Amnio test said my baby is positive for CF

[tigerlady9499]

dancer78

you are very very right! My parents were told I wouldn't live to be 5 years old. I just turned 30 in Sept. I have only been in the hospital 3 times for IV antibiotics. It all depends on the mutation and how you take care of yourself. I ran track in high school 6 miles a night 5 days a week. Competed in the 1 mile and 2 mile with good times ( i didn't place but did it anyway for my health). Even got made fun of because I was slow and last all the time! But I did it for my health. I knew I had to. My cousin also has CF, she had double lung transplant at age 38 and that has been 5 years ago and she is doing great.

My only complication is I can not get pregnant. Have tried for 8 years and now the doc says he doesn't want me to conceive because of lung function and risk of baby not living. I am looking for a surrogate, but IVF is so expensive. We went through 1 cycle already and miscarried. <img src="i/expressions/face-icon-small-sad.gif" border="0">

If anyone knows of any angels in MO that would be willing to be a surrogate for couple with wife having CF please let me know. My husband is not a carrier so the baby would be fine.
Thanks
And keep up the good work Dancer you are an inspiration to us all!

 

[tigerlady9499]

dancer78

you are very very right! My parents were told I wouldn't live to be 5 years old. I just turned 30 in Sept. I have only been in the hospital 3 times for IV antibiotics. It all depends on the mutation and how you take care of yourself. I ran track in high school 6 miles a night 5 days a week. Competed in the 1 mile and 2 mile with good times ( i didn't place but did it anyway for my health). Even got made fun of because I was slow and last all the time! But I did it for my health. I knew I had to. My cousin also has CF, she had double lung transplant at age 38 and that has been 5 years ago and she is doing great.

My only complication is I can not get pregnant. Have tried for 8 years and now the doc says he doesn't want me to conceive because of lung function and risk of baby not living. I am looking for a surrogate, but IVF is so expensive. We went through 1 cycle already and miscarried. <img src="i/expressions/face-icon-small-sad.gif" border="0">

If anyone knows of any angels in MO that would be willing to be a surrogate for couple with wife having CF please let me know. My husband is not a carrier so the baby would be fine.
Thanks
And keep up the good work Dancer you are an inspiration to us all!

 

[tigerlady9499]

dancer78

you are very very right! My parents were told I wouldn't live to be 5 years old. I just turned 30 in Sept. I have only been in the hospital 3 times for IV antibiotics. It all depends on the mutation and how you take care of yourself. I ran track in high school 6 miles a night 5 days a week. Competed in the 1 mile and 2 mile with good times ( i didn't place but did it anyway for my health). Even got made fun of because I was slow and last all the time! But I did it for my health. I knew I had to. My cousin also has CF, she had double lung transplant at age 38 and that has been 5 years ago and she is doing great.

My only complication is I can not get pregnant. Have tried for 8 years and now the doc says he doesn't want me to conceive because of lung function and risk of baby not living. I am looking for a surrogate, but IVF is so expensive. We went through 1 cycle already and miscarried. <img src="i/expressions/face-icon-small-sad.gif" border="0">

If anyone knows of any angels in MO that would be willing to be a surrogate for couple with wife having CF please let me know. My husband is not a carrier so the baby would be fine.
Thanks
And keep up the good work Dancer you are an inspiration to us all!

 

[tigerlady9499]

dancer78

you are very very right! My parents were told I wouldn't live to be 5 years old. I just turned 30 in Sept. I have only been in the hospital 3 times for IV antibiotics. It all depends on the mutation and how you take care of yourself. I ran track in high school 6 miles a night 5 days a week. Competed in the 1 mile and 2 mile with good times ( i didn't place but did it anyway for my health). Even got made fun of because I was slow and last all the time! But I did it for my health. I knew I had to. My cousin also has CF, she had double lung transplant at age 38 and that has been 5 years ago and she is doing great.

My only complication is I can not get pregnant. Have tried for 8 years and now the doc says he doesn't want me to conceive because of lung function and risk of baby not living. I am looking for a surrogate, but IVF is so expensive. We went through 1 cycle already and miscarried. <img src="i/expressions/face-icon-small-sad.gif" border="0">

If anyone knows of any angels in MO that would be willing to be a surrogate for couple with wife having CF please let me know. My husband is not a carrier so the baby would be fine.
Thanks
And keep up the good work Dancer you are an inspiration to us all!

 

[tigerlady9499]

dancer78
<br />
<br />you are very very right! My parents were told I wouldn't live to be 5 years old. I just turned 30 in Sept. I have only been in the hospital 3 times for IV antibiotics. It all depends on the mutation and how you take care of yourself. I ran track in high school 6 miles a night 5 days a week. Competed in the 1 mile and 2 mile with good times ( i didn't place but did it anyway for my health). Even got made fun of because I was slow and last all the time! But I did it for my health. I knew I had to. My cousin also has CF, she had double lung transplant at age 38 and that has been 5 years ago and she is doing great.
<br />
<br />My only complication is I can not get pregnant. Have tried for 8 years and now the doc says he doesn't want me to conceive because of lung function and risk of baby not living. I am looking for a surrogate, but IVF is so expensive. We went through 1 cycle already and miscarried. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />If anyone knows of any angels in MO that would be willing to be a surrogate for couple with wife having CF please let me know. My husband is not a carrier so the baby would be fine.
<br />Thanks
<br />And keep up the good work Dancer you are an inspiration to us all!

 

[Peanut2008]

thank you everyone for ur responses and for still taking the time to even reply to me after all of this time...i wish there was something that i could say that would tell u all of how much i really appreciate all of you...Julie in response to ur ? i am going to do IVF because I have been adv that this is the only way that they can check and make sure that my baby will not have CF...The complications to my health would be greater b/c i would most likely have multple births but i am going to get this done. I feel empty...i feel as if my life is nt worth anything concret anymore. My daughter still spks about peanut as if he would one day be here and it kills me even though i try not to show it.

I know that people do live with CF and some people have pretty good lives but my concern is with those that are very sick. I see and hear so much stuff and my heart goes out to those people...I came across this woman on YouTube that was coughing so much she couldnt even breath...Just seeing her so sick broke my heart. I cant change the past and everyday i will live with my decision hopefully one day i will be able to find peace with in me. I just hope that all of u dont mind if i still come here every once in a while and say hello.

Peanut2008

 

[Peanut2008]

thank you everyone for ur responses and for still taking the time to even reply to me after all of this time...i wish there was something that i could say that would tell u all of how much i really appreciate all of you...Julie in response to ur ? i am going to do IVF because I have been adv that this is the only way that they can check and make sure that my baby will not have CF...The complications to my health would be greater b/c i would most likely have multple births but i am going to get this done. I feel empty...i feel as if my life is nt worth anything concret anymore. My daughter still spks about peanut as if he would one day be here and it kills me even though i try not to show it.

I know that people do live with CF and some people have pretty good lives but my concern is with those that are very sick. I see and hear so much stuff and my heart goes out to those people...I came across this woman on YouTube that was coughing so much she couldnt even breath...Just seeing her so sick broke my heart. I cant change the past and everyday i will live with my decision hopefully one day i will be able to find peace with in me. I just hope that all of u dont mind if i still come here every once in a while and say hello.

Peanut2008

 

[Peanut2008]

thank you everyone for ur responses and for still taking the time to even reply to me after all of this time...i wish there was something that i could say that would tell u all of how much i really appreciate all of you...Julie in response to ur ? i am going to do IVF because I have been adv that this is the only way that they can check and make sure that my baby will not have CF...The complications to my health would be greater b/c i would most likely have multple births but i am going to get this done. I feel empty...i feel as if my life is nt worth anything concret anymore. My daughter still spks about peanut as if he would one day be here and it kills me even though i try not to show it.

I know that people do live with CF and some people have pretty good lives but my concern is with those that are very sick. I see and hear so much stuff and my heart goes out to those people...I came across this woman on YouTube that was coughing so much she couldnt even breath...Just seeing her so sick broke my heart. I cant change the past and everyday i will live with my decision hopefully one day i will be able to find peace with in me. I just hope that all of u dont mind if i still come here every once in a while and say hello.

Peanut2008

 

[Peanut2008]

thank you everyone for ur responses and for still taking the time to even reply to me after all of this time...i wish there was something that i could say that would tell u all of how much i really appreciate all of you...Julie in response to ur ? i am going to do IVF because I have been adv that this is the only way that they can check and make sure that my baby will not have CF...The complications to my health would be greater b/c i would most likely have multple births but i am going to get this done. I feel empty...i feel as if my life is nt worth anything concret anymore. My daughter still spks about peanut as if he would one day be here and it kills me even though i try not to show it.

I know that people do live with CF and some people have pretty good lives but my concern is with those that are very sick. I see and hear so much stuff and my heart goes out to those people...I came across this woman on YouTube that was coughing so much she couldnt even breath...Just seeing her so sick broke my heart. I cant change the past and everyday i will live with my decision hopefully one day i will be able to find peace with in me. I just hope that all of u dont mind if i still come here every once in a while and say hello.

Peanut2008

 

[Peanut2008]

thank you everyone for ur responses and for still taking the time to even reply to me after all of this time...i wish there was something that i could say that would tell u all of how much i really appreciate all of you...Julie in response to ur ? i am going to do IVF because I have been adv that this is the only way that they can check and make sure that my baby will not have CF...The complications to my health would be greater b/c i would most likely have multple births but i am going to get this done. I feel empty...i feel as if my life is nt worth anything concret anymore. My daughter still spks about peanut as if he would one day be here and it kills me even though i try not to show it.
<br />
<br />I know that people do live with CF and some people have pretty good lives but my concern is with those that are very sick. I see and hear so much stuff and my heart goes out to those people...I came across this woman on YouTube that was coughing so much she couldnt even breath...Just seeing her so sick broke my heart. I cant change the past and everyday i will live with my decision hopefully one day i will be able to find peace with in me. I just hope that all of u dont mind if i still come here every once in a while and say hello.
<br />
<br />Peanut2008

 

[beleache]

As far as i'm concerned you have a place here. You do have a connection to c/f and are part of this family.. Stay in touch ~ <img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

As far as i'm concerned you have a place here. You do have a connection to c/f and are part of this family.. Stay in touch ~ <img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

As far as i'm concerned you have a place here. You do have a connection to c/f and are part of this family.. Stay in touch ~ <img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

As far as i'm concerned you have a place here. You do have a connection to c/f and are part of this family.. Stay in touch ~ <img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

As far as i'm concerned you have a place here. You do have a connection to c/f and are part of this family.. Stay in touch ~ <img src="i/expressions/heart.gif" border="0"> joni

 

[lmattaway]

Peanut2008, you can stop by any time you'd like. you're always welcome. my heart hurts for the decision you had to make and i can only pray that time will heal those wounds.

 

[lmattaway]

Peanut2008, you can stop by any time you'd like. you're always welcome. my heart hurts for the decision you had to make and i can only pray that time will heal those wounds.

 

[lmattaway]

Peanut2008, you can stop by any time you'd like. you're always welcome. my heart hurts for the decision you had to make and i can only pray that time will heal those wounds.

 

[lmattaway]

Peanut2008, you can stop by any time you'd like. you're always welcome. my heart hurts for the decision you had to make and i can only pray that time will heal those wounds.

 

[lmattaway]

Peanut2008, you can stop by any time you'd like. you're always welcome. my heart hurts for the decision you had to make and i can only pray that time will heal those wounds.