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I read a post from last summer about someone using this for hemoptysis with great success. Anyone else try it since? I am at my wits end with 2 weeks of minimal but continuous hemoptysis. Want to avoid BAE at any cost so I think I'm going to try this. Really curious if anyone out there has...

I am supposed to start a course of antibiotics on monday for just general more coughing, slight feeling of an exacerbation, and the fact that i am going on a long vacation May 24 and want to feel good before going. my dr just called though and said based on my x ray the radiologist pointed out...

Hi - I travel a lot and am looking to purchase a new POC. I have the original Inogen One but it is breaking and I think I want to purchase a newer model rather than have it fixed. I was wondering if anyone out there had other brands and what their experiences are. Much appreciated! Caitlin

Hi everyone, I was wondering if any of you, pre or post tx, have had to deal with going out of your own hospital or nearby hospital for transplant (or tx evaluation) because you have b. cepacia, cenocepacia. The decision by hospitals to stop transplanting cepacia patients has effected me...

Hi everyone, Am supposed to head up to Stratton Mountain this weekend with some friends. It just occurred to me that the altitude may bother me, and I am nervous. Currently my pft's are about 30%, but I present like I am better than that. I am on oxygen, 2L at night. Some nights I dont use...

Hi there Anyone heard of the new studies being done/thought about involving lactoferrin, the stuff that is in breast milk? Well, my doctor told me that there are some things brewing about it, that it helps with inflammation, I feel like an idiot but I forgot exactly what it is they think it...

Hello Its 5 am and I'm in horrible pain in what I can only imagine is my gall bladder. I am trying to gain weight and in an effort tonight to react to my oncoming hunger, I seized it by eating a TON of food, including a huge amount of haagen dazs icecream, which, during the last bite of i...

Hi, I am 24 having sinus surgery next wednesday (19th) to 'clear' out my sinuses. Now, I have never had it before, and its not a imminent need, just something I've been encouraged to get done at some point. I do not have sinus "problems"...no pain, polyps, headaches, etc. However, my CT scan...

Hi there, I started Pulmozyme about a month ago. At the same point I also started a two week course of inhaled Meropenem, in addition to my regular Inhaled Cephtaz. It was sort of a cleanout-without-IV's. Anyway, I lost my voice, but had been sick with a cold (hence the need for medication)...

So I had my palm and tarot cards read yesterday, just for fun, with my mother, at this crazy place in Boston. The lady told me over and over again I should get my blood tested. Now, I do get my blood tested a lot, and I know I must've had a CBC at some point lately. I am going to the Dr. on...

any of you do it/done it? thanks Caitlin 23 w/ cf b.cepacia

Back when I was 11, I am 23 now, I started Pulmozyme when it first came out. I had been healthy and didn't really need it, but tried it anyway. 2-3 months later I had a horrible infection of mycobacteria, MAI, that came to make me need a lobectomy and was the beginning of a terrible year...

Hi there, I've always been interested in alternative therapies, but never chinese herbs until now. Today I went to see a chinese medicine doctor. I had 3 weeks of IV's for cepacia ending last tuesday. Today and yesterday I felt crappy, and woke up with a sore throat, which for me is the...

Hi, i am 23 with CF, used to be on this board more but not lately. So, i am well-versed in all things CF but not CFRD. Recently my hemoglobin A1C was elevated to 6.6 and a random glucose test was 140. they want to run tests, like fasting glucose etc etc to determine whats really going on. i...

Hey there, So I dont know if any of you have heard of the "outbreak" at Children's in Boston of whooping cough? Anyway, I am seen at children's and just finished a two week cleanout last wednesday (the 25th), meaning I was there on wednesday getting my line out, and was there the week before...

Hi, do any of you have a nebulizer compressor that works overseas, or what do you do when you travel overseas. I am going to Ireland and France. If possible I would like to buy one that is meant for europe, not buy an adapter. i have only used nebs for a bout a year so i have never come...