MEETING WITH THE SCHOOL NURSE

robert321 · Aug 30, 2007

if the schools start to be a pain in the butt about ANYTHING regarding cf, get a Section 504, heck you just say the name and they might start cooporating and it might be a good idea to have one from the start just for "ammo"

Section 504 - A Section 504 is the federal law that prohibits discrimination against a student with a disability, requiring schools to provide opportunities for equal services, programs, and participation in activites. Unless the student is determined by an ARD committe to be eligiblefor special education services, appropriate regular eductaional services will be provided.

ARD - An ARD is the admission, reveiw, and dismissal committee convened for each student who is identified as needing a full and individual evaluation for special education services. The eligible student's parents are part of the committee.

I would suggest getting a 504 plan and using it, request the ARD, which you can do as many times as you want as far as i know, get all this straight and then it's official and legal and the school doesn't have much of a choice. Request that all of the students teachers be present for the ARD and in the meeting adress issues like snacks, enzymes, bathroom breaks, even talk about additional absenses because of hospitolizations, the 504 doesn't get you much with absenses, at least in Texas it doesn't, but get it on the record anyway, most of the time, especially with elementary school they are always happy to help but it seems the older you get the less the school administration cares and by the time you're in high school without a 504 you can't get much of anywhere with the people unless you have something like a 504 plan in place. When you go in for the ARD be prepared, read up on it about what you can and can't do and have dr's notes explaining things, "credited" written information, and present the whole thing with you're best "important business person" performance, dress well because they'll take you more seriously and act like you know what you're doing and be confident

i have a 504 plan and everytime there is a problem with the school you just bring it up and it goes away. My plan deals with eating, drinking gatorade (school "rules" say you can't have food or drinks besides water with a closable lid anywhere but the cafateria), bathroom breaks, enzymes, and all that good stuff.

robert321 · Aug 30, 2007

if the schools start to be a pain in the butt about ANYTHING regarding cf, get a Section 504, heck you just say the name and they might start cooporating and it might be a good idea to have one from the start just for "ammo"

Section 504 - A Section 504 is the federal law that prohibits discrimination against a student with a disability, requiring schools to provide opportunities for equal services, programs, and participation in activites. Unless the student is determined by an ARD committe to be eligiblefor special education services, appropriate regular eductaional services will be provided.

ARD - An ARD is the admission, reveiw, and dismissal committee convened for each student who is identified as needing a full and individual evaluation for special education services. The eligible student's parents are part of the committee.

I would suggest getting a 504 plan and using it, request the ARD, which you can do as many times as you want as far as i know, get all this straight and then it's official and legal and the school doesn't have much of a choice. Request that all of the students teachers be present for the ARD and in the meeting adress issues like snacks, enzymes, bathroom breaks, even talk about additional absenses because of hospitolizations, the 504 doesn't get you much with absenses, at least in Texas it doesn't, but get it on the record anyway, most of the time, especially with elementary school they are always happy to help but it seems the older you get the less the school administration cares and by the time you're in high school without a 504 you can't get much of anywhere with the people unless you have something like a 504 plan in place. When you go in for the ARD be prepared, read up on it about what you can and can't do and have dr's notes explaining things, "credited" written information, and present the whole thing with you're best "important business person" performance, dress well because they'll take you more seriously and act like you know what you're doing and be confident

i have a 504 plan and everytime there is a problem with the school you just bring it up and it goes away. My plan deals with eating, drinking gatorade (school "rules" say you can't have food or drinks besides water with a closable lid anywhere but the cafateria), bathroom breaks, enzymes, and all that good stuff.

robert321 · Aug 30, 2007

if the schools start to be a pain in the butt about ANYTHING regarding cf, get a Section 504, heck you just say the name and they might start cooporating and it might be a good idea to have one from the start just for "ammo"

Section 504 - A Section 504 is the federal law that prohibits discrimination against a student with a disability, requiring schools to provide opportunities for equal services, programs, and participation in activites. Unless the student is determined by an ARD committe to be eligiblefor special education services, appropriate regular eductaional services will be provided.

ARD - An ARD is the admission, reveiw, and dismissal committee convened for each student who is identified as needing a full and individual evaluation for special education services. The eligible student's parents are part of the committee.

I would suggest getting a 504 plan and using it, request the ARD, which you can do as many times as you want as far as i know, get all this straight and then it's official and legal and the school doesn't have much of a choice. Request that all of the students teachers be present for the ARD and in the meeting adress issues like snacks, enzymes, bathroom breaks, even talk about additional absenses because of hospitolizations, the 504 doesn't get you much with absenses, at least in Texas it doesn't, but get it on the record anyway, most of the time, especially with elementary school they are always happy to help but it seems the older you get the less the school administration cares and by the time you're in high school without a 504 you can't get much of anywhere with the people unless you have something like a 504 plan in place. When you go in for the ARD be prepared, read up on it about what you can and can't do and have dr's notes explaining things, "credited" written information, and present the whole thing with you're best "important business person" performance, dress well because they'll take you more seriously and act like you know what you're doing and be confident

i have a 504 plan and everytime there is a problem with the school you just bring it up and it goes away. My plan deals with eating, drinking gatorade (school "rules" say you can't have food or drinks besides water with a closable lid anywhere but the cafateria), bathroom breaks, enzymes, and all that good stuff.

robert321 · Aug 30, 2007

if the schools start to be a pain in the butt about ANYTHING regarding cf, get a Section 504, heck you just say the name and they might start cooporating and it might be a good idea to have one from the start just for "ammo"

Section 504 - A Section 504 is the federal law that prohibits discrimination against a student with a disability, requiring schools to provide opportunities for equal services, programs, and participation in activites. Unless the student is determined by an ARD committe to be eligiblefor special education services, appropriate regular eductaional services will be provided.

ARD - An ARD is the admission, reveiw, and dismissal committee convened for each student who is identified as needing a full and individual evaluation for special education services. The eligible student's parents are part of the committee.

I would suggest getting a 504 plan and using it, request the ARD, which you can do as many times as you want as far as i know, get all this straight and then it's official and legal and the school doesn't have much of a choice. Request that all of the students teachers be present for the ARD and in the meeting adress issues like snacks, enzymes, bathroom breaks, even talk about additional absenses because of hospitolizations, the 504 doesn't get you much with absenses, at least in Texas it doesn't, but get it on the record anyway, most of the time, especially with elementary school they are always happy to help but it seems the older you get the less the school administration cares and by the time you're in high school without a 504 you can't get much of anywhere with the people unless you have something like a 504 plan in place. When you go in for the ARD be prepared, read up on it about what you can and can't do and have dr's notes explaining things, "credited" written information, and present the whole thing with you're best "important business person" performance, dress well because they'll take you more seriously and act like you know what you're doing and be confident

i have a 504 plan and everytime there is a problem with the school you just bring it up and it goes away. My plan deals with eating, drinking gatorade (school "rules" say you can't have food or drinks besides water with a closable lid anywhere but the cafateria), bathroom breaks, enzymes, and all that good stuff.

robert321 · Aug 30, 2007

if the schools start to be a pain in the butt about ANYTHING regarding cf, get a Section 504, heck you just say the name and they might start cooporating and it might be a good idea to have one from the start just for "ammo"

Section 504 - A Section 504 is the federal law that prohibits discrimination against a student with a disability, requiring schools to provide opportunities for equal services, programs, and participation in activites. Unless the student is determined by an ARD committe to be eligiblefor special education services, appropriate regular eductaional services will be provided.

ARD - An ARD is the admission, reveiw, and dismissal committee convened for each student who is identified as needing a full and individual evaluation for special education services. The eligible student's parents are part of the committee.

I would suggest getting a 504 plan and using it, request the ARD, which you can do as many times as you want as far as i know, get all this straight and then it's official and legal and the school doesn't have much of a choice. Request that all of the students teachers be present for the ARD and in the meeting adress issues like snacks, enzymes, bathroom breaks, even talk about additional absenses because of hospitolizations, the 504 doesn't get you much with absenses, at least in Texas it doesn't, but get it on the record anyway, most of the time, especially with elementary school they are always happy to help but it seems the older you get the less the school administration cares and by the time you're in high school without a 504 you can't get much of anywhere with the people unless you have something like a 504 plan in place. When you go in for the ARD be prepared, read up on it about what you can and can't do and have dr's notes explaining things, "credited" written information, and present the whole thing with you're best "important business person" performance, dress well because they'll take you more seriously and act like you know what you're doing and be confident

i have a 504 plan and everytime there is a problem with the school you just bring it up and it goes away. My plan deals with eating, drinking gatorade (school "rules" say you can't have food or drinks besides water with a closable lid anywhere but the cafateria), bathroom breaks, enzymes, and all that good stuff.

sullihs · Sep 3, 2007

1. Make sure they understand that when they say they have to go poop, they have to go poop NOW. My son's teacher (preschool) stopped to talk to a parent one day on the way to take him to the potty and he had an accident in his pants.

2. Make sure they know that he must have access to water at any time. And when the weather cools down, they may need to remind him to drink enough.

3. Handwashing, handwashing, handwashing!! We provided hand sanitizer for his room last year. This year he will be in kindergarten and his teacher is going to do a demonstration for the whole class on how to properly wash their hands (this was suggested to me by someone who is older and has CF).

4. His teacher was very good last year about keeping him away from any classmates who were coughing, etc. In the beginning, they made him move away from the other child which upset him and made him feel isolated. They then started making either the other child move away from him or just made them both move. It took us a while to make him understand why this had to happen.

5. Make sure his teachers understand that they can call you at ANY time with a question. I told his teachers that "no question was a dumb question" and to call me any time. They called me one day to check to see if he needed more enzymes since they were having hotdogs for snack.

6. Also, make sure that his teachers are prepared for any field trips...they will need his drink and meds if he is going to have a snack there. I went on all field trips with my son last year except one. The one I missed, they forgot his enzymes and he didn't get to have a snack until he got back to the school. He was so sad watching his friends eat (other parents told me this). I was mad (they felt terrible), but I felt like a bad mom.

7. Make sure they will notifiy you if any child he has contact with comes down with a contagious illness. The director of his school called me at home on a Sat to let me know that a child in his class came down with the flu on Friday afternoon. I just like to know so that I can keep a closer eye on him (he will usually sleep a lot more for a few days prior to getting a virus, etc.)

8. I don't know how open you are about his CF so this may not be something you would do, but we sent a nice note home to all of the parents of his classmates to let them know about his CF. We wrote it as if it is him talking to his friend's parents. I was kind of nervous about doing it last year, but had such positive feedback from most all of the parents (didn't have any negative, just a few who said nothing).

These are just some things I ran into last year and may or may not be helpful to you. If I think of anything else, I will let you know.

sullihs · Sep 3, 2007

1. Make sure they understand that when they say they have to go poop, they have to go poop NOW. My son's teacher (preschool) stopped to talk to a parent one day on the way to take him to the potty and he had an accident in his pants.

2. Make sure they know that he must have access to water at any time. And when the weather cools down, they may need to remind him to drink enough.

3. Handwashing, handwashing, handwashing!! We provided hand sanitizer for his room last year. This year he will be in kindergarten and his teacher is going to do a demonstration for the whole class on how to properly wash their hands (this was suggested to me by someone who is older and has CF).

4. His teacher was very good last year about keeping him away from any classmates who were coughing, etc. In the beginning, they made him move away from the other child which upset him and made him feel isolated. They then started making either the other child move away from him or just made them both move. It took us a while to make him understand why this had to happen.

5. Make sure his teachers understand that they can call you at ANY time with a question. I told his teachers that "no question was a dumb question" and to call me any time. They called me one day to check to see if he needed more enzymes since they were having hotdogs for snack.

6. Also, make sure that his teachers are prepared for any field trips...they will need his drink and meds if he is going to have a snack there. I went on all field trips with my son last year except one. The one I missed, they forgot his enzymes and he didn't get to have a snack until he got back to the school. He was so sad watching his friends eat (other parents told me this). I was mad (they felt terrible), but I felt like a bad mom.

7. Make sure they will notifiy you if any child he has contact with comes down with a contagious illness. The director of his school called me at home on a Sat to let me know that a child in his class came down with the flu on Friday afternoon. I just like to know so that I can keep a closer eye on him (he will usually sleep a lot more for a few days prior to getting a virus, etc.)

8. I don't know how open you are about his CF so this may not be something you would do, but we sent a nice note home to all of the parents of his classmates to let them know about his CF. We wrote it as if it is him talking to his friend's parents. I was kind of nervous about doing it last year, but had such positive feedback from most all of the parents (didn't have any negative, just a few who said nothing).

These are just some things I ran into last year and may or may not be helpful to you. If I think of anything else, I will let you know.

sullihs · Sep 3, 2007

1. Make sure they understand that when they say they have to go poop, they have to go poop NOW. My son's teacher (preschool) stopped to talk to a parent one day on the way to take him to the potty and he had an accident in his pants.

2. Make sure they know that he must have access to water at any time. And when the weather cools down, they may need to remind him to drink enough.

3. Handwashing, handwashing, handwashing!! We provided hand sanitizer for his room last year. This year he will be in kindergarten and his teacher is going to do a demonstration for the whole class on how to properly wash their hands (this was suggested to me by someone who is older and has CF).

4. His teacher was very good last year about keeping him away from any classmates who were coughing, etc. In the beginning, they made him move away from the other child which upset him and made him feel isolated. They then started making either the other child move away from him or just made them both move. It took us a while to make him understand why this had to happen.

5. Make sure his teachers understand that they can call you at ANY time with a question. I told his teachers that "no question was a dumb question" and to call me any time. They called me one day to check to see if he needed more enzymes since they were having hotdogs for snack.

6. Also, make sure that his teachers are prepared for any field trips...they will need his drink and meds if he is going to have a snack there. I went on all field trips with my son last year except one. The one I missed, they forgot his enzymes and he didn't get to have a snack until he got back to the school. He was so sad watching his friends eat (other parents told me this). I was mad (they felt terrible), but I felt like a bad mom.

7. Make sure they will notifiy you if any child he has contact with comes down with a contagious illness. The director of his school called me at home on a Sat to let me know that a child in his class came down with the flu on Friday afternoon. I just like to know so that I can keep a closer eye on him (he will usually sleep a lot more for a few days prior to getting a virus, etc.)

8. I don't know how open you are about his CF so this may not be something you would do, but we sent a nice note home to all of the parents of his classmates to let them know about his CF. We wrote it as if it is him talking to his friend's parents. I was kind of nervous about doing it last year, but had such positive feedback from most all of the parents (didn't have any negative, just a few who said nothing).

These are just some things I ran into last year and may or may not be helpful to you. If I think of anything else, I will let you know.

sullihs · Sep 3, 2007

1. Make sure they understand that when they say they have to go poop, they have to go poop NOW. My son's teacher (preschool) stopped to talk to a parent one day on the way to take him to the potty and he had an accident in his pants.

2. Make sure they know that he must have access to water at any time. And when the weather cools down, they may need to remind him to drink enough.

3. Handwashing, handwashing, handwashing!! We provided hand sanitizer for his room last year. This year he will be in kindergarten and his teacher is going to do a demonstration for the whole class on how to properly wash their hands (this was suggested to me by someone who is older and has CF).

4. His teacher was very good last year about keeping him away from any classmates who were coughing, etc. In the beginning, they made him move away from the other child which upset him and made him feel isolated. They then started making either the other child move away from him or just made them both move. It took us a while to make him understand why this had to happen.

5. Make sure his teachers understand that they can call you at ANY time with a question. I told his teachers that "no question was a dumb question" and to call me any time. They called me one day to check to see if he needed more enzymes since they were having hotdogs for snack.

6. Also, make sure that his teachers are prepared for any field trips...they will need his drink and meds if he is going to have a snack there. I went on all field trips with my son last year except one. The one I missed, they forgot his enzymes and he didn't get to have a snack until he got back to the school. He was so sad watching his friends eat (other parents told me this). I was mad (they felt terrible), but I felt like a bad mom.

7. Make sure they will notifiy you if any child he has contact with comes down with a contagious illness. The director of his school called me at home on a Sat to let me know that a child in his class came down with the flu on Friday afternoon. I just like to know so that I can keep a closer eye on him (he will usually sleep a lot more for a few days prior to getting a virus, etc.)

8. I don't know how open you are about his CF so this may not be something you would do, but we sent a nice note home to all of the parents of his classmates to let them know about his CF. We wrote it as if it is him talking to his friend's parents. I was kind of nervous about doing it last year, but had such positive feedback from most all of the parents (didn't have any negative, just a few who said nothing).

These are just some things I ran into last year and may or may not be helpful to you. If I think of anything else, I will let you know.

sullihs · Sep 3, 2007

1. Make sure they understand that when they say they have to go poop, they have to go poop NOW. My son's teacher (preschool) stopped to talk to a parent one day on the way to take him to the potty and he had an accident in his pants.

2. Make sure they know that he must have access to water at any time. And when the weather cools down, they may need to remind him to drink enough.

3. Handwashing, handwashing, handwashing!! We provided hand sanitizer for his room last year. This year he will be in kindergarten and his teacher is going to do a demonstration for the whole class on how to properly wash their hands (this was suggested to me by someone who is older and has CF).

4. His teacher was very good last year about keeping him away from any classmates who were coughing, etc. In the beginning, they made him move away from the other child which upset him and made him feel isolated. They then started making either the other child move away from him or just made them both move. It took us a while to make him understand why this had to happen.

5. Make sure his teachers understand that they can call you at ANY time with a question. I told his teachers that "no question was a dumb question" and to call me any time. They called me one day to check to see if he needed more enzymes since they were having hotdogs for snack.

6. Also, make sure that his teachers are prepared for any field trips...they will need his drink and meds if he is going to have a snack there. I went on all field trips with my son last year except one. The one I missed, they forgot his enzymes and he didn't get to have a snack until he got back to the school. He was so sad watching his friends eat (other parents told me this). I was mad (they felt terrible), but I felt like a bad mom.

7. Make sure they will notifiy you if any child he has contact with comes down with a contagious illness. The director of his school called me at home on a Sat to let me know that a child in his class came down with the flu on Friday afternoon. I just like to know so that I can keep a closer eye on him (he will usually sleep a lot more for a few days prior to getting a virus, etc.)

8. I don't know how open you are about his CF so this may not be something you would do, but we sent a nice note home to all of the parents of his classmates to let them know about his CF. We wrote it as if it is him talking to his friend's parents. I was kind of nervous about doing it last year, but had such positive feedback from most all of the parents (didn't have any negative, just a few who said nothing).

These are just some things I ran into last year and may or may not be helpful to you. If I think of anything else, I will let you know.

Evansmom · Sep 3, 2007