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Every year my sister has a family get together on c\Christmas Eve.The problem is not everyone in my family realize how important it is for my daughter not to be around someone sick is,and i know a lot of them have not got their flu shot. And they also smoke in the basement at parties. My...

We are having a golf outing. The outing is to raise money for cf. This is the first one just need some help. Need some insight on the whole thing. The outing is Aug 28 in Avon Lake,Ohio. If anyone is interested send me a PM and i;ll give you details. Any help would be great. Thanks in advance Joe.

Just want some input from u guys about taking dd with cf camping.Is it ok sleeping in tents?What about all the cooking and smoke at camp sites?The bath rooms are pretty nasty also.Any input would be great. Joe

Just wanted to stop by and say hi. Haven't had a lot of free time in the last couple of months until now. Kayla is doing great. Walking and getting into everything! Hope life is treating everyone good.

We enterded Kayla in cleveland cutest baby contest. They said email your freinds to help her win.And we are more like family here,<img src=""> She is in round two which is tommorow. She is #37 Thanks guys. I think my wife said we win a babies r us gift card and she gets to be in a magazine! I;m...

They increased our daughters enzymes to 1 and a half. Could it make her a little constipated? If its to much. Before they increased them she was going fine. Thanks for any input.

My mother works at a hospital and someone there gave her a vest. Well its a medium adult and we can't use it because are dd is only 11 months. So if anyone needs it let me know.

I know Sarah's (shimmereestar) little girl was growing pseudos and she was upset, I haven't seen her on here for awhile wondering if anyone knows how they are doing?

We use lysol wipes to clean off Kaylas high chair, wondering if its a safe thing to do?

Does anyone have a whirlpool tub with a child with cf? And do you think its a good Idea? The reason I ask is because i put one in before we found out are dd had cf.

Does anyone have a whirlpool tub with a child with cf? And do you think its a good Idea? The reason I ask is because i put one in before we found out are dd had cf.

We were invited over my fathers house for a fourth of July cook out. My father and stepmother both smoke in the house, my stepmother really loves the baby and wants to see her. They would never smoke with her in the house but i was wondering about it being all in the furniture and stuff, should...

Kayla cultured positive for pseudamonas, What does that mean? How did she get it? Are we doing something wrong? And is she going to start having problems with it now? They said her lungs sound good. She has been in hospital , could she have got it from there? Sorry so many questions just...

Kayla was put in the picu yesterday because she was alittle dehydrated and her sodium level was down. The doc said it wasn't that bad but they wanted to put her in there so they could monitor her better than on a regular floor(thats ok with me lol)well the way her doctor talks she might be in...

She's going back in the hospital in the morning , she started throwing up again everytime we tried to give her enzymes . We took her to the cf clinic the nurse tried feeding her baby food without her enzymes in it and she started to choke. She also lost a couple of ounces. They are going to test...

Well for the last day & a half she has been eating and taking some of her enzymes . Sometimes she puts her lips together so we can't put them in, so we have to wait till she gets madd and starts crying to put them in or we try to get her to smile then we put them in. I know its not funny but...

Kayla was doing good with the new enzymes they gave her, now she starting the same thing all over again not wanting to take them or eat. She has only ate 3 oz. today and threw up alittle of that. I just don't know what to do, why they didn't put her back on the feeding tube is a puzzle to me. I...

My daughter Kayla has always giving us alittle trouble taking her enzymes, Lately almost everytime we give them to her she gags so much she usely vomits and doesn't want to finish the bottle. We tried giving her a bottle without her enzymes and she drank it right down . I know we can't keep...

I didn't write this (kaylasdad) this is someone elses and they posted it on someone elses post and they are new here so i thought i would post it for them , hope they don't mind. Didn't want them to miss out on any responses...

Kayla was put in the hospital yesterday because she is not gaining enough weight . they put her on a feeding tube to help with the feeding . She dosn't want to take her enzymes, everytime we try to give them to her she starts to gag and sometimes throws up. She has always took them good for...