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  1. J

    Sputum question for everyone

    What is *normal* for you in regard to daily amount and color of sputum when you are not "sick"?  I cough up a fair amount everyday and it is usually always greenish...sometimes lighter sometimes dark.  At times I am just like "alright...enough already!!!" ;-)<br><br>Jen 41 w/cf, mom of 4 (1...
  2. J

    For those of you who've been on Coumadin...

    <font class="Apple-style-span" face="arial">I have been on Warfarin (coumadin) for 6 days now and I as wondering if anyone else who has had to take this crap (sorry)  has experienced shortness of breath?  Also, did it make you really tired?  </font><div><font class="Apple-style-span"...
  3. J

    Pain and tingling in arm post PICC

    I had my PICC line removed Thurs (had it for 3 weeks) and while I had minor pain here and there while the line was in (around the site area) it now hurts BELOW the site area when I move my arm and is tender to the touch in that area.  Also I am experiencing a tingling down my forearm into my...
  4. J

    Pulmozyme and hemoptysis...

    Does anyone have a problem with Pulmozyme causing hemopytsis? Thanks, Jen
  5. J

    Pulmozyme and hemoptysis...

    Does anyone have a problem with Pulmozyme causing hemopytsis? Thanks, Jen
  6. J

    Xopenex...

    Hi everyone, I was wondering if any of you use nebulized xopenex?? If so, do you like it and is it less "jittery" than albuterol?? Both my son and I are going to start it today. Thanks!! Jen 36 w/cf Mom to 4, one w/cf (just diagnosed, age 12)
  7. J

    Moraxella Catarrhalis

    Hi everyone....haven't posted in a while but need some info about a new bug (new to me) that just came back on my latest cultures. Along with my usual Steno, I am also culturing Moraxella Catarrhalis. Not sure if this should be of any concern. Has anyone here who has cultured this bug had any...
  8. J

    I've been waking up very tight and breathless

    every morning for over a month. I don't know what's going on!! <img src="i/expressions/face-icon-small-confused.gif" border="0"> I wake up and as soon as I get up, my lungs feel very constricted and tight and I can't get in enough air. I have to use my albuterol inhaler right away and that...
  9. J

    Anyone here have hypoglycemia?

    I had to go in for some bloodwork last Friday due to this constant off & on nausea I've been having. Everything came back pretty good with the exception of my glucose level which was 55...ref range 64-105. I have dealt with hypoglycemic episodes for years but have never had my glucose dip...
  10. J

    A general nausea question....

    Do any of you experience on and off nausea (or have in the past) and could it be related to PI?? I have been having problems with nausea for about a year and a half...some times it is worse than others. When it's worse, I take Zofran and most of the time that helps. I have told my gastro doc...
  11. J

    Chicago area adult CF clinics.....

    I was wanting to find out from those of you who attend the adult CF clinic @ Lutheran General in Chicago, what your opinion of Dr. Arvey Stone is. Are you happy with his care, are you happy with the staff, and the clinic overall? Thanks in advance! Jen 34 w/cf
  12. J

    Curiosity Questions.....

    What bacteria(s) have you cultured?? Are you chronically colonized with any bacteria(s)? Since my diagnosis 2 1/2 years ago (never had routine sputum tests done before that), I have cultured pseudomonas once (last Oct), and am colonized with stenotrophomonas maltophilia. I have also cultured...
  13. J

    Sinus Cultures...

    When is it that a sinus culture would be warranted? My sinuses always bother me...stuffed up nasal passages, running like a sieve, painful, pressure, etc, but I have never had a sinus culture done. Is this at all important? Also, do you all tend to give a sputum sample at each of your clinic...
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