Search results

  1. A

    CF and Acid Reflux

    I've had heartburn and acid reflux for years now. However, I've never had any procedures done. Just this past month, the doctor put me on Ranitidine (generic Zantac I believe). It has helped a lot. I used to use Maalox. I would seem to go through periods of having acid reflux almost daily...
  2. A

    Update on the babies-New belly pictures on website

    Update on the babies Sorry to hear you are having so many troubles. I can only imagine how hard it is. It is bad enough carrying one child, let alone carrying 3. But it will all be worth it once they arrive. Hang in there!
  3. A

    How many of you go to a CF Care Center?

    I know it's never easy switching doctors. I've gone to a CF Clinic since I can remember (diagnosed at 3) about 30 years or more. I've never really thought about it, but I guess I am very fortunate in that I have a clinic here where I live. I have a primary care physician, which I have to have...
  4. A

    Enzymes ...

    I try very hard not to miss mine. I think I have only missed them on a few occassions when we went out to eat and I forgot to fill up my bottle in my purse. If I do miss, I get stomach cramps and will be visiting the restroom rather frequently. I even have stomach cramps now (while on the...
  5. A

    pulmozyme

    I have always taken it once a day. I've been on it several years now (probably 8 years if not longer). I personally have never noticed much of a difference taking it. But of course, being on it for so many years, maybe my body has just become accustomed to it.
  6. A

    pumozyme question

    To my knowledge, Pulmozyme is a mucus thinner. I've been on it for years now. I would think most cf patients would be on it but I'm not sure. I also think your theory would be right; that it would help clean stuff out to help prevent you from getting an infection. That makes sense to me.
  7. A

    Josh: more test results

    I think a lot of cf patients with the digestive problems have trouble absorbing some vitamins. My docs always push me to take the ADEK vitamins and multiple vitamins (which I do). I think these are the major vitamins that we have problems with. Good luck with the testing. I hope your...
  8. A

    My Dad only a few more months left (long)

    Amy, I'm sorry to hear about the sadness you are going through. I don't know what kind of health situations your father has had, but being a CF patient, I'm sure that he is just "tired" of doing everything to stay alive. I've been fairly healthy over the years, and reading some of the posts on...
  9. A

    Related to Jennifershope survey

    I'm just curious, I read several responses to Jennifershope survey of people who skip their nebs all together. I'm just wondering how you can do that without it effecting your breathing? I know if I skip my treatment, then I'm pretty much coughing and congested most of the day. Maybe you guys...
  10. A

    Are they sure....?

    Last year my doctor had diagnosed me as being "diabetic" based on an accu-check done in his office which was 311. My personal opinion on that is that their machine was out of whack. He was ready right then and there to get me started on insulin, which I did not do. I haven't had the fasting...
  11. A

    Another survey

    To be honest, I don't really remember my mom saying "do this" or "it's time to get your treatment." I was diagnosed at 3. If my memory serves me correctly, I just alway did them. I'm sure she would tell me when it was time to get a treatment. I don't really think I gave her too many problems...
  12. A

    An Honest survey

    Well, I guess I'm pretty good about doing my nebs & medicines. I usually take 2 albuterol treatments a day (one when I get up and one before I go to bed), except on Saturday & Sunday. I just do one on those days. I consider those days my "break" days. I also do Pulmozyme once a day. I...
  13. A

    New Job

    When my husband has applied for a job, he just specifically asks them about the plan and medication coverage and tells them I have CF. I always fear that my Pulmozyme won't be covered. He is just pretty much up front with them in telling them we need specific things covered. Usually, they...
  14. A

    PA treatment

    I have cultured Mucoid PA in the past, but it doesn't show up in my recent cultures. Normally my infections are treated with oral antibiotics (levaquin ??sp or bactrim ??sp) due to my reluctance of going to the hospital & phobia of needles. They have never been treated with TOBI. My doctor...
  15. A

    swimming questions

    I love too swim also, but I don't really know if it is unsafe to swim in unchlorinated water. I've never really thought about it. Back in my teenage years, I occasionally swam in a lake (called Twin Lakes). I don't recall it ever bothering me. Sorry I can't be of more help.
  16. A

    Humid Climates

    I live in Illinois. The weather varies here. We get some days during the summer months that are pretty humid, today being one of them. Today has been horrible. I think the temp. was only in the upper 70's, but the humidity was absolutely horrible. Usually, it's not too bad and doesn't...
  17. A

    Yummy Snacks?

    Triscuits & Cheese Lunchables Granola Bars Candy Bars Cashews Fannie May Buttercreams (to die for!!) Granny Smith Apples w/caramel dip Pretzels and dip Potato Chips Popcorn
  18. A

    CPT

    I don't really know if it is more like manual CPT or not, but I prefer using my percussor over my vest. I remember my mom and grandma having to do my CPT by hand when I was younger and I hated it. I got my percussor, oh, probably in 1987 or 1988. I keep waiting for it to poop out on me one of...
  19. A

    My farts do not stink

    Good laugh!! That's funny!!
  20. A

    Vest

    I'm going to be the odd one out. I'm not particularly fond of my vest. I have used the acapella and the flutter which did nothing for me. I use a hand-held percussor. I know everybody is different and have heard of many people who like the vest. For me, it's just hard to breath and I feel...
Top