Search results

  1. V

    The Fundraising Blues

    Oh my goodness have I had fundraising blues. For 2 years I chaired a Walk in our town I got so many doors closed in my face, seamed that the people or organizations that could do the most are the ones that shut their door the hardest. Here in our town we have a major medical center. They have a...
  2. V

    The Fundraising Blues

    Oh my goodness have I had fundraising blues. For 2 years I chaired a Walk in our town I got so many doors closed in my face, seamed that the people or organizations that could do the most are the ones that shut their door the hardest. Here in our town we have a major medical center. They have a...
  3. V

    The Fundraising Blues

    Oh my goodness have I had fundraising blues. For 2 years I chaired a Walk in our town I got so many doors closed in my face, seamed that the people or organizations that could do the most are the ones that shut their door the hardest. Here in our town we have a major medical center. They have a...
  4. V

    Vest Exchange

    We just went up in vest size and I afford to donate our old vest to our clinic for whom ever needed it and the doctor told me the best I could do with it was to throw it away. As far as the machine goes it has a life time warrenty on it so we just call if we have a problem and we get what ever...
  5. V

    Vest Exchange

    We just went up in vest size and I afford to donate our old vest to our clinic for whom ever needed it and the doctor told me the best I could do with it was to throw it away. As far as the machine goes it has a life time warrenty on it so we just call if we have a problem and we get what ever...
  6. V

    Vest Exchange

    We just went up in vest size and I afford to donate our old vest to our clinic for whom ever needed it and the doctor told me the best I could do with it was to throw it away. As far as the machine goes it has a life time warrenty on it so we just call if we have a problem and we get what ever...
  7. V

    How do you tell your 11yr old (going on20) about her disease i the future?

    I agree honesty is best thing, Vivian is 10 and she already knows, she lost her only sister 2 years ago to CF, she was 21. Kids are a lot stronger than adults you'll be surprised at her reaction. Vivian said well Mom"it could be shorter who knows when they are going to get hit by a bus or...
  8. V

    How do you tell your 11yr old (going on20) about her disease i the future?

    I agree honesty is best thing, Vivian is 10 and she already knows, she lost her only sister 2 years ago to CF, she was 21. Kids are a lot stronger than adults you'll be surprised at her reaction. Vivian said well Mom"it could be shorter who knows when they are going to get hit by a bus or...
  9. V

    How do you tell your 11yr old (going on20) about her disease i the future?

    I agree honesty is best thing, Vivian is 10 and she already knows, she lost her only sister 2 years ago to CF, she was 21. Kids are a lot stronger than adults you'll be surprised at her reaction. Vivian said well Mom"it could be shorter who knows when they are going to get hit by a bus or...
  10. V

    Newborn w/ CF, enzyme question!

    The very day my Vivian was born her first meal was applesause and enzymes, she'll be just fine.
  11. V

    Newborn w/ CF, enzyme question!

    The very day my Vivian was born her first meal was applesause and enzymes, she'll be just fine.
  12. V

    Newborn w/ CF, enzyme question!

    The very day my Vivian was born her first meal was applesause and enzymes, she'll be just fine.
  13. V

    Breakfast Menu Ideas

    I'm glad to see I'm not alone, My Vivian eats what ever for breakfast. On week days before school she has a scandi shake and what ever they are having at school for breakfast but when there isn't school it can range from chicken to pizza. I figure aslong as its food and she enjoys it then its...
  14. V

    Breakfast Menu Ideas

    I'm glad to see I'm not alone, My Vivian eats what ever for breakfast. On week days before school she has a scandi shake and what ever they are having at school for breakfast but when there isn't school it can range from chicken to pizza. I figure aslong as its food and she enjoys it then its...
  15. V

    Breakfast Menu Ideas

    I'm glad to see I'm not alone, My Vivian eats what ever for breakfast. On week days before school she has a scandi shake and what ever they are having at school for breakfast but when there isn't school it can range from chicken to pizza. I figure aslong as its food and she enjoys it then its...
  16. V

    CF living in Kentucky

    Scandi Shakes are a high calorie drink that is made for weight gain, and are easily absorbed here is their site : www.scandishake.com. Ask at your clinic they should have samples they can let you try they come in Strawberry (Vivian's fave), chocolate ands vanilla. Another good thing with these...
  17. V

    CF living in Kentucky

    Scandi Shakes are a high calorie drink that is made for weight gain, and are easily absorbed here is their site : www.scandishake.com. Ask at your clinic they should have samples they can let you try they come in Strawberry (Vivian's fave), chocolate ands vanilla. Another good thing with these...
  18. V

    CF living in Kentucky

    Scandi Shakes are a high calorie drink that is made for weight gain, and are easily absorbed here is their site : www.scandishake.com. Ask at your clinic they should have samples they can let you try they come in Strawberry (Vivian's fave), chocolate ands vanilla. Another good thing with these...
  19. V

    CF living in Kentucky

    I feel the same way about the Lexington Clinic Our CF doctor and his staff is FANTASTIC, tell you the truth the have my Vivian spoiled. But Vivian been with them at birth in fact Dr. K was the first to hold her. They take all the time that's needed to in sure that I understand everything and...
  20. V

    CF living in Kentucky

    I feel the same way about the Lexington Clinic Our CF doctor and his staff is FANTASTIC, tell you the truth the have my Vivian spoiled. But Vivian been with them at birth in fact Dr. K was the first to hold her. They take all the time that's needed to in sure that I understand everything and...
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