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    Duo Neb, AquaDek liquid vitamins, Pulmicort, Albuterol

    If anyone needs any of the listed meds, let me know. We have extras and don't use them anymore. Will send to you for shipping cost. Let me know...PM me <img src="i/expressions/face-icon-small-blush.gif" border="0">)
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    Feeding tube/coughing issues. Anyone else experience any of this?

    I will try to make this long story as short as possible. Sorry if I start to ramble...just want to get everything out. It is all kind of weird and I am just wondering if anyone else has had similar problems. My 16 month old daughter has had problems w/ reflux and gaining weight as well as...
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    Feeding tube...

    I know there have been many posts about this, but I am looking to get this all in one spot so I can show my fiance. My daughter is 14 months old. She has been sick 'most' of her life. 2 hospital admits already after spending the first 2 1/2 mos in to begin with from bowel surgery. She had a 2...
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    1 year old, bad breath, bacteria?

    Hi My 1 year old, well she's had a cough since birth...recently diagnosed with asthma and tracheomalacia...so it's hard to tell what's going on in there. Anyways, lately I have noticed really bad breath for her. Doesn't seem normal for a babies breath to be smelly?? I got her gum and teeth...
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    Trachea Malacia/ tracheomalacia

    My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful. She is wheezy often and has a terrible cough for the most part of her life...
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    Trachea Malacia

    My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful. She is wheezy often and has a terrible cough for the most part of her life so...
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    Gray spot on infants new teeth?

    My 11 month old has 2 teeth on the bottom and 2 more coming on the top sides. The two on the bottom have gray spots on them.Wanting to see these others when they pop through! I asked the CF doc the other day when we were there and she had no answer, just dismissed the question, really. Jordin...
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    What do you feed your infant with 2 teeth?

    I am just looking for ideas of what to feed my 11 month old that has only 2 bottom teeth. We are getting close to needing a feeding tube and I DON'T want that! She has always been such a great eater...now alot of things that go in, end up getting spit back out <img...
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    Bad rash from Bacrtim

    I don't have CF, my kids do. BUT I am on a round of Bactrim for a sinus infection and I have this terrible skin rash from head to toe! I started getting that yesterday and it has progressively gotten worse. I have also had a bad headache behind my eyes for 4 days. I am quite positive this is a...
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    Asthma in my 10 month old

    Okay, so we just recently found out my 10 month old daughter has significant asthma <img src="i/expressions/face-icon-small-blush.gif" border="0">( She has bad wheezing. She just did 8 days in the hospital on IV steroids and abx (after my 5 year old did 10 days the prior week UGH). Problem...
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    5 year old daughter being admitted

    Hi My 5 year old daughter will be admitted on Monday morning for her first time since birth. ANY advice about certain things we should do/ask for/not do or anything you just think we should know would be so helpful! Thanks so much in advance! I am so stressed out about how I will juggle everything!
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    Many questions--1 post

    First off, my 5 year old daughter has been coughing (productive) for a few months or more now. We have been through multiple antibiotics. Cipro ends today after 3 weeks and she has one more week of Tobi. Just started on Hyper Sal 7% last week. She coughs hard while nebbing this. Seems to help...
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    Baby choking? Normal? IN hospital!

    (This thread was origianlly started in the 'Newly Diagnosed' section by MUMMY if you want to read from the beginning. I thought I'd move it here cuz she really needs some support and or advice and I know more people will see it here. She is from Africa and they have no CF doc.) This was her last...
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    Prednisone for my 7 month old baby

    My daughter just came down with a cough and some wheezing. The clinic is calling in Prednisone and I have to pick it up later today. I have searched the forum and have not really found any info on this for babies. Has anyone had to give this to their young child? Is there anything I should be...
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    daughter exposed...I am freaking out!

    My 4 year old daughter was at preschool w/ her cousin who came down with a temp that same night (Monday)...now him and his brother tested positive for H1N1 today! I am soo worried she may get it! Should I call the clinic? I feel like I have been bothering them so much lately! Just not sure if...
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    Mild case flu/h1n1?

    Hi I am just wondering if anyone has had H1N1 and it has not been so bad as they are saying. Is it possible to have a mild case of it, or less symptoms? I started with a sore throat one day (nasal drip in throat also), then headache..kinda flu feeling head aching, slight body ache..not much...
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    Prevacid for my infant

    Hi, I just started my 5 mo old on Prevacid and it is a pill. We have to break it in half and put it with liquid to give to her. Today I tried with her milk...not the best. Anyone else have to give this to their infant? How do you do it? What can I mix it with? Can I just put it with applesauce...
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    Frustrated!!...TOBI

    Well, we started TOBI a couple weeks ago and the script said to do 1/2 vial twice a day for 28 days. We have been doing as directed and I started to notice that what we have will not last for 28 days! We are almost out! I am under the impression now that we were to 'save' the other half of each...
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    Anyone heard of/used the FLU MIST?

    I was just told about a Flu Mist that is available. My friends ped told her it was more effective than the shot. Does anyone have experience with this? I am going to look for some info on it. My 4 year old alreay got her shot...but I may be interested in this for the rest of the family.
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    What do you use to sanitize household items/toys?

    Hi, I have an infant and a 4 year old, both with CF. What are some ideas for sanitizing household items and toys. We use hand sanitizer for hands. Can I use bleach and water? I have never cleaned/sanitized things and I am in need of some ideas to make it easy and yet healthy for them. BTW 4 year...
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