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I have a question about where everyone lives. Do you think the weather has a big impact on how you feel.We have been discusng moving to a warmer area. This winter has been very rough on Josh's health. It has been getting worse with every winter. Just looking for everyones oppinion,, thanks for...

Josh had another CT a couple days ago and they said it is slowly getting better . They took him off the Vanco and Zosyn, but he is still on the levaquin. They took the other two away because they don't want him to get resistent. Right now he is having a lot of joint pain and is having a hard...

So Josh has been in since December 28th, he asked me to come on here and update everyone. Since he has been in they have told him about 2 new bacterias that he has cultured and that he has pnuemonia. Well they did a CT and that is what showed the pnuemonia, so they put him on Levaquin along with...

Josh just cultured positive for Stenotrophomonas maltophilia. Has anyone ever heard of this or does anyone know anything about it. He is feeling very down because it has beennothing but bad new for the last 3 months. He's scared and wanted me to ask if anyone had any info at all on this...I did...

So I went to see Josh today. They uped his antibiotics and did another xray, they said it looks like there is more 'junk' in his lungs than when he was admitted. So they arn't sure what to do next its just a waiting game.He has been running a fever for the last day or so. Also he has been...

So we went to the ER last night at our local hospital for Josh's stomach pains. We were worried that it was pancreatitis...well it's not but it is a large blockage. They are trying to see if they can resolve it without surgery but it is not looking good. If he needs surgery he will be...

Hey I just wanted to let everyone know that Josh got out of the hospital on Wed. he is doing ok still weak, but glad to be home with his famliy. We are slowly getting used to doing his blood sugars and insulin, It's just one more thing added into his rutine of meds. thanks everyone for the...

So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.

So Josh is still in the hospital, they say he will prolly be in longer than his 2 weeks. They are now not letting him out of bed on his own because he fell twice....he fell in the shower and then blacked out while trying to get beck into bed. He hit his head. He has also started to cough up...

So today at 2;30am Josh was told that he cultured MRSA....I heard this and could not help but cry. It feels like we can't get any good news. 1st the B. Cepacia, now MRSA. I am trying to stay positive for Josh but it is really hard. His spirit is going down to. He hasn't been having muh of an...

I took Josh[my husband] to the hospital yesterday. He has been really run down and in general not feeling well. He cultured positive for B. Cepacia 2 weeks ago, and has been really down about it. I hate seeing him this way he's ussually a strong person and lately seems almost like he is giving...

So I just got back from taking my husband to the hospital. Hopfully he will only have to stay the usual 2 weeks. I hate leaving him there, I would stay if I could. I just got off the phone with him and they started the Zosyn so it should work soon.

My husband who is 25 with CF, was recently diagnossed with Burkholderia Cepacia and we were both very upset. His younger sister had this bacteria from the time she was 2.We faught very hard for him to not catch it, we would not see his sister for fear of him getting it. His sister was told about...