Search results

  1. M

    Your breathing treatment set up

    Ok we are looking at re-arranging our house and as part of that I plan to move my treatments to be mobile downstairs. Hubby wants to make sure it doesnt "look" medical or junky since it will reside in our living room. It doesnt have to be mobil-per se though I would like it to be so that I...
  2. M

    We are going to be foster parents

    Fostering has been on my heart for a long time, even before our DD. Dh has never been on board. He started having a heart change a while back and about two months ago asked me to look into it. We are doing orientation and application/background check this month. We are going through a private...
  3. M

    gaining weight for young kids

    I know I have read or seen links to articles/recipes/blogs on how to put weight on young kids with CF can you please give me some resources. I have someone here locally that needs some help, her child is 1.5 so that limits options a bit. Thanks
  4. M

    Check your lot # on Advair

    Advair Diskus (fluticasone propionate and salmeterol inhalation powder): Stolen Product Warning AUDIENCE: Pharmacy, Pulmonology, Patient ISSUE: Certain Advair Diskus inhalers stolen from a distribution warehouse in 2009 have been found in some pharmacies. The safety and effectiveness of the...
  5. M

    Pregnancy & Albuterol/Xopenex

    The recommendations about beta agonists (bronchodiolators) were not out there when I was pregnant with Lillian. This time around we are trying to get pregnant, keeping in mind I had a miscarriage last year, I am trying to be uber conservative. I am switching off of all class C drugs which...
  6. M

    Please READ this book

    Please read this book, initiated by Dramamama's suggestions to me I started investigating my candida problem. I just got done at my CF clinic yesterday, changing nothing else my FEV1 has shot up by 14% in two months. This book is very old but comprehensive and you can get it cheap on amazon...
  7. M

    Lauricidin?

    A friends naturopath raves about this. <a target=_blank class=ftalternatingbarlinklarge href="http://www.lauricidin.com/about.asp ">http://www.lauricidin.com/about.asp </a> I'm curious
  8. M

    Dr. Moss @ Stanford Consult

    <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/consultation-recommendations.html ">http://cftoo.blogspot.com/2010...-recommendations.html </a> pending test results
  9. M

    Vfend i.e Voriconazole Experiences

    If you have been on it can you please tell me why, how long, and what your experience was? Did you experience any side effects? Did the benefits you got while on the medication continue after it was discontinued? Thanks
  10. M

    Feedback: Carrier only w/stomach issues (my sister)

    Ok there is no way I can keep this short so forgive me. My sister is 15 she has been diabetic since 7. She has NEVER been able to have good control of her blood sugars even when she did try. What happens if you try and try and cant do something? You stop caring. Last year she had an A1C of 13...
  11. M

    FDA Announcement: long-acting beta agonists

    I'm not saying to get ready to drop your meds or anything just making everyone aware. FDA NEWS RELEASE For Immediate Release: Feb. 18, 2010 Media Inquiries: Karen Riley, 301-796-4674; karen.riley@fda.hhs.gov; Erica Jefferson, 301-796-4988; erica.jefferson@fda.hhs.gov Consumer Inquiries...
  12. M

    Epigenetics

    <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/02/epigenetics-we-are-what-our-mothers-eat.html">http://cftoo.blogspot.com/2010...t-our-mothers-eat.html</a>
  13. M

    It's Official! Consulting w/Dr. Moss

    It's official Mar 9 I am flying from MI to CA to do a consult/2nd opinion with him. I am also considering enrolling in his GSK study which thankfully has a branch going in AA MI. If you have any questions, suggestion, or travel recommnedations please let me know I will be staying a few days...
  14. M

    St. Joseph CF Center Mishawaka

    At a minimum I am thinking a consult with another clinic is in order, for multiple reasons. This is farther from wrok but closer to home. Anyone go here or know the reps? Saint Joseph Regional Medical Center (PEDIATRIC AND ADULT) South Bend, IN 46617 Appointments: (574) 239-6126 Director(s)...
  15. M

    humidifer use

    Ok all I live in MI and when the heat is on its unbearably dry here in our house. I have always refused to use a humidifier because of the mold problems they can create. The last time I used one there were so many 'rules' about cleaning, having it 4 feet away from walls and curtains, having it...
  16. M

    Cupriavidus pauculus * Ralstonia paucula * Wautersia paucula

    Just started IV's tonight. Most recent culture last month (when the first cold started) showed some heavy resistance on my pseudo and the new bacteria above. I have had only the 1 strain of pseudo forever and Achromobacter xylosoxidans which has been gone from my cultures all year. I have...
  17. M

    FDA Issued Notice "Clear and Present Danger"

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.fiercepharmamanufacturing.com/story/fda-cites-clear-and-present-danger/2009-12-08 ">http://www.fiercepharmamanufac...ent-danger/2009-12-08 </a> I am sure we all know there have been a number of recalls this year due to cepacia...
  18. M

    Asthma & Pre-term Labor Meds

    <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2009/12/in-utero-beta-2-adrenergic-agonist.html ">http://cftoo.blogspot.com/2009...renergic-agonist.html </a> this is a conversion from pdf and a poor one at that, PM me if you want the pdf. I'm still digesting and...
  19. M

    Home Remedies: Bleeding throat

    I caught a wicked nasty head cold that so far (knock on wood) is leaving my lungs in not too bad of shape. It has resulted in one of those horrid dry throat based coughs. Between CF meds and all the couging and such my throat is absolutely raw to the point of bleeding. I am 100% positive it is...
  20. M

    HELP: Pro Neb Ultra 2 dies.......again

    Long story short the pro neb ultra 2 which I think I got 2-3 years ago has a 5 year warranty and is a complete POS. It does great for a while and then one day I will notice I am running late on breathing treatments and the residual looks more 'foamy' then I will suddenly notice it is takign WAY...
Top