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I was wanting to see if anyone else had gotten an email to complete a 20 min online survery for $25... It seemed slightly suspicious because it said when you clicked on the link it could take a while to load but not to click again! Almost like its hacking your computer! Thanks in advance!!

Hey there i was wondering how often everyone does PFT's.. DO you dothem quarterly t every clinic visit.. Or maybe just 2 x a year?? Or even once a year.. Im just wondering because they ask us when we check in at every visit which is every 3 months if we do PFT's then they send us over.. I soo...

Hey there every one!! Sorry that i havent posted in quite some time.. Weve been busy potty training and have gotten it mastered!! Ashton for the past 10 days has had a runny nose and deep nasty cough that he chokes on what he brings up sometimes.. I called our clinic on monday and they said to...

Hey there everyone!! Quick question i (mom of CF'er) use the Benzoyl Peroxide that was sold at wal-mart that is part of a recall because of B cepecia. You can google the recall.. Should i be worried about ashton my 3 year old?? I have also noticed since i started using it the rash/ and or...

Hey there everyone! wanted to let everyone know that Ashton is having his Tonsils and Adenoids removed along with a sinus washout tomorrow morning.. Hopefully it will all go smooth and we will be home tomorrow night! Also ashton is going to be the big THREE YEARS OLD on Thursday! I cant even...

I have a question! How many people on here are experiencing emotional problems with siblings of the kiddo with CF?? My soon to be 8 year old has became very emotional over the last few years since her brother was born? Im having a hard time dealing with it! Like this morning she called me crying...

Well as you all know i have an almost 3 year old with CF.. He hasent been in the hospital in about 1 year and 8 months or soo which is AWESOME.. Well we have been having issues lately with sinuses and are going to the ENT tomorrow he has sever pan sinusitis. Well his nose isnt running hardly at...

Hey there everyone! I posted this on my blog but hoping to get more responses here! Ashton has cultured strep pneumoniae. i think its kind of interesting considering he just got over strep throat.. my clinic says they are not related and we dont need to treat him.. His throat was still a little...

Good Morning everyone I hope everyone is doing fairly well. I want to pick your brain for a few min. Ashton has a child in the same daycare class as him that has Whooping Cough and was in school for 2 days with it in that time she coughed and vomited. i want to know if anyone has delt with...

I have a few questions, Ashton has had a little cough during the day and a major thick light green runny nose. Last night at about 3AM he started coughing this tight cough sometimes it sounded like maybe some mucous. I let him do this for about 45min laying in his room with him and he just...

Hello everyone! I know that i dont post too often but ashton has been coughing a lot lately and ran a slight temp as well.. We had clinic F/U on wednesday last week and they did throat CX. He is so far growing H Flu "which is new to us" and then his Staph that turned into PCN/Methicillin...

Hey there everyone this is kind of off topic but i dont thing anyone would see it in that section.. I am debating on returning to school to get my RN nursing degree and also continuing to work currently as a medical assistant.. Im going to try and do part time school it may take longer but thats...

Hey there everyone this is kind of off topic but i dont thing anyone would see it in that section.. I am debating on returning to school to get my RN nursing degree and also continuing to work currently as a medical assistant.. Im going to try and do part time school it may take longer but thats...

Has anyone ever went camping with their CF'r we have a tent and love to camp in it but im wondering about the smoke?? They also have cabins at the campground.. I was more worried about the smoke from the campfires?? Wasent sure wether i should wait until hes old enough to tell me its bothering...

Just wondering among all of us whether your child goes to daycare, if soo full time or part time.. Or does Grandparents help out either with the part time or keep your kiddos full time... Just a little curious.. we have often thought that ashton even spending part time with his grandparents if...

Do any of you let your kiddos drink vitamin water?? My husband and i have started drinking it since that post i believe in the adult section about it.. I really like it no aftertaste and its good for you!! I was thinking about letting ashton try the Power-c water... its has a 100% of daily Vit C...

Good morning everyone.. As you know i work at a doctors office along with several other people that work at other offices.. Here in the indianapolis/noblesville indiana area were are seeing a late outbreak of the flu... In the past 2 days at another office we are affiliated with there has been...

We had a 3 month follow up clinic yesterday and everything went wonderful... Which i love getting to say!!! Ashton is in the 90% for height and the 75% for weight at 32 lbs!!! I thought he felt heavier!! As for the cough a runny nose his lungs are crystal clear!! I think the vest is doing it s...

Hey there everyone i was wanting to see whether your kiddos take the pill or the liquid form of ursodiol/actigall.. Ashton has started taking his creon really well no choking or anything.. Im thinking of having him switched to the capsule form of his prevacid but i was wondering if anyone had...

Hello everyone, I need some advice.. Well it is Thanksgiving time and it is our turn to go to my in-laws.. Ashton just got put on Septra and increased breathing treatments.. I am a little edgy on whether we should go or not. It is a 3 hour drive so not to bad there.. I was just wondering if...