this...
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    Insurance and the Frequencer

    Hey all, I was just wondering if those of you who have tried the frequencer and decided to buy one have had any luck with insurance. It ticks me off that I may have to choose a clearance method I don't want just because insurance sucks...I guess that's life though, lol. Let me know! (And if...
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    Totally depressed lately.

    With my hospital visit coming up, I just can't seem to get out of this totally bummed out mood. I've always just considered CF as a part of who I am, but anymore it's all i think about. I think it's because I'm graduating and planning for my future, but I don't know what is wise and what isn't...
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    Do smokers piss you off?

    Okay seriously. I was so absolutely glad when our town passed the smoke free laws a couple of years ago, because it meant I could actually go and spend time at the bars with my friends. I went to the British Isles a couple of years ago, and LOVED that the whole country is smoke free. And when...
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    Elevated WBC's/Inflammation on PAP...advice?

    So I went in for my annual exam a week or so ago, and the doctor was super-nice! She was (unlike the last lady) very curious about my CF, and outright told me she wasn't sure what was normal (nor am I). She agreed with my opinion that my mucus down there is a bit thickened, but neither of us...
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    First Admission!

    Okay, I'll be honest and be a wuss: I am scared to death. I know it's not a 'huge' deal but it sure feels like it. Luckily I get to graduate first lol then I head down for 1-2 weeks. Could anybody run me through the basics of what will happen? I know this is probably lame to most of you but...
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    CFRD and Pregnancy?

    So I recently was diagnosed with CFRD in May of last year. I know with CF it is difficult to have children, and being diagnosed with CFRD pretty much scared me even more. I know it would not only be hard on me, but requires constant monitoring to prevent birth defects. But I tend to be on the...
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