Search results

This isn't really a problem, but more of a question/intersting observation. I have always heard that people deepen thier voice by yelling, coughing, etc. So wouldn't you think that people with CF would have really deep voices? I was wondering about this after getting mistaken for a woman on the...

Anyone here take Buspar for anxiety? I see that the indications say not to use it in people with COPD, and while I realize that CF is not the same as COPD I was wondering if a person with CF would be OK taking it. My psychiatrist is the one prescribing this not my CF doctor, so I don't know if...

I was wondering if you build up tolerance to Megace ES over time? I was on Marinol on and off for a while, but after a week or so on i would stop getting the benefits. Then I'd take week off, then go back on, etc. The problem with this program is that I was getting too sick too often to really...

<div>I was wondering what the deal is with having a port and CFRD. I had a port earlier, for about a year, then it was removed for a candida infection. My doctor said that high blood sugars raise he possibility for candida and fungal infections so it was my call if I want another port, since it...

I think that this is horrific. Lyndsey Scott received a lung transplant after suffering with cystic fibrosis all her life and recently passed away in July 2009. After her death it was revealed that the donor was a smoker of 30+ years. The government is even condoning these types of compromised...

So after trying for a long time to find a way to watch this documentary online, download it, w/e I finally found a way to watch it on the CBC website. As many of you probably know, the CBC website does not permit streaming videos to the U.S. The obvious ways around this would be by using a proxy...

I have a few questions. As some of you may know I just got a G-Tube a few weeks ago (luckily they did it laparoscopically and I started with the Mic-Key). 1. First I was wondering how long it took all of you to be hungry during the day. Its getting better for me. Its been a little over 2 weeks...

Hey, I got a G-Tube placed last week and I still am not hungry at all when I wake up. I have been eating minimal amounts of food for the past week, mainly relying on my 1500 cal tube feedings at night. The doctors have told me that this is normal, and people need to acclimate to it before they...

From what I've heard you take enzymes prior to the beginning of a tube feeding. But if it actuates over 8 hours how do the enzymes "do their job" the entire time? Or is it just accepted that there will be side effects and there is nothing we can do about it?

Hey, I just wanted to say something about SAM-e. I just wanted to say that it is wonderful...to the point I will actually say something on this board about it. SAM-e is great for two of the things that plague me the most on a daily basis about CF- depression and joint pain. I swear after taking...

I was wondering how muh weight gain did you see after you got your g-tube operation done. (say time obviously too). I understand some people gain more/less due to different levels of PI and how many calories you get per night. But I would love to hear what kind of weight you all gained from the...

I was wondering what people's experiences with this drug were. My recent IV course with Timentin doesn't seem to be too effective, but my doctor said that Zosyn, Ceftazadime, and imipenem can all treat my bacteria (Pseudomonas Alcaligenes) but I'm allergic to Ceftazadime. She said people who use...

I was wondering if there were any ways to help out our small airways. My FEV 25-75% is like <20% and it is always a problem. My doctor usually just ignores it when deciding for IVs or not mainly because my usual FEV1 is around 70%. Anyone with good small airway function care to tel us if they do...

I was wondering if the placement procedure (initial placement)was an outpatient procedure or a short admittance? Recently my doctor has said that she wants me to get a g-tube because she thinks my low weight is hurting my lung function- this is my 2nd round of IVs in less than 3 months and third...