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Jared, I don't know why you write with such venom. Your words carry contempt and unrelenting cynicism. I have spent a few minutes reading the poetry on your sight and I have to say that I am impressed. In fact I am really impressed, and moved. Those words are heartfelt and compassionate, but...

It doesnt matter if you can walk half a mile or run 10 marathons, I believe that it is important to fight the cause and improve our health as much as we can. We should encourage physical exercise among all Cfers, no matter how much or how little can be achieved. No, I was not offended by...

Yes yes, I appreciate what you are saying Kathy. I am not suggesting that playing sport and doing exercise prevents people from having problems with CF. That would be ludicrous. What I am suggesting, and I think I did this quite clearly, is that playing sport and doing regular vigorous...

You're right Emily! Thanks for your enlightening words. Rob 24 wcf

Stevehof thats awesome! Isnt the feeling of being fit the best in the world!? Lance, to be honest mate, I rarely go to the hospital so I have no way of knowing what my scores are. Although I did go in December for a voluntary check up (because it had been 2 years since my last one) and they...

Awesome, thanks Julie. Yes, I am serious, but my first thoughts were to find out if people thought the idea was a good one and if the charity could prove useful in some ways. It seems most people think it could work, and this is the first step. However, as much as I am determined to see how...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Mockingbird</b></i><br>And, pointing at Rob personally, if this forum distresses you so much because we're all so rude, then why do you keep coming back? I don't know about you, but whenever I go outside, I usually don't see everyone standing...

To be honest I have no idea what my PFTs are. Call me ignorant on this note! Sorry, Rob

I have heard differing opinions on this one, but I wanted to ask... Is Cf a disease where your condition can change rapidly? I am in excellent health now, but I am not sure if my health is likely to go downhill suddenly at some stage. What precautions should I take to avoid this sudden change...

I agree with a few of the previous posts on here, in that there should be a pathway in which a person doing a report on CF could go to a section entitled 'what is cf?'. However, isnt this just what they have in the CFFoundation, CFTrust and just about every other CF related website out there...

Hey, just wondered if we have any people with Cf here who would consider themselves 'athletes'? I am 24 wcf and just ran the London Marathon in April, and after having got in touch with some other athletes with Cf across the world (some who have done marathons, triathlons and Ironman), I was...

Hey, just wondered if we have any people with Cf here who would consider themselves 'athletes'? I am 24 wcf and just ran the London Marathon in April, and after having got in touch with some other athletes with Cf across the world (some who have done marathons, triathlons and Ironman), I was...

Hey, just wondered if we have any people with Cf here who would consider themselves 'athletes'? I am 24 wcf and just ran the London Marathon in April, and after having got in touch with some other athletes with Cf across the world (some who have done marathons, triathlons and Ironman), I was...

I had read the last few weeks several people complain about being bashed for asking questions, and I guess it annoys me. I read one recently who wrote that because of this they always post anonymously. What a shame for someone to feel they have to hide their own identity in order to remain...

Over the last few weeks and months I have become increasingly disgruntled, annoyed and embarrassed at what seems to be rising number of complaints and negative comments that this forum receives by new members or anonymous posters. I am sure many of us have read them as the ill feeling has...

Wow, there are some wonderful stories on this thread, and I have enjoyed reading each one (twice!). Like so many of you (either with CF or the parents), I feel incredibly lucky in all that I am and all that I have. Having CF has only made me realise how wonderful and precious life is. Because...

I have wanted to reply to this thread on a number of occassions, but resisted each time because I believe it is ultimately futile to argue about religion. But, perhaps now I am a bit more calm and collected and wont offend anyone. But alas, this is the nature of debate! We are all entitled to...

We, and I mean absolutely everyone, I believe, is fighting for the same thing here. We all want a cure for CF, just like we want a cure for cancer. I hear 1 in 3 people have been touched by cancer (meaning they know someone who had/has it). Chances are that among the hundreds/thousands of...

Hey Maral, its all good. I was just curious as to what people thought of being labelled. No need to apologise (again!). Good luck with the project. Rob

Hey all, I know this thread was initially asking questions about talking to your child about CF but I can´t help but respond to another topic touched on here a few days ago. The person with the high school project called CF a 'disorder' and to be honest my first reaction (along with Julie's as...