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I'm looking for anyone who goes to clinic in Phoenix. How do you like it there? The hospital during admit? The docs, the care, aggressiveness etc. Here's why all the questions. My daughter and husband are looking at receiving orders to a new base. One of the possibilities is Luke. I'm also...

I'm looking for anyone who goes to clinic at Jewish National in Denver, Colorado. How do you like it there? The hospital during admit? The docs, the care, aggressiveness etc. Do you live in CO travel there for clinic? If you travel, how does the elevation affect you? Here's why all the...

I'll start by saying, I am majorly anti-smoking. I'll complain about it out loud if I have to walk through it. I'll point it out if someone is standing in front of a doorway. I'll bring it to their attention if they are illiterate or blind and can't see or read the giant no smoking sign they are...

I'm looking for OldTex, from the DFW area. Can't recall if the name has a space or not. I haven't seen him around for a while or I've just missed him. Update: I discovered it was OLD not Big, Tex I was looking for. Thank goodness we can search our old posts on here. It just takes for ever.

I just wanted to say to those of you who knew Anna' was waiting for a second double lung tx that she was called today for her second tx. We are currently at the hospital waiting to go to a room.

I know some of you have switched over from Pancrease MT whatever to the new Pancreaze in what ever dosage of Lipase you need. Some have commented on the package change from the nice lightweight plastic bottle to the heavier glass bottle that comes in yet another package, a box. But has...

This subject was brought up by someone a few months ago when the news first came out that Arizona was cutting lung transplants from their Medicade budget. Thought some may be interested in reading the latest. <a target=_blank class=ftalternatingbarlinklarge...

For those interested but not plugged into the recieving the latest news. <a target=_blank class=ftalternatingbarlinklarge href="http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=530337 ">http://ptct.client.shareholder....cfm?ReleaseID=530337 </a> I received this from PTC...

It was exactly 3 years and one hour ago today that Anna was wheeled away to the OR for her double lung transplant at Stanford. Thank you for your unselfish act to donate your sons organs.

I used to go to the CF Trust website for the UK on a regular basis but hadn't been there in a while. I went to see if they were discussing the volcanic ash cloud and if they were being instructed to take precautions. Anyway... I came across this. Anna says she thinks she saw this on Grey's...

Just wanted to say that Anna's been listed for a second transplant at Cleveland Clinic. What an amazingly huge place.

<img src="i/expressions/heart.gif" border="0"> I just wanted to let everyone know that today, Feb. 14 is <b>Donor Awareness Day</b>. Yes, it happens to fall on Valentine's Day. A day that celebrates love, what a great day for everyone to remember the love a family had for their son, daughter...

Most transplant recipients are probably aware that today is Donor Awareness Day, lets spread the word when people tell you Happy Valentine's Day. Although they probably will never see this... THANK YOU TO MARK'S FAMILY FOR THEIR WONDERFUL GIFT!

I know it is possible to test to see if you are a carrier and I hear it is a pretty costly test. Can anyone tell me about how much it runs or where I would go to find out? The reason I am asking is because way back when my girls were diagnosed the docs told us that my brother-in-law could be...

I hope posting this here will get some responses. We are on a major mission to put on some pounds. Rachel needs to gain some weight. Today we are going to make some brownies but I am wondering if anyone out there has any ideas on boosting them up a little. I know sometimes with a cake mix they...

I know not alot of people are very familiar with the Frequencer. We have been trying to get this for Rachel for some time now. I have finally accomplished that and she received it today! She just happens to have a pft schedueled today so we will see how it goes. We are sure that this will make a...

Hi, Has anyone from the US or Canada been able to get it? Not a trial but actually get it through their insurance or outright purchase? Seems Medicare has the ultimate power on coding for new DME equipment and has lumped it into a class of "percussors" which ultimately pays not even a quarter...

It's been a year since I've put a picture in my signature and thought I'd update it. With my girls off at school, I'm on my own to figure out how we did it way back then.

Hi, Just sitting here watching my DVR of GH's Night Shift from last night and low and behold there are two CF'ers on last night's episode. They went a little overboard in keeping this couple (yes, couple) apart. But the message of CF what it is, what it does, the feelings of a CF'er and Love are...

Hi, I know that some of you here are also members of the MSN transplant support group for lung, heart, heart lung. I am hoping one of you can help me. I have joined in the past, and have always had trouble signing back in. When I do get signed back in it's always an accident and I can't figure...