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NY Med on ABC at 10p EST. Show features stories of actual patients in NY hospitals. Tonight's show includes a CF patient. FYI if anyone wants to tune in.

I recently did 2 weeks in patient clean out. My pfts are lower now than before I went in the hospital. I've spent all evening looking at various compressors. Reading the meds available through foundation care. Wondering if I should be taking more nebs. If I am being aggressive enough w my...

My 11 year old Pari machine needed replacing. I was told I would receive Pari and they sent Evo which is louder than the machine I had. Tell me what you know about compressors. Thanks!

So I understand from other posts that the vest does not count as a carry on, I can have it in addition to the carry on bag and personal item. Do I need to do anything special in advance to let the airline know I will have this extra item? It's my first time flying with the vest and I'm just...

After several years and insurance companies, I have finally gotten a new, travel-sized vest! I'm planning ahead and want to be prepared for air travel with this machine. Airlines typically allow one bag and one personal item. Is a vest excluded from this because it is medical equipment...

Insurance will not approve it. So, here I am, home from a 3 day trip without doing a vest, and I feel sick. Thanks, craptastic insurance company. No point to this post other than to complain. Thanks for reading.

My cat knocked mine off the table and broke it into pieces. I don't go to my clinic until June. Can I get one online somewhere?

Do you find that more sleep means better lung function?

Getting over the flu, and now on 2 weeks of Tobi & antibiotics. Very tired of feeling like I have something stuck in my lungs and can't breathe, of the crackles I can feel in my throat, and coughing til my chest hurts. That is all. Thanks for reading.

On another (non-CF) message board that I read, someone posted they are on cycle 3 trying to conceive their second child. Her post said she "wondered why I can't be one of the lucky ones to just get pg and not be so "scientific" about it." Perhaps I'm just having a rough day, but I really had...

Hi, I know you have vest info on your blog. Am I reading correctly that Warwick recommends the Incourage system over the others? Was this published somewhere that I can share this info with my clinic? My dr said she didn't know about the vest options and said the clinic's nurse could answer...

Because I have one, it's not broken, and they say my medical condition hasn't changed. I can write a letter to try and appeal it. Has anyone had any success with this? Should my dr write something? I don't know what I could say that would change the decision. Any tips would be great. Thanks.

How do you stay motivated to keep doing what you have to do. Some days I get so burned out on all of the blood testing and shot giving. Just looking for some ideas to make things easier and be more complient.

I also have one of the old ones that weighs a ton. I'm now on my husband's insurance, so I'm hoping they will approved it. My old insurance denied it because 1) I hadn't been hospitalized or on IV's in the past 12 months and 2) I already have one. So, just wondering, did your insurance pay...

I occasionally post on the adults board, but wanted to say a hello over here. We have been TTC since January 2008. I think it's time to take the next step to see an RE. I'm a little nervous - having CF and being pregnant then being a mom is a little scary. Just wanted to introduce...

I had xray and pft's done this morning. After discussing it with the dr, we decided the best option is 2 weeks of iv treatment (in patient hospital). Thanks for all of your input.

After a 10 day vacation last month (and not being able to do my vest), a busy schedule, and catching a cold, I'm not feeling very good. I'm considering a 2-week course of Tobi/Cipro or the alternative - requesting 2 weeks in the hospital for a good clean out and 4x/day CPT. My last hospital...

I had a great diagram that my dr's office gave me on how to do this (it's new for me). I'm leaving for vacation tomorrow, and stupid me left my diagram at work. I googled, but didn't see what I was looking for. Does anyone have a link to this diagram, or have good instructions for how to do...

How do you travel with this if the piece has to stay in alcohol (specifically, plane travel)? I thought meds had to have their own nebulizers. I take sodium chloride and pulmozyme. How do I do both of these with an eflow? I've tried to search online, and haven't found a lot of helpful info...

Any tips for a traveling CF'er? Flying to Europe in a couple weeks and looking for tips to make travel easier, avoid getting sick, etc. Thanks for any advice.