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  1. M

    Rash

    I keep getting itchy , blotchy rash on my face , then it gets super dry . I can't put anything on face except water or baby oil for dryness . This seems to happen every mnth and every mnth Im on prednisone and antibiotics . I've mentioned it to the doctor but its usually cleared up when i see...
  2. M

    YAAAAA

    I just found out some great news and I thought that I would share . You all have been there to answer alot of my questions and concerns so here goes .. no mutataions showed up for the basic genetics test ... yayaya Of course theres more to go through but, off to a good start . Gonna celebrate...
  3. M

    SUCKS

    MY lungs aren't cooperating anymore . Since last June i've been on antibiotics and prednisone every month . This lung disease is taking everything away from me . I haven' t worked since Dec , now I'm on short term disability . My work dr . won't allow me back to work yet , honestly , as much as...
  4. M

    Still Waiting

    I'm still waiting for my genetic test results . It is such a long , timely process . I saw a CF Dr. at the begining of April . I wasn't feeling all that bad when I saw him , as I had just finished a course of prednisone . He thought I felt a little feverish and thought that it might be the start...
  5. M

    height and weight

    i've been doing some reading on different sites , and i've read that being under weight for your height can have an affect on sweat testing . none of the articles say why ? can anyone explain this to me?
  6. M

    vacationing

    <span class="FTHighlightFont">flying</span ft> with sick ,gunky lungs and sinuses.... wondering how some of you manage your treatments ,disease when <span class="FTHighlightFont">flying</span ft> especially long international flights ? when your in a foreign country , do you worry about medical...
  7. M

    feeling let down

    <img src="i/expressions/face-icon-small-frown.gif" border="0"> i'm so upset today! i've been waiting for an a appointment with an internist for 6 weeks , had the appt today , he had absolutely no info on my situation. no pfts , no xrays , no genetic results in ....NOTHING !!!!! WHAT A WASTE OF...
  8. M

    ibuprofen

    i find that when my sinuses are bad, and chest is really congested ,that if i take an advil cold and sinus medication , not only does it help with sinuses , but also helped with being able to breath a little easier { lungs }. but after the effect of the medication has wore off , i feel worse...
  9. M

    how clear is clear ?

    i know that cfers are all at different stages in this disease , so i guess my question would be going out to all cfers, with a more mild form. so here goes .. when a cfer lets say gets sick from some sort of bug , then does antibiotics, prednisone etc.. and that antibiotic was the right one for...
  10. M

    itchy ears

    i've had this ongoing problem with my ears being so extremly itchy inside , that i can go crazy. with that itch they feel wet ,i've had them checked by the doctor [s] many of time and they say that they look fine!! ya right looks can be deceiving haha!!! i contributed it to my sinus problems ...
  11. M

    emotional coughing

    i was just wondering if cfers experience coughing fits like asthmatics do eg: when something is funny , sad.
  12. M

    i gotta stupid question

    do all cfers have really salty tasting skin ? or does that depend on the different mutations ? <img src="i/expressions/face-icon-small-blush.gif" border="0"> just wondering!!!
  13. M

    sodium dietary intake

    can a high sodium diet affect an adults sweat chloride test result?
  14. M

    sodium dietary intake

    can a high sodium diet affect an adults sweat chloride test result?
  15. M

    sweat test menestration

    can anyone tell me if a womens cycle can create a positive result ? should a sweat test be done before, during, or after a period??? just wondering??
  16. M

    gotta question...need some answers PLEASE!!!!!

    can anyone tell me how accurate the sweat chloride test is? mine was done at local hospital.are false positives common? do people with cystic fibrosis ever have periods in the disease where your lungs clear ,or not so full of thick sticky mucus ?has anyone ever heard of the antibiotic...
  17. M

    educating myself

    <img src="i/expressions/face-icon-small-confused.gif" border="0"> hi to all, i'm 39 and being tested for cf .i've had some testing done so far..sweat chloride test at local hospital result was 84.. i had pft test done at hopital they didnt really disclose any info ..i asked a few question and...
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