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My 15 year old son is in the Children's hospital for a "Tune UP", we have always liked this hospital and choose this over ones closer to our home due to the compassion and attention our CF/Diabetic child receives. WELL, things are not the same with this trip. Its as though our son is too old for...

My 13 year old son Sam, was JUST confirmed to have this. We have been waiting since March to find out what Acid Fast Bacillum he was growing and I am not certain I understand this one at all. Any one else ever had this, been treated or have information site? Thanks

If anyone has the AFB mycobacterium growing PLEASE write and tell me what it is caused from ( Other than tuberculosis, the skin test was negative), We will not know for 6 more weeks or longer the cause or treatment and I am certainly concerned. Can this be treated or is this the start of a major...

Has anyone experienced heart issues that were misdiagnosed as pneumonia? Sam is in the hospital with fairly good PFTS 85%, but the original reason we went to the hospital was chest pain. His heartbeat was 200 bpm, 60/40 blood pressure and diabeties blood sugars over the top. Sam rarely complains...

Adam, THANK YOU SO MUCH for the special way you treat our son on the gaming system. What a great person you are and we are so thankful for you. Sam told us this morning that you call him " Buddy" and that is so endearing. You are our Christmas blessing this year. THANKS Adam!!!!

I have a 13 year old son with Cf and type 1 diabetes, his blood sugars are always high, no matter how much insulin we add or how we manage the meals etc. Any suggestions? Sam just returned from a tune up, still has overly high blood sugars and complains often of lower back pain. He is not very...

Where do parents go to discuss health concerns for tweenagers. Sam just came home from his ENDO appointment, he decided to pull the plug on his insulin pump, he has NO FAT to put the sites in and it was painful due to hitting muscle. He is growing staph in his lungs and 10 days of Cipro has not...

HI There, My 12 year old has been coming home from school 3 out of 5 days a week with a stomach ache, I feel bad that we started NOT allowing him to come home due to its frequency and appearance of being well. The doctor called today to inform us his stool tests show C Difficil. This must be...

Has anyone heard of or needed the blood from an umbelica cord for any CF reason. We adopted our son Sam who has CF and his birth mother just wrote to me and offered the blood when she has her child in 2 months. I have never heard of this, but I am seeking out answers so I appreciate any...

I sent my son to school today and I feel so guilty. Sam broke out from a rash that started small on his stomach, but I saw signs of it appearing on his face neck and arms, The nurse said to give him benedryl and he would be fine. Sam came home from school with a head ache yesterday, and I...

Does anyone have a child with diabeties and cystic fibrosis, I know CFRD is a fairly common factor for CF kids, Sam has diabeties type 1 and CF, and today we are having so many health issues I am not certain which one is which.

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Can anyone enlighten me.. Sam has started 6th grade, Middle school here in CA, he is struggling with poor health, has missed 9 days already. Is WAY behind in class work, and I am overwhelmed. He had a short hospital visit last week, ng tube to help him eliminate, it was a horrific experience...

Can anyone share information or contacts for a minneapolis cystic fibrois center. We are considering movie there from California. My husband is diabled and we live off social security. California offers: California Childrens services which covers all of our sons genetic illness, cystic fibrois...

HI there, has anyone experienced aspergillus with children?Our 6 year old son was diagnosed 5-6 months ago with psedomonas, and that was shortly after a hospital stay for pnemonia and a tune up. I took him to clinic last week when I noticed the Tobi was not as effective as it had been previous...

HI There,Has anyone experienced their child having Aspergillus?Our 6 year old son was diagnosed 6 months ago with Psedomonas and the Tobi has not been working all that well these last few months, so when they tested again, they found Asperigillus?I dont like the sound of all this but I dont want...

Has anyone considered or had counseling done for children with CF?My 5 year old suffers anxiety ( so do mom and dad), and last night he told me he dreams he is dying and he does not want to leave his life!I sense his issue are anxiety, perhaps induced by so much medication, I would like to find...

Hi There, This is a difficult post as I feel certain most of us would rather not address anything quite so personal. But I do not mind stepping out of the box so to speak, and so I shall discuss this topic in hopes that someone will respond.My husband and I do not share the same attitiude...

Can anyone tell me what is psuedomonas and has anyone had a young child diagnosed with this?My 5 year old is having his second tune up in 7 months and they told us today he has pseudomonas? I cannot find any info on it, perhaps I am spelling it wrong? I would appreicate any response!

I have a 5 year old son with CF and this winter has been a constant cold, sinus infection, ear aches etc. So after a couple months of antibiotics, xtra treatments and poor health I must inquire if an in home air purifier would help!. Has anyone purchased these and are there any recomendations...