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Sharon, I bought a potty when Rachel was 16 months old and it became the routine to sit on it before bathtime and at least one other time during the day. She often would urinate on the potty but getting her to move her bowels there was a bit trickier. Eventually I just happened to put her on...

hi, My daughter has been on pulmozyme since before she was 2. It does help. Rachel was hospitalized 5 times before she was 2 and not since just before her 2nd birthday. They put her on it just before her last admission. We always have a problem with getting weight on Rachel. At 2 she LOVED...

My daughter was not diagnosed until she was 9 months, but she was on pregestimil for the first 2 months anyway, because she had some digestive problems (may have been CF related, but we do not know) between 2 and 9 months she was just on regular formula. Once she was diagnosed at 9 months...

Hi Adam,I love the name Kaylee, my friend's daughter is Kaylee too!I know of a few sites with more conversation. If you are a Christian, http://groups.yahoo.com/group/CF_4_Christians is great. If your not into that, http://groups.yahoo.com/group/CFParents is great too! another wonderful site...

Hi,There is a lot of controversy over that life expectancy number. The most recent one that I have heard is 33. That is just an average though and it goes up every few years with the improvements in antibiotics and treatments, as well as improvemnts in transplants. That number also includes...

My daughter is 5 and still takes her enzymes on a spoon of babyfood peaches. I have tried a few things to get her to take the enzymes without opening them up - including hiding them in the peaches and trying to get her to swallow m&m's as practice. For a long time she refused to even try to...

Brittnie,feel free to visit our site too. http://groups.msn.com/teamracheljane My daughter is 5 with Cf and i am happy to answer any questions you hve. you can post questions to me on the site's bulletin board. A brief description of our day would go like this:Get up and get Rachel out of...

Hi we were told a similar thing.We do bronchiodialators, and pulmozyme with the vest, then Tobi afterwards. this way our daughter is opened up to get the Tobi down into her lungs.Andrea

Hi Sunny, when you have no one around that understands it must be very hard. I wanted to suggest a wonderful group to connect to people with CF online. Try http://groups.msn.com/groups/cysticfibrosis2chat even though the people there are mostly North American and European, they will welcome...

I have actually not heard of different cut off numbers anywhere. under 40 is negative, above 60 is positive between 40 and 60 is boarderline. So you child has had 2 boarderline tests and one positive test, I think that it still rule CF IN as a possibility. I would DEMAND Genetic testing for...

The Robitussin DM has guanefissin in it and it helps thin the mucus throughout the body, not just in the lungs. So it should help women with CF conceive by losening the mucus in the reproductive organs.........Andrea

Missy,you can go to www.cff.org and look for CF centers. That way you will get a qualified hospital. I live in Southeastern PA and have 3 centers in 30 min (or less) driving distance, CHOP is where we are seen (it's been voted the best children's hospital in the nation for a few years running)...

Hi,an amnio should tell you if your child has CF. They will take fluid and your blood (to discern between your cells and the baby's cells) and they can look for CF mutations. With out a blood sample of the father, it makes it more dificult to determine if the baby has CF. if the father is a...

Missy,I don't think you are jumping the gun either. I was a wreck before my daughter was tested and so was she! The constant ear infections and pneumonia that she had were terrible. I can really relate to how worried you must be. Diane is right, lots of the asthma symptoms also happen to...

hi,Dea has it right. About 95% of men with CF are sterile. though they can have children through an invitro process. If you are not a carrier but you hubby has CF then you children CAN NOT have CF but they WILL be carriers. if you are a carrier then your children hav a 50% chance of having...

Linda,I am so happy that your little girl is ok! The CF Foundation might be a good one, or you might want to start a team for the Great Strides Walk that they do. go to www.cff.org for more info.Andreamom of Rachel 5 with CF and one on the way

Hi,One thing that strikes me as a possibility for CF is the distended belly before bowel movements. But most people with CF do need enzymes unless they are pancreatic sufficient. (also possible) The carrier testing does not test for all of the mutations just the more common ones. So, if you...

CF effects people of all nationalities. it is just more common in caucasians than most other ethnicities. <img src="i/expressions/face-icon-small-smile.gif" border="0">Andrea

We get up VERY early! My daughter is five and in pre-k 3 mornings a week. We get up pretty early-at least 2 hrs or so before we have to leave for school. Next year though, we will have to be there an hour earlier, so, Rather than 6:45 I guess we will be getting up at 5:45- uuuhhhggg! We...

Hi,It's not really a different form of CF but rather just late diagnosis. Some people with CF are pancreatic sufficient to one degree or another so they get diagnosed with "asthma and allergies" rather than CF. To be safe you and your brother should get sweat tested AND get the genetic test...