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    Dairy products

    PS - 8 months old is pretty young to be ingesting all that dairy, especially since it is one of the most allergy-causing foods. You might want to be cautious. I understood it to be that children under 1 year of age should not be ingestion cow's milk (and I thought that included the related dairy...
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    Dairy products

    It is true that dairy does not (or if so, rarely) cause increased mucus, BUT it does cause a slimy coating in the throat and mouth that can cause the body to FEEL congested and feel as though there is a need to cough, but that the cough is not accomplishing what it should. This is what most...
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    curious

    I don't notice it so much anymore, but I know that my mood change was one of my parents cues when I was a child. It also helped them to assess the severity of whatever was going on.
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    Scars

    I have scars all over the place, not just from CF stuff, but also from being a bit of a daredevil and injuring myself as well as stretch marks from pregnancy. I just wear what I want to wear. Lots of my scars show when I wear tank tops (I usually keep my midriff covered because that's how I feel...
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    Chiropractor

    I love the chiropractor. I have had sinus infections clear up after realigning my neck. Now, a good chiropractor (just like a good doctor) will not promise you a cure-all. My chiropractor put it this way: If a misalignment is causing illness, aligning it will cure it. If something else is...
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    Life Insurance? And telling your kids that your sick w/cf?

    I agree with Emily. When your daughter asks, answer her. Answer on her level the question that she asks. Don't give her more than she asks for and don't go over her head. Remember also that you know all this extra stuff that makes CF scary for you, but knowing you have CF, for her, is just like...
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    Marriage

    Others may or may not agree with this, but I'd say don't get married - at least where government is concerned. We were dealing with this in the Fall and our problem is that we are already married legally and have a child together. So if we were to get divorced, we'd have to deal with custody and...
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    ? for the women

    My husband was NOT tested. When they drew blood fro our daughter at the 48-hour check up for standard tests we asked them to draw enough to be sent for the gene screen. She is negative. Thank you Jesus!One reason we chose not to do the screen (for ourselves) was that  we knew it would only show...
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    Wanting to be Pregnant, Just for the Sake of Being Pregnant?

    Obviously, one has to weigh the realities of the desire to be pregnant rationally. We know (or at least most of us, but I am awestruck at the girls who make the news who do NOT) htat pregnancy is a means to an end. The end of course being motherhood, caring for a child for the entirety of your...
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    When were you dignosed with CF?

    7 months old. Failure to thrive. My aunt knew a lady whose baby had been diagnosed and had all the same symptoms as me. She told my mom to get me tested and I was off the charts - no second testing for me. I too was not looking like I was going to make it, but here I am! A 25 year old, married...
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    That new Burger King Sandwich and the Today Show

    730 calories? BAH! There's a sandwich you can get at Bennigan's and a few other restaurants called a Monte Cristo that has 1000 calories PER SLICE! There are usually two slices. It's cheeses and ham deep fried in bread and topped with powdered sugar. When I worked there I used to eat one a day...
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    Hey Julie! (wife to Mark 24 w/CF)

    Can you email me privately? <A href="mailto:jaloughlin3@sbcglobal.net">jaloughlin3@sbcglobal.net</A> I have some questions about CF male fertility and treatments. I know you put up some links which I will be checking into also. Thanks.
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    Having more children?

    Thank you Rosie, for speaking up! WOW! Your parents must be incredible people! That's awesome. I would also like to contribute my 2 cents. I have CF and life at times has been hard, but I still want to live it. I cannot imagine my parents having decided that I might suffer too much so therefore...
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    Homeschooling

    I was not homeschooled growing up, but I plan to homeschool my daughter. It is I who have CF, not my daughter. I did not know many homeschoolers growing up and just assumed that I wouldn't like it, but during High School I had to go on homebound to catch up after a really difficult previous...
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    Working full time

    Hey Sarah. The first thing that comes to mind for me is weighing the benefits versus the sacrifices. I know you are a mommy of a young baby. Who is taking care of her while you work? Are you paying for child care? After paying for child care and replacing the money that you would have recieved...
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    this is alittle presonal

    BTW, welcome! I see you're a new member. Congradulations on being a mama! This may sound mercenary, but would you email me and tell me about your pregnancy and birth or adoption. That's one of the things I do for the community. I run a website (<A...
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    this is alittle presonal

    I've struggled with that before. Especially night time was hard for me. It seemed as soon as I got anywhere near horizontal - here it came! Sometimes I coughed so hard I would choke and gag and still would not have gotten any relief. A few things have helped me. 1) Adding pulmozyme to one...
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    Tired of Doctor's mistakes??

    When I was pregnant with my daughter, we had several misshaps. First, I had a glucose test that appeared high - but they hadn't told me I wasn't supposed to eat. So, even though the seubsequent tests were fine - they labelled my chart with "high risk" and bumped me out of family practice. Then...
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    How CF affects a family...

    Well, Julie and Emily answered the poster child and pseudomonas questions pretty well. So I'll just answer what I like to do for fun. Honestly, I like to read and write. I had a lot of fun working on the website. I always end up doing teaching stuff in my spare time. I don't try to. That's just...
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    Photos

    Thank you so much Princess!
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