Who knows?

Kelli · Jul 15, 2008

I was always open about it but I did get tired of everyone asking me "Oh, how are you feeling?" There is so much more to me than CF. So I got annoyed w/that.
I had to go in the hospital once for 3 weeks and when I came back my boss was a complete b*tch. So I asked her privately what the deal was, what the problem was and she was never honest, she just said "I'm under a lot of stress"....well that is no reason to treat me like crap. So I ended up leaving after I gave it a good try to have it work out. She's just psychotic anyway!
Now my boss is my husband so I tell HIM what's up. hehehehe
Good luck and yes, once one person knows, everyone knows.

Kelli

Kelli · Jul 15, 2008

I was always open about it but I did get tired of everyone asking me "Oh, how are you feeling?" There is so much more to me than CF. So I got annoyed w/that.
I had to go in the hospital once for 3 weeks and when I came back my boss was a complete b*tch. So I asked her privately what the deal was, what the problem was and she was never honest, she just said "I'm under a lot of stress"....well that is no reason to treat me like crap. So I ended up leaving after I gave it a good try to have it work out. She's just psychotic anyway!
Now my boss is my husband so I tell HIM what's up. hehehehe
Good luck and yes, once one person knows, everyone knows.

Kelli

Kelli · Jul 15, 2008

I was always open about it but I did get tired of everyone asking me "Oh, how are you feeling?" There is so much more to me than CF. So I got annoyed w/that.
I had to go in the hospital once for 3 weeks and when I came back my boss was a complete b*tch. So I asked her privately what the deal was, what the problem was and she was never honest, she just said "I'm under a lot of stress"....well that is no reason to treat me like crap. So I ended up leaving after I gave it a good try to have it work out. She's just psychotic anyway!
Now my boss is my husband so I tell HIM what's up. hehehehe
Good luck and yes, once one person knows, everyone knows.

Kelli

Kelli · Jul 15, 2008

I was always open about it but I did get tired of everyone asking me "Oh, how are you feeling?" There is so much more to me than CF. So I got annoyed w/that.
I had to go in the hospital once for 3 weeks and when I came back my boss was a complete b*tch. So I asked her privately what the deal was, what the problem was and she was never honest, she just said "I'm under a lot of stress"....well that is no reason to treat me like crap. So I ended up leaving after I gave it a good try to have it work out. She's just psychotic anyway!
Now my boss is my husband so I tell HIM what's up. hehehehe
Good luck and yes, once one person knows, everyone knows.

Kelli

Kelli · Jul 15, 2008

I was always open about it but I did get tired of everyone asking me "Oh, how are you feeling?" There is so much more to me than CF. So I got annoyed w/that.
 I had to go in the hospital once for 3 weeks and when I came back my boss was a complete b*tch. So I asked her privately what the deal was, what the problem was and she was never honest, she just said "I'm under a lot of stress"....well that is no reason to treat me like crap. So I ended up leaving after I gave it a good try to have it work out. She's just psychotic anyway!
 Now my boss is my husband so I tell HIM what's up. hehehehe
 Good luck and yes, once one person knows, everyone knows.
 
 Kelli

PeteRose · Jul 15, 2008

I was always open about my CF. When I got my last job before I would accept it I asked them to check to make sure that I would be covered by there insurance (risky I know, but I had to find out). It was a really big Fortune 500 company and they could not have been nicer to me. I made sure that everyone knew so that #1 fundraising was easier, #2 no one freaked out when I coughed constantly. I have no problems with people knowing about my CF, it is part of who I am, if they cannot accept it then I really don't have time for them. In fact my license plates are "end cf". I have been on disablity now for 4 years, but I still make sure that people know and almost all of the people that I used to work with still donate to my Great Strides walk.

Rosie 47 w/cf

PeteRose · Jul 15, 2008

I was always open about my CF. When I got my last job before I would accept it I asked them to check to make sure that I would be covered by there insurance (risky I know, but I had to find out). It was a really big Fortune 500 company and they could not have been nicer to me. I made sure that everyone knew so that #1 fundraising was easier, #2 no one freaked out when I coughed constantly. I have no problems with people knowing about my CF, it is part of who I am, if they cannot accept it then I really don't have time for them. In fact my license plates are "end cf". I have been on disablity now for 4 years, but I still make sure that people know and almost all of the people that I used to work with still donate to my Great Strides walk.

Rosie 47 w/cf

PeteRose · Jul 15, 2008

I was always open about my CF. When I got my last job before I would accept it I asked them to check to make sure that I would be covered by there insurance (risky I know, but I had to find out). It was a really big Fortune 500 company and they could not have been nicer to me. I made sure that everyone knew so that #1 fundraising was easier, #2 no one freaked out when I coughed constantly. I have no problems with people knowing about my CF, it is part of who I am, if they cannot accept it then I really don't have time for them. In fact my license plates are "end cf". I have been on disablity now for 4 years, but I still make sure that people know and almost all of the people that I used to work with still donate to my Great Strides walk.

Rosie 47 w/cf

PeteRose · Jul 15, 2008

I was always open about my CF. When I got my last job before I would accept it I asked them to check to make sure that I would be covered by there insurance (risky I know, but I had to find out). It was a really big Fortune 500 company and they could not have been nicer to me. I made sure that everyone knew so that #1 fundraising was easier, #2 no one freaked out when I coughed constantly. I have no problems with people knowing about my CF, it is part of who I am, if they cannot accept it then I really don't have time for them. In fact my license plates are "end cf". I have been on disablity now for 4 years, but I still make sure that people know and almost all of the people that I used to work with still donate to my Great Strides walk.

Rosie 47 w/cf

PeteRose · Jul 15, 2008

I was always open about my CF. When I got my last job before I would accept it I asked them to check to make sure that I would be covered by there insurance (risky I know, but I had to find out). It was a really big Fortune 500 company and they could not have been nicer to me. I made sure that everyone knew so that #1 fundraising was easier, #2 no one freaked out when I coughed constantly. I have no problems with people knowing about my CF, it is part of who I am, if they cannot accept it then I really don't have time for them. In fact my license plates are "end cf". I have been on disablity now for 4 years, but I still make sure that people know and almost all of the people that I used to work with still donate to my Great Strides walk.
 
 Rosie 47 w/cf

Momtana · Jul 15, 2008

you can tell a CFer is in the office by her cough <img src="i/expressions/face-icon-small-smile.gif" border="0">
Everyone at my work knows - they were part of my life when I was diagnosed and for those challenging years before we found out. I am an educator and am happy to help other people learn more about CF, treatment, variability in disease (they want to know why I am so old with CF)etc.

Momtana · Jul 15, 2008

you can tell a CFer is in the office by her cough <img src="i/expressions/face-icon-small-smile.gif" border="0">
Everyone at my work knows - they were part of my life when I was diagnosed and for those challenging years before we found out. I am an educator and am happy to help other people learn more about CF, treatment, variability in disease (they want to know why I am so old with CF)etc.

Momtana · Jul 15, 2008

you can tell a CFer is in the office by her cough <img src="i/expressions/face-icon-small-smile.gif" border="0">
Everyone at my work knows - they were part of my life when I was diagnosed and for those challenging years before we found out. I am an educator and am happy to help other people learn more about CF, treatment, variability in disease (they want to know why I am so old with CF)etc.

Momtana · Jul 15, 2008

you can tell a CFer is in the office by her cough <img src="i/expressions/face-icon-small-smile.gif" border="0">
Everyone at my work knows - they were part of my life when I was diagnosed and for those challenging years before we found out. I am an educator and am happy to help other people learn more about CF, treatment, variability in disease (they want to know why I am so old with CF)etc.

Momtana · Jul 15, 2008

you can tell a CFer is in the office by her cough <img src="i/expressions/face-icon-small-smile.gif" border="0">
 Everyone at my work knows - they were part of my life when I was diagnosed and for those challenging years before we found out. I am an educator and am happy to help other people learn more about CF, treatment, variability in disease (they want to know why I am so old with CF)etc.

kmaried · Jul 15, 2008

Hi guys,

I've recently really begun to consider this issue. No one at my company knows except for my fiance (ha, i should hope - but he's in a completely different dept), and two of my close friends here. I've worked at a Fortune 500 company for almost 5 years now.

To most of my co-workers, I am this skinny, coughing hard-working enigma... Basically, when I started I did a rotation program (3 months each in 5 areas). I didn't want to tell a boss every 3 months, so kept it to myself. In doing so, I spun such a web (uhh... I don't know why I cough... allergies/asthma... no, nothing seems to really help...), that now it's hard to 'come clean'.

I'm hesitant about it anyway -- I started here out of college with career ambitions -- I don't want people hesitant to 'invest time' in me, or not give me projects since I seemed like I was coughing a lot that day. I want to make those decisions myself. I went on a business trip to Singapore and Australia - it was a whirlwind, a great experience, and it probably wasn't great for my health - but I can almost guarantee that if my boss knew about my CF (and the # of meds in my suitcase!!), he wouldn't have recommended me for the trip.

We hired a new employee who immediately went out on medical leave recently - my boss (in jest) was saying how we need to have a medical screening on all new hires from now on... I understand his obvious joking, but it's things like that that make you think twice...

That all being said, after nearly five years of covering it up, I'm exhausted!! (and probably beginning to appear suspicious with all of these appointments...) I've seriously considered just telling my boss -- he has to understand why I've kept it to myself in the past. I think I'm more confident now than I was out of college - where I was unsure about my ability to even hold a full time job - and I'm more like Piper now... I'm proud of my work especially given my obstacles!!

Kris

kmaried · Jul 15, 2008

Hi guys,

I've recently really begun to consider this issue. No one at my company knows except for my fiance (ha, i should hope - but he's in a completely different dept), and two of my close friends here. I've worked at a Fortune 500 company for almost 5 years now.

To most of my co-workers, I am this skinny, coughing hard-working enigma... Basically, when I started I did a rotation program (3 months each in 5 areas). I didn't want to tell a boss every 3 months, so kept it to myself. In doing so, I spun such a web (uhh... I don't know why I cough... allergies/asthma... no, nothing seems to really help...), that now it's hard to 'come clean'.

I'm hesitant about it anyway -- I started here out of college with career ambitions -- I don't want people hesitant to 'invest time' in me, or not give me projects since I seemed like I was coughing a lot that day. I want to make those decisions myself. I went on a business trip to Singapore and Australia - it was a whirlwind, a great experience, and it probably wasn't great for my health - but I can almost guarantee that if my boss knew about my CF (and the # of meds in my suitcase!!), he wouldn't have recommended me for the trip.

We hired a new employee who immediately went out on medical leave recently - my boss (in jest) was saying how we need to have a medical screening on all new hires from now on... I understand his obvious joking, but it's things like that that make you think twice...

That all being said, after nearly five years of covering it up, I'm exhausted!! (and probably beginning to appear suspicious with all of these appointments...) I've seriously considered just telling my boss -- he has to understand why I've kept it to myself in the past. I think I'm more confident now than I was out of college - where I was unsure about my ability to even hold a full time job - and I'm more like Piper now... I'm proud of my work especially given my obstacles!!

Kris

kmaried · Jul 15, 2008

Hi guys,

I've recently really begun to consider this issue. No one at my company knows except for my fiance (ha, i should hope - but he's in a completely different dept), and two of my close friends here. I've worked at a Fortune 500 company for almost 5 years now.

To most of my co-workers, I am this skinny, coughing hard-working enigma... Basically, when I started I did a rotation program (3 months each in 5 areas). I didn't want to tell a boss every 3 months, so kept it to myself. In doing so, I spun such a web (uhh... I don't know why I cough... allergies/asthma... no, nothing seems to really help...), that now it's hard to 'come clean'.

I'm hesitant about it anyway -- I started here out of college with career ambitions -- I don't want people hesitant to 'invest time' in me, or not give me projects since I seemed like I was coughing a lot that day. I want to make those decisions myself. I went on a business trip to Singapore and Australia - it was a whirlwind, a great experience, and it probably wasn't great for my health - but I can almost guarantee that if my boss knew about my CF (and the # of meds in my suitcase!!), he wouldn't have recommended me for the trip.

We hired a new employee who immediately went out on medical leave recently - my boss (in jest) was saying how we need to have a medical screening on all new hires from now on... I understand his obvious joking, but it's things like that that make you think twice...

That all being said, after nearly five years of covering it up, I'm exhausted!! (and probably beginning to appear suspicious with all of these appointments...) I've seriously considered just telling my boss -- he has to understand why I've kept it to myself in the past. I think I'm more confident now than I was out of college - where I was unsure about my ability to even hold a full time job - and I'm more like Piper now... I'm proud of my work especially given my obstacles!!

Kris

kmaried · Jul 15, 2008

Hi guys,

I've recently really begun to consider this issue. No one at my company knows except for my fiance (ha, i should hope - but he's in a completely different dept), and two of my close friends here. I've worked at a Fortune 500 company for almost 5 years now.

To most of my co-workers, I am this skinny, coughing hard-working enigma... Basically, when I started I did a rotation program (3 months each in 5 areas). I didn't want to tell a boss every 3 months, so kept it to myself. In doing so, I spun such a web (uhh... I don't know why I cough... allergies/asthma... no, nothing seems to really help...), that now it's hard to 'come clean'.

I'm hesitant about it anyway -- I started here out of college with career ambitions -- I don't want people hesitant to 'invest time' in me, or not give me projects since I seemed like I was coughing a lot that day. I want to make those decisions myself. I went on a business trip to Singapore and Australia - it was a whirlwind, a great experience, and it probably wasn't great for my health - but I can almost guarantee that if my boss knew about my CF (and the # of meds in my suitcase!!), he wouldn't have recommended me for the trip.

We hired a new employee who immediately went out on medical leave recently - my boss (in jest) was saying how we need to have a medical screening on all new hires from now on... I understand his obvious joking, but it's things like that that make you think twice...

That all being said, after nearly five years of covering it up, I'm exhausted!! (and probably beginning to appear suspicious with all of these appointments...) I've seriously considered just telling my boss -- he has to understand why I've kept it to myself in the past. I think I'm more confident now than I was out of college - where I was unsure about my ability to even hold a full time job - and I'm more like Piper now... I'm proud of my work especially given my obstacles!!

Kris

kmaried · Jul 15, 2008

Hi guys,
 
 I've recently really begun to consider this issue. No one at my company knows except for my fiance (ha, i should hope - but he's in a completely different dept), and two of my close friends here. I've worked at a Fortune 500 company for almost 5 years now.
 
 To most of my co-workers, I am this skinny, coughing hard-working enigma... Basically, when I started I did a rotation program (3 months each in 5 areas). I didn't want to tell a boss every 3 months, so kept it to myself. In doing so, I spun such a web (uhh... I don't know why I cough... allergies/asthma... no, nothing seems to really help...), that now it's hard to 'come clean'.
 
 I'm hesitant about it anyway -- I started here out of college with career ambitions -- I don't want people hesitant to 'invest time' in me, or not give me projects since I seemed like I was coughing a lot that day. I want to make those decisions myself. I went on a business trip to Singapore and Australia - it was a whirlwind, a great experience, and it probably wasn't great for my health - but I can almost guarantee that if my boss knew about my CF (and the # of meds in my suitcase!!), he wouldn't have recommended me for the trip.
 
 We hired a new employee who immediately went out on medical leave recently - my boss (in jest) was saying how we need to have a medical screening on all new hires from now on... I understand his obvious joking, but it's things like that that make you think twice...
 
 That all being said, after nearly five years of covering it up, I'm exhausted!! (and probably beginning to appear suspicious with all of these appointments...) I've seriously considered just telling my boss -- he has to understand why I've kept it to myself in the past. I think I'm more confident now than I was out of college - where I was unsure about my ability to even hold a full time job - and I'm more like Piper now... I'm proud of my work especially given my obstacles!!
 
 Kris

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