who are you in a nut shell
Haven't posted here in ages, but was sitting here in the hospital doped up on percocet and remembered the site
I go by S. here on the forums, 30 years old, male, live with CF in Newport Beach, CA...live with my girlfriend...and 2 1/2 year old daughter...and soon to...
Good news! S. should be comming home tomorrow!! I am so excited<img src="i/expressions/face-icon-small-smile.gif" border="0"> BIG things have happened since he has been away. Our daughter rolled over for the first time! I didn't even get to see it, my sister did! Months of waiting and waiting...
Hi, it's Rene'e. S. is doing pretty good! I went to visit him tonight. He told me that he may be comming home as early as Thursday! I think he is going to be comming home on the IV colistin for a couple of weeks. He said it's only a twice a day treatment (morning and night). That in itself is...
Hi Julie! It's S.'s girlfriend Rene'e. He is going to laugh that I have completely taken over his little chat room since he has been in the hospital. I find it very comforting though. Not a lot of people really understand what this mess is about, and loving his so much and being a new mom....he...
Thank all of you for your kind words and support. I will be visiting him tonight and will let him know you all are thinking of him<img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi<img src="i/expressions/face-icon-small-smile.gif" border="0">
No, the last time he gave a sputum (?) sample, it came back with a "Bug" that his doctor couldn't identify...the first sample was lost, and when they took another two weeks later it was still present. He said the has only had one...
Hi, this is S.'s girlfriend Rene'e. He is in the hospital and the doctor has put him on IV colistin...so far he is hating the way he feels. Have any of you been on this drug before? How was it for you? Thank you so much!
Rene'e
guys, this is so obviously a spam post! geez...
come on, their first post is pushing to join a company, not to mention the fact that it reads pretty much like a form letter, basically just "enter disease here".
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>
It actually works on a cellular, DNA level, doesn't it? So, it would not really do anything to produce an infection, but instead works to restructure the DNA make-up of faulty "cells" in your lungs and make the...
I was in a study back in the day for pulmozyme(i think it was that one), probably about 14 years ago or so. Well, I had never really been sick a day in my life from CF before that study and just a few months after finishing it I was in the hospital and on my first round of I.V.'s. The thought...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>paranoia</b></i>
<b>S</b> Please dont post unless pertinent to the conversation.</end quote></div>
it is pertinent, i'm telling you that long posts are a pain...i'm sure i'm not the only one who looked at it and decided to pass on...
yeah, drugs for me, too. i usually get a couple vicodin when going to get my picc in and just keep requesting it afterwards. other stuff i request is ativan to relax me during the day and ambien at night. so i just basically sleep and chill most of my hospital stay...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
The stupidity here is astounding</end quote></div>
wow, thanks for having the balls to say that while hiding behind the "anonymous" tag! are you raising your son to be a coward like you?
The clinic i go to is...
surfing is just all around great exercise, the cardio is amazing. so it's not just because the cf surfers are near salt water, but the fact that they are working their bodies and lungs really hard.
<div class="FTQUOTE"><begin quote>Does anyone else have information about drug use and vertigo? </end quote></div>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.vestibular.org">vestibular.org</a>
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