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I just received my son's 2nd mutation. His first one they found was G551D. This mutation was every where on the internet. I found lots of stuff on it. But then there is his 2nd mutation and I cannot locate it anywhere. It is 2585delT. Told you it seemed latin <img...

I just received my son's 2nd mutation. His first one they found was G551D. This mutation was every where on the internet. I found lots of stuff on it. But then there is his 2nd mutation and I cannot locate it anywhere. It is 2585delT. Told you it seemed latin <img...

I just received my son's 2nd mutation. His first one they found was G551D. This mutation was every where on the internet. I found lots of stuff on it. But then there is his 2nd mutation and I cannot locate it anywhere. It is 2585delT. Told you it seemed latin <img...

Hi LemonstoLemonade! I was completely wrapped up into my career prior to having my son. I was the chief probation officer over two major suburbs. I was a work-a-holic. Then 3 weeks prior to my due date and not ever imagining that I would have a baby who had a chronic disease, I resigned from...

Hi LemonstoLemonade! I was completely wrapped up into my career prior to having my son. I was the chief probation officer over two major suburbs. I was a work-a-holic. Then 3 weeks prior to my due date and not ever imagining that I would have a baby who had a chronic disease, I resigned from...

Hi LemonstoLemonade! I was completely wrapped up into my career prior to having my son. I was the chief probation officer over two major suburbs. I was a work-a-holic. Then 3 weeks prior to my due date and not ever imagining that I would have a baby who had a chronic disease, I resigned from...

Thank you Melissa for putting a better link to the article on the forum. I struggled a little bit with the link...so I appreciate it! Melissa 1 son Caleb 13mths w/CF

Hi All! There was an article in the IndyStar paper regarding a 25year-old CFer who just had the first Lung-Pancreas transplant. I tried to copy it and instead you have to purchase archived material. But if anyone is interested here is the link: <a target=_blank...

Hi All! There was an article in the IndyStar paper regarding a 25year-old CFer who just had the first Lung-Pancreas transplant. I tried to copy it and instead you have to purchase archived material. But if anyone is interested here is the link: <a target=_blank...

Hi Carol! I am excited for your family. My son just turned a year and I started a Disney savings account when he was just weeks old. Of course my son is only a year so I obviously will not be much help with Disney and CF. However, from my past experience I would recommend purchasing a...

My user name is for my only child, Caleb. He is so very special to me. And I love him soooo much. Then the 0802 is his birthday, August 2nd. He has shown me a part of life that I never knew existed. He is strong, loveable, and happy all the time...while every moment he is fighting the war...

Thank you Emily for providing these links. I have had several questions answered by looking at the links. I just didn't know how to word my questions I had. Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0"> Melissa 1 son Caleb 9mos w/CF 23POUNDS!!

Hi Julie!!! I am so glad to hear that everything is going well for you and Mark. What a blessing to have multiples! I read your posting on maternity clothes and I thought I would just throw my two-cents in. Maternity clothes may seem huge right now...but if you find a good deal pick them up...

I am so confused. I got a blog set up for me...but what is my user id and password? Is it the same when I log in to the forum? Any guidance would be appreciated. Melissa 1 son Caleb 7months

My 7 month old son does very well w/CPT if we put a Baby Einstein DVD on. He doesn't even care that we are pounding on him. Baby Einstein is awesome for therapies and treatments! Melissa 1son Caleb 7months 21 pounds <img src="i/expressions/face-icon-small-smile.gif" border="0">

We have faced the same situation when giving our son (6 months) his breathing treatments. At one point we were doing albuterol, DNAse, and CPT back to back. He would scream like crazy. We have a very similar DVD to the Baby Einstein...It is called Praise Baby. We put that DVD on and he does...

We have faced the same situation when giving our son (6 months) his breathing treatments. At one point we were doing albuterol, DNAse, and CPT back to back. He would scream like crazy. We have a very similar DVD to the Baby Einstein...It is called Praise Baby. We put that DVD on and he does...

All of us are always looking for those magical wipes that will kill those horrible germs (pseudo, staph, etc). Well- I found that Costco's brand "Kirkland" kills a lot of the yucky germs. In one package you get 3 huge containers of wipes, 2 surface cleaning wipes and 1 scrubbing surface wipes...

All of us are always looking for those magical wipes that will kill those horrible germs (pseudo, staph, etc). Well- I found that Costco's brand "Kirkland" kills a lot of the yucky germs. In one package you get 3 huge containers of wipes, 2 surface cleaning wipes and 1 scrubbing surface wipes...

Hi! My son used to get diaper rash really bad after we first started the enzymes and he still does when we have him on antibiotics. The best thing we have found is A&D ointment. Our CF doctor recommended it and it works like a charm. Whenever I see him even have a hint of red I pile the A&D...