You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Am i? ... ... ...
- Thread starter TheInkDoll
- Start date
M
Mommafirst
Guest
I totally appreciate your openess in this post. When my daughter was diagnosed this past summer, I remembered you and the Real World. Sad to say, you were my only connection to CF. I tried looking all over the internet to see how you were doing. I never found anything. I'm am sorry to hear that you've had a tough couple of years. I hope you are able to keep on top of it all better now, though I think we all know how much CF sucks!!
Welcome to the site! This place has some awesome folks, I've learned so much and get such a great deal of support.
Welcome to the site! This place has some awesome folks, I've learned so much and get such a great deal of support.
M
Mommafirst
Guest
I totally appreciate your openess in this post. When my daughter was diagnosed this past summer, I remembered you and the Real World. Sad to say, you were my only connection to CF. I tried looking all over the internet to see how you were doing. I never found anything. I'm am sorry to hear that you've had a tough couple of years. I hope you are able to keep on top of it all better now, though I think we all know how much CF sucks!!
Welcome to the site! This place has some awesome folks, I've learned so much and get such a great deal of support.
Welcome to the site! This place has some awesome folks, I've learned so much and get such a great deal of support.
M
Mommafirst
Guest
I totally appreciate your openess in this post. When my daughter was diagnosed this past summer, I remembered you and the Real World. Sad to say, you were my only connection to CF. I tried looking all over the internet to see how you were doing. I never found anything. I'm am sorry to hear that you've had a tough couple of years. I hope you are able to keep on top of it all better now, though I think we all know how much CF sucks!!
Welcome to the site! This place has some awesome folks, I've learned so much and get such a great deal of support.
Welcome to the site! This place has some awesome folks, I've learned so much and get such a great deal of support.
Welcome to the site and I am sorry if I brought up a can of worms with asking about the Real World. As for the whole smoking and not representing CF well, I think you did a fine job. No one is a perfect CF patient, doing all their medicines and staying away from everything harmful. CF was also not a big part of my life until recently and I still go out to bars all the time. The was I see it, is that if i took care of myself perfectly yeah I would live longer but I would miss out on being with the people that I love. My friends are not always going to stay in with me and I don't want to stay in. I like to have fun and that is what I will do.
Anyway, I am sorry things got worse for you health wise and I hope that you get the whole doctor thing straightened out. I am thinking about a change of doctors also and it is a HUGE pain
Anyway, I am sorry things got worse for you health wise and I hope that you get the whole doctor thing straightened out. I am thinking about a change of doctors also and it is a HUGE pain
Welcome to the site and I am sorry if I brought up a can of worms with asking about the Real World. As for the whole smoking and not representing CF well, I think you did a fine job. No one is a perfect CF patient, doing all their medicines and staying away from everything harmful. CF was also not a big part of my life until recently and I still go out to bars all the time. The was I see it, is that if i took care of myself perfectly yeah I would live longer but I would miss out on being with the people that I love. My friends are not always going to stay in with me and I don't want to stay in. I like to have fun and that is what I will do.
Anyway, I am sorry things got worse for you health wise and I hope that you get the whole doctor thing straightened out. I am thinking about a change of doctors also and it is a HUGE pain
Anyway, I am sorry things got worse for you health wise and I hope that you get the whole doctor thing straightened out. I am thinking about a change of doctors also and it is a HUGE pain
Welcome to the site and I am sorry if I brought up a can of worms with asking about the Real World. As for the whole smoking and not representing CF well, I think you did a fine job. No one is a perfect CF patient, doing all their medicines and staying away from everything harmful. CF was also not a big part of my life until recently and I still go out to bars all the time. The was I see it, is that if i took care of myself perfectly yeah I would live longer but I would miss out on being with the people that I love. My friends are not always going to stay in with me and I don't want to stay in. I like to have fun and that is what I will do.
Anyway, I am sorry things got worse for you health wise and I hope that you get the whole doctor thing straightened out. I am thinking about a change of doctors also and it is a HUGE pain
Anyway, I am sorry things got worse for you health wise and I hope that you get the whole doctor thing straightened out. I am thinking about a change of doctors also and it is a HUGE pain
Hey I can definitely relate to some degree. I didn't really take my disease seriously as a child, nor did my mom. It was just something i had, and it didn't really effect me much. Even after reading about it through high school, it still didn't click...and i just put it in the back of my mind.
I did what ever other teenager does...I smoked, did drugs, drank etc...and i don't regret any of it for a moment. I'm lucky that i came out of it ok though, and i am well now (24). I might have regreted a bit more though if i had gotten really sick. However, that was my choice, and this is my life.
A lot of people were kinda upset on here because while you are smoking (not just you, but only one in the publics eye), there were people here dying...on breathing machines....wishing they could breath half as well as any normal person could. I think that is the way that cf is portrayed, and while it is true, that is not all of us. There are some of us that smoke, there are some of us that party....and there are some of us that say **** you...and ignore it. I kinda respected the fact that you brought a realistic twist to the thing called cf...because not one person, patient is the same
anyways, a bit of a ramble...but don't worry, you were just being you...
I did what ever other teenager does...I smoked, did drugs, drank etc...and i don't regret any of it for a moment. I'm lucky that i came out of it ok though, and i am well now (24). I might have regreted a bit more though if i had gotten really sick. However, that was my choice, and this is my life.
A lot of people were kinda upset on here because while you are smoking (not just you, but only one in the publics eye), there were people here dying...on breathing machines....wishing they could breath half as well as any normal person could. I think that is the way that cf is portrayed, and while it is true, that is not all of us. There are some of us that smoke, there are some of us that party....and there are some of us that say **** you...and ignore it. I kinda respected the fact that you brought a realistic twist to the thing called cf...because not one person, patient is the same
anyways, a bit of a ramble...but don't worry, you were just being you...
Hey I can definitely relate to some degree. I didn't really take my disease seriously as a child, nor did my mom. It was just something i had, and it didn't really effect me much. Even after reading about it through high school, it still didn't click...and i just put it in the back of my mind.
I did what ever other teenager does...I smoked, did drugs, drank etc...and i don't regret any of it for a moment. I'm lucky that i came out of it ok though, and i am well now (24). I might have regreted a bit more though if i had gotten really sick. However, that was my choice, and this is my life.
A lot of people were kinda upset on here because while you are smoking (not just you, but only one in the publics eye), there were people here dying...on breathing machines....wishing they could breath half as well as any normal person could. I think that is the way that cf is portrayed, and while it is true, that is not all of us. There are some of us that smoke, there are some of us that party....and there are some of us that say **** you...and ignore it. I kinda respected the fact that you brought a realistic twist to the thing called cf...because not one person, patient is the same
anyways, a bit of a ramble...but don't worry, you were just being you...
I did what ever other teenager does...I smoked, did drugs, drank etc...and i don't regret any of it for a moment. I'm lucky that i came out of it ok though, and i am well now (24). I might have regreted a bit more though if i had gotten really sick. However, that was my choice, and this is my life.
A lot of people were kinda upset on here because while you are smoking (not just you, but only one in the publics eye), there were people here dying...on breathing machines....wishing they could breath half as well as any normal person could. I think that is the way that cf is portrayed, and while it is true, that is not all of us. There are some of us that smoke, there are some of us that party....and there are some of us that say **** you...and ignore it. I kinda respected the fact that you brought a realistic twist to the thing called cf...because not one person, patient is the same
anyways, a bit of a ramble...but don't worry, you were just being you...
Hey I can definitely relate to some degree. I didn't really take my disease seriously as a child, nor did my mom. It was just something i had, and it didn't really effect me much. Even after reading about it through high school, it still didn't click...and i just put it in the back of my mind.
I did what ever other teenager does...I smoked, did drugs, drank etc...and i don't regret any of it for a moment. I'm lucky that i came out of it ok though, and i am well now (24). I might have regreted a bit more though if i had gotten really sick. However, that was my choice, and this is my life.
A lot of people were kinda upset on here because while you are smoking (not just you, but only one in the publics eye), there were people here dying...on breathing machines....wishing they could breath half as well as any normal person could. I think that is the way that cf is portrayed, and while it is true, that is not all of us. There are some of us that smoke, there are some of us that party....and there are some of us that say **** you...and ignore it. I kinda respected the fact that you brought a realistic twist to the thing called cf...because not one person, patient is the same
anyways, a bit of a ramble...but don't worry, you were just being you...
I did what ever other teenager does...I smoked, did drugs, drank etc...and i don't regret any of it for a moment. I'm lucky that i came out of it ok though, and i am well now (24). I might have regreted a bit more though if i had gotten really sick. However, that was my choice, and this is my life.
A lot of people were kinda upset on here because while you are smoking (not just you, but only one in the publics eye), there were people here dying...on breathing machines....wishing they could breath half as well as any normal person could. I think that is the way that cf is portrayed, and while it is true, that is not all of us. There are some of us that smoke, there are some of us that party....and there are some of us that say **** you...and ignore it. I kinda respected the fact that you brought a realistic twist to the thing called cf...because not one person, patient is the same
anyways, a bit of a ramble...but don't worry, you were just being you...
blindhearted
New member
Hey Frankie. I remember you from Real World, even though didnt watch it much. Congradulations with quitting smoking, that is great. Sorry to hear you have had a hard time over the past few years, glad to hear you are doing better now. Anyway, I wanted to say welcome to the site. Take care. <img src="i/expressions/face-icon-small-smile.gif" border="0">
blindhearted
New member
Hey Frankie. I remember you from Real World, even though didnt watch it much. Congradulations with quitting smoking, that is great. Sorry to hear you have had a hard time over the past few years, glad to hear you are doing better now. Anyway, I wanted to say welcome to the site. Take care. <img src="i/expressions/face-icon-small-smile.gif" border="0">
blindhearted
New member
Hey Frankie. I remember you from Real World, even though didnt watch it much. Congradulations with quitting smoking, that is great. Sorry to hear you have had a hard time over the past few years, glad to hear you are doing better now. Anyway, I wanted to say welcome to the site. Take care. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Augustmom0003
New member
Frankie! I'm so glad to hear from you!!! My son was diagnosed almost the exact same time that the Real World SD aired. I remember my husband and I looking at eachother in amazement when it was mentioned you had CF (since we had known no one at the time with CF)! It was crazy. It must've been a rough thing to go through...then to add CF into the mix...wow! I wasn't personally offended by anything...worried (I'm a mom)...but not offended. Who am I to judge how someone deals with CF...(and the rest of the crap that you probably had to deal with regarding the show)????
I'm so glad you came through FIGHTING this past year!! I've also looked for you periodically since SD aired...never found anything...so...thank you for updating us!!!! Love to hear someone kicking CF in it's a**!!!
I hope you aren't a stranger!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
I'm so glad you came through FIGHTING this past year!! I've also looked for you periodically since SD aired...never found anything...so...thank you for updating us!!!! Love to hear someone kicking CF in it's a**!!!
I hope you aren't a stranger!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
Augustmom0003
New member
Frankie! I'm so glad to hear from you!!! My son was diagnosed almost the exact same time that the Real World SD aired. I remember my husband and I looking at eachother in amazement when it was mentioned you had CF (since we had known no one at the time with CF)! It was crazy. It must've been a rough thing to go through...then to add CF into the mix...wow! I wasn't personally offended by anything...worried (I'm a mom)...but not offended. Who am I to judge how someone deals with CF...(and the rest of the crap that you probably had to deal with regarding the show)????
I'm so glad you came through FIGHTING this past year!! I've also looked for you periodically since SD aired...never found anything...so...thank you for updating us!!!! Love to hear someone kicking CF in it's a**!!!
I hope you aren't a stranger!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
I'm so glad you came through FIGHTING this past year!! I've also looked for you periodically since SD aired...never found anything...so...thank you for updating us!!!! Love to hear someone kicking CF in it's a**!!!
I hope you aren't a stranger!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
Augustmom0003
New member
Frankie! I'm so glad to hear from you!!! My son was diagnosed almost the exact same time that the Real World SD aired. I remember my husband and I looking at eachother in amazement when it was mentioned you had CF (since we had known no one at the time with CF)! It was crazy. It must've been a rough thing to go through...then to add CF into the mix...wow! I wasn't personally offended by anything...worried (I'm a mom)...but not offended. Who am I to judge how someone deals with CF...(and the rest of the crap that you probably had to deal with regarding the show)????
I'm so glad you came through FIGHTING this past year!! I've also looked for you periodically since SD aired...never found anything...so...thank you for updating us!!!! Love to hear someone kicking CF in it's a**!!!
I hope you aren't a stranger!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
I'm so glad you came through FIGHTING this past year!! I've also looked for you periodically since SD aired...never found anything...so...thank you for updating us!!!! Love to hear someone kicking CF in it's a**!!!
I hope you aren't a stranger!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">