Search results

  1. L

    Moving to Hawaii....

    Me and my husband have been throwing around the idea of moving to Hawaii. Of course theres no CF center besides the military base so I was wondering on the care there. There has to be non-military CF'ers there. Can anyone shed some light on the Docs, will CFPAF transfer assistance there, is...
  2. L

    Denial for Transplants in Arizona as of Oct. 2010

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.abc15.com/content/financialsurvival/azstories/story/AHCCCS-cuts-could-keep-some-from-life-saving/xsA2-xNCsU2kq4HJV_8omw.cspx ">http://www.abc15.com/content/f...NCsU2kq4HJV_8omw.cspx </a> My sister's news interview at clinic. Our...
  3. L

    Denial for Transplants in Arizona as of Oct. 2010

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.abc15.com/content/financialsurvival/azstories/story/AHCCCS-cuts-could-keep-some-from-life-saving/xsA2-xNCsU2kq4HJV_8omw.cspx ">http://www.abc15.com/content/f...NCsU2kq4HJV_8omw.cspx </a> My sister's news interview at clinic. Our...
  4. L

    Acute Rejection

    My sister had her transplant a month ago and today we got news the lungs are rejecting. Or "acute" rejection as they call it. Were all nervous of course and the doctors are not really saying much. So of you guys that have gotten transplant, can you offer up some insight? It seems so soon for...
  5. L

    Facebook

    Hey I'm not on the forums as much anymore, but love meeting new CF'ers. If you have a FB, give me a shout!!!!!! <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/profile.php?ref=profile&id=1638426863">http://www.facebook.com/profil...=profile&id=1638426863</a>
  6. L

    Antibodies and Transplant

    So I hear alot of talk about having antibodies and it making it harder to get matched. My sister had no antibodies so she couldn't answer my questions. This might sound really dumb so bare with me!! haha Where do they come from? Or how do you get them? Are they from having blood transfusions? Is...
  7. L

    Antibodies

    So I hear alot of talk about having antibodies and it making it harder to get matched. My sister had no antibodies so she couldn't answer my questions. This might sound really dumb so bare with me!! haha Where do they come from? Or how do you get them? Are they from having blood transfusions? Is...
  8. L

    Gifts to your Dr.'s after transplant

    I want to do something nice to show my appreciation for the help my sisters doctors have given her. I thought maybe giving them a card would be good, but it doesn't really express how grateful I really am!! Its seems so little after giving her a double lung transplant! Maybe I'm just being...
  9. L

    Feeding Tube Qestion

    I'm posting this for my sister who had a feeding tube placed at the end of December. Since she's had it done she's been doing manual percussion. But recently has been trying her Vest back on. Yesterday her site was sore and oozing a little bit. Also feedings haven't been going in smoothly. Her...
  10. L

    Inciid for the heart Scholarship

    I haven't posted for awhile on here but thought I'd check with you gals about something we have received. We received a scholarship for IVF through Inciid.com. THere and infertility website that offers support for people going through infertility and adoption. Part if this scholarship though...
  11. L

    Has anyone adopted over seas with CF?

    Me and my husband would like to adopt over seas. Were trying to decide what country to go through while deciding on an agency. we have awhile until the home study is done so I thought I'd see if any of you have experience. Have anyone of you adopted over seas with CF? And if so what country...
  12. L

    Valley Fever

    I'm not sure if this is just an Arizona thing or Southwest thing but in Phoenix we have what is called Valley Fever. Its spores that are in our dirt that we can breath in and its from what I've read, not great at all if someone with CF gets it. Well....my sister got it. She has CF and recently...
  13. L

    Adoption

    Hello all! I've never posted in this section so I hope this subject is suitable here. I'm not pregnant so I thought It'd be better to post this here instead of the pregnancy section. Me and my husband have been TTC since we were married 3 1/2 years ago. Frankly I'm tired of it and just want to...
  14. L

    TOBI

    This may be a really dumb question but is TOBI just for CF'ers or do they treat other kinds of patients with it? The reason I ask is, I was told not to take it around babies. Because they will build up immunities to the drug and if needed to be on it someday, they couldn't be. But if the...
  15. L

    LOW BLOOD SUGARS AND CONCEIVING...

    HEY LADIES!! AND LADS, (I SHOULDN'T BE SO PRESUMPTUOUS TO THINK GUYS DON'T COME ON HERE RIGHT!!? LOL) ANYWAYS, I CAN'T GET MY RE TO CALL ME BACK ABOUT THIS SO I THOUGHT I'D GIVE IT A SHOT WITH WHAT YOU GUYS MAY KNOW. LATELY I'VE BEEN HAVING LOW BLOOD SUGARS. AT THE MOMENT THERE ONLY TREATING...
  16. L

    I guess I could use a little encouragement...

    So me and my husband went to see a new Reproductive Dr. yesterday. This isn't anything new to us as we've done 3 medicated IUI's back home. His plan for us is to only give me 2 more shots at the medicated IUI's than move on to considering adoption or IVF!! Doesn't this seem a little soon? I feel...
  17. L

    WHAT ARE THE KIDS GOING AS FOR HALLOWEEN!?

    SO I AND MY HUSBAND ARE NOT DRESSING UP THIS YEAR, NOR DID WE LAST YEAR OR THE YEAR BEFORE! LOL. WE LIVE IN CONDO'S AND ARE PROBABLY WON'T EVEN SEE TRICK-OR-TREATERS SO I'M LIVING VICARIOUSLY THROUGH YA'LL!!! KIDS IN THEIR COSTUMES ARE SO CUTE! SO IF YOU HAVE TIME POST SOME PICS OF WHAT THE...
  18. L

    WHO'S DRESSING UP FOR HALLOWEEN????

    SO I AND MY HUSBAND ARE NOT DRESSING UP THIS YEAR, NOR DID WE LAST YEAR OR THE YEAR BEFORE! LOL. WE LIVE IN CONDO'S ARE PROBABLY WON'T EVEN SEE TRICK-OR-TREATERS SO I'M LIVING VICARIOUSLY THROUGH YA'LL!!! POST PICS OF YOU OR YOUR KIDS COSTUMES IF YOU HAVE TIME!!! I'D LOVE TO SEE WHAT EVERYONES...
  19. L

    New Patient assistance program

    Just got a heads up on this new program from my old SW. Thought I'd let everyone know that needs help with their drugs. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpaf.org/HowToApply/ApplyNow/">http://www.cfpaf.org/HowToApply/ApplyNow/</a>
  20. L

    Flu Shots

    Hey I had a quick question. Since its flu shot time again does it matter at all when you get it, if your trying to get pregnant? Just wondering if it the flu shot has any effects on you at all with conceiving... Thanks!
Top