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  1. S

    Who are you in a nut shell

    who are you in a nut shell Haven't posted here in ages, but was sitting here in the hospital doped up on percocet and remembered the site I go by S. here on the forums, 30 years old, male, live with CF in Newport Beach, CA...live with my girlfriend...and 2 1/2 year old daughter...and soon to...
  2. S

    S. is in the Hospital

    Good news! S. should be comming home tomorrow!! I am so excited<img src="i/expressions/face-icon-small-smile.gif" border="0"> BIG things have happened since he has been away. Our daughter rolled over for the first time! I didn't even get to see it, my sister did! Months of waiting and waiting...
  3. S

    S. is in the Hospital

    Hi, it's Rene'e. S. is doing pretty good! I went to visit him tonight. He told me that he may be comming home as early as Thursday! I think he is going to be comming home on the IV colistin for a couple of weeks. He said it's only a twice a day treatment (morning and night). That in itself is...
  4. S

    S. is in the Hospital

    Hi Julie! It's S.'s girlfriend Rene'e. He is going to laugh that I have completely taken over his little chat room since he has been in the hospital. I find it very comforting though. Not a lot of people really understand what this mess is about, and loving his so much and being a new mom....he...
  5. S

    S. is in the Hospital

    Thank all of you for your kind words and support. I will be visiting him tonight and will let him know you all are thinking of him<img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. S

    S. is in the Hospital

    Hi<img src="i/expressions/face-icon-small-smile.gif" border="0"> No, the last time he gave a sputum (?) sample, it came back with a "Bug" that his doctor couldn't identify...the first sample was lost, and when they took another two weeks later it was still present. He said the has only had one...
  7. S

    S. is in the Hospital

    Hi, this is S.'s girlfriend Rene'e. He is in the hospital and the doctor has put him on IV colistin...so far he is hating the way he feels. Have any of you been on this drug before? How was it for you? Thank you so much! Rene'e
  8. S

    This changed her life

    guys, this is so obviously a spam post! geez... come on, their first post is pushing to join a company, not to mention the fact that it reads pretty much like a form letter, basically just "enter disease here".
  9. S

    Why do you do/not do clinical trials for CFF?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i> It actually works on a cellular, DNA level, doesn't it? So, it would not really do anything to produce an infection, but instead works to restructure the DNA make-up of faulty "cells" in your lungs and make the...
  10. S

    Why do you do/not do clinical trials for CFF?

    I was in a study back in the day for pulmozyme(i think it was that one), probably about 14 years ago or so. Well, I had never really been sick a day in my life from CF before that study and just a few months after finishing it I was in the hospital and on my first round of I.V.'s. The thought...
  11. S

    that time of the month...

    oooh, i feel so dirty being in here!
  12. S

    Infected Port??

    especially sinc eit has direct access to the heart.
  13. S

    Intense Discussino Regarding Genetics Not for those with little self esteem

    i think the meaning of life is to not worry what the meaning of life is and to just enjoy the short time we have in this world.
  14. S

    Intense Discussino Regarding Genetics Not for those with little self esteem

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>paranoia</b></i> <b>S</b> Please dont post unless pertinent to the conversation.</end quote></div> it is pertinent, i'm telling you that long posts are a pain...i'm sure i'm not the only one who looked at it and decided to pass on...
  15. S

    Things to do in the hospital.

    yeah, drugs for me, too. i usually get a couple vicodin when going to get my picc in and just keep requesting it afterwards. other stuff i request is ativan to relax me during the day and ambien at night. so i just basically sleep and chill most of my hospital stay...
  16. S

    Intense Discussino Regarding Genetics Not for those with little self esteem

    post was way too long, so i didnt' even read it...i hate long posts.
  17. S

    Article on local CF clinic

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i> The stupidity here is astounding</end quote></div> wow, thanks for having the balls to say that while hiding behind the "anonymous" tag! are you raising your son to be a coward like you? The clinic i go to is...
  18. S

    salt water???

    surfing is just all around great exercise, the cardio is amazing. so it's not just because the cf surfers are near salt water, but the fact that they are working their bodies and lungs really hard.
  19. S

    Migraine

    <div class="FTQUOTE"><begin quote>Does anyone else have information about drug use and vertigo? </end quote></div> <a target=_blank class=ftalternatingbarlinklarge href="http://www.vestibular.org">vestibular.org</a>
  20. S

    Article on local CF clinic

    <b>nonaccreditted</b> is what stands out to me.
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