Your FEV1 and pregnancy

M

my65roses4me

New member
I have a personal questions to ask all of you cf mommies.
I know diff mutations can affect your overall health in general.

I was noticing that all of your FEV1's are pretty decent. I was wondering if you all would be willing to share what mutations you have so I can see the difference in the affects your pregnancy has had on you. I am planning to conceive in the near future (for now im just charting my cycles) and am doing my homework. I am a double DeltaF508.

Thanks in advance for your willingness to share.
 
M

my65roses4me

New member
I have a personal questions to ask all of you cf mommies.
I know diff mutations can affect your overall health in general.

I was noticing that all of your FEV1's are pretty decent. I was wondering if you all would be willing to share what mutations you have so I can see the difference in the affects your pregnancy has had on you. I am planning to conceive in the near future (for now im just charting my cycles) and am doing my homework. I am a double DeltaF508.

Thanks in advance for your willingness to share.
 
M

my65roses4me

New member
I have a personal questions to ask all of you cf mommies.
I know diff mutations can affect your overall health in general.

I was noticing that all of your FEV1's are pretty decent. I was wondering if you all would be willing to share what mutations you have so I can see the difference in the affects your pregnancy has had on you. I am planning to conceive in the near future (for now im just charting my cycles) and am doing my homework. I am a double DeltaF508.

Thanks in advance for your willingness to share.
 
T

tara

New member
I posted earlier on this thread regarding my FEV1 and pregnancy. I am double deltaF508. My current baseline FEV1 is 48% and I feel pretty good!

Tara
 
T

tara

New member
I posted earlier on this thread regarding my FEV1 and pregnancy. I am double deltaF508. My current baseline FEV1 is 48% and I feel pretty good!

Tara
 
T

tara

New member
I posted earlier on this thread regarding my FEV1 and pregnancy. I am double deltaF508. My current baseline FEV1 is 48% and I feel pretty good!

Tara
 
L

LouLou

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i>

My FEV1 is about 82% currently and I am double delta F508.



Leah 26 w/CF</end quote></div>


Please make a post regarding your FEV1 and your pregnancy as this post was intended.
 
L

LouLou

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i>

My FEV1 is about 82% currently and I am double delta F508.



Leah 26 w/CF</end quote></div>


Please make a post regarding your FEV1 and your pregnancy as this post was intended.
 
L

LouLou

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i>

My FEV1 is about 82% currently and I am double delta F508.



Leah 26 w/CF</end quote></div>


Please make a post regarding your FEV1 and your pregnancy as this post was intended.
 
A

AnD

New member
Just a side note- I think one's experience with being listed as "high risk" also depends a lot on the doctor. I was considered high risk, but my ob understood that we wanted no extra tests (especially ones that had any kind of risk with increasing miscarriage), and was totally on board with not doing a c-section unless absolutely necessary for me or our baby, as he knew how much harder it would be on me. I was also his first cf patient, but he continually talked to my cf doctors and found out what he needed to to take care of us and did a good job- and has gotten more cf patients since me (and one not long after I started with him), even though the hospital isn't the one the cf clinic is affiliated with- it is just a really wonderful hospital to have a baby and he is a great dr. in a great group! <img src="i/expressions/face-icon-small-wink.gif" border="0">

It also meant that when I called (at any hour) with a problem (baby hasn't moved for "x" # of hours, etc.) that I went straight to the floor (no ER) and was admitted for monitoring immediately, and the floor nurses were there looking for me when I got there. That was very reassuring and helped ease my stress.

Oh, and my FEV was around 68%-70% if I remember right prepregnancy,
got down to 58% due to a cold and the usual pregnancy drop;
stayed around there until this past year (3 years post pregnancy), where it went back up to 66% at my last appointment.
 
A

AnD

New member
Just a side note- I think one's experience with being listed as "high risk" also depends a lot on the doctor. I was considered high risk, but my ob understood that we wanted no extra tests (especially ones that had any kind of risk with increasing miscarriage), and was totally on board with not doing a c-section unless absolutely necessary for me or our baby, as he knew how much harder it would be on me. I was also his first cf patient, but he continually talked to my cf doctors and found out what he needed to to take care of us and did a good job- and has gotten more cf patients since me (and one not long after I started with him), even though the hospital isn't the one the cf clinic is affiliated with- it is just a really wonderful hospital to have a baby and he is a great dr. in a great group! <img src="i/expressions/face-icon-small-wink.gif" border="0">

It also meant that when I called (at any hour) with a problem (baby hasn't moved for "x" # of hours, etc.) that I went straight to the floor (no ER) and was admitted for monitoring immediately, and the floor nurses were there looking for me when I got there. That was very reassuring and helped ease my stress.

Oh, and my FEV was around 68%-70% if I remember right prepregnancy,
got down to 58% due to a cold and the usual pregnancy drop;
stayed around there until this past year (3 years post pregnancy), where it went back up to 66% at my last appointment.
 
A

AnD

New member
Just a side note- I think one's experience with being listed as "high risk" also depends a lot on the doctor. I was considered high risk, but my ob understood that we wanted no extra tests (especially ones that had any kind of risk with increasing miscarriage), and was totally on board with not doing a c-section unless absolutely necessary for me or our baby, as he knew how much harder it would be on me. I was also his first cf patient, but he continually talked to my cf doctors and found out what he needed to to take care of us and did a good job- and has gotten more cf patients since me (and one not long after I started with him), even though the hospital isn't the one the cf clinic is affiliated with- it is just a really wonderful hospital to have a baby and he is a great dr. in a great group! <img src="i/expressions/face-icon-small-wink.gif" border="0">

It also meant that when I called (at any hour) with a problem (baby hasn't moved for "x" # of hours, etc.) that I went straight to the floor (no ER) and was admitted for monitoring immediately, and the floor nurses were there looking for me when I got there. That was very reassuring and helped ease my stress.

Oh, and my FEV was around 68%-70% if I remember right prepregnancy,
got down to 58% due to a cold and the usual pregnancy drop;
stayed around there until this past year (3 years post pregnancy), where it went back up to 66% at my last appointment.
 
H

hopesiris

Guest
pre-pregnancy- believed to be almost 90% (hadn't been checked in several years so I'm not sure)
at 21 weeks pregnant-82%
post pregnancy-we'll see, I'm due Oct. 1

I was told that a drop in lung capacity is normal during pregnancy and it may drop more before I deliver.
 
H

hopesiris

Guest
pre-pregnancy- believed to be almost 90% (hadn't been checked in several years so I'm not sure)
at 21 weeks pregnant-82%
post pregnancy-we'll see, I'm due Oct. 1

I was told that a drop in lung capacity is normal during pregnancy and it may drop more before I deliver.
 
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