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    Viagra

    Has anyone taken Viagra (drug name sildenafil) for mucus production? It's a vasodialator so it should open up the vessels in the lungs. I have a friend who was in a study for this but she wasn't able to stay in the study. They already use sildenafil for pulmonary hypertension, also. Thoughts?
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    Medicare & CFRD

    I just tried to get lancets and test strips filled at my pharmacy. They said Medicare denied my claim because "CFRD isn't really a diabetes diagnosis". They're saying CFRD isn't really diabetes so they won't cover my supplies!! I was just dx in June, but in July this same pharmacy filled scripts...
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    pharmacy choice

    Does anyone use Foundation Care or CF Services Pharmacy for their drugs? Currently I only get Cayston from Foundation Care Pharmacy and everything else I get from Walgreens. But this month is the first month I've been on Medicare (with a supplemental insurance policy purchased separately) and...
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    Great Strides Teams

    Hi everyone! I'm starting a team for my local Great Strides walk. I want to get team t-shirts for everyone, but I'm having trouble coming up with a design. Does anyone have pix of their team t-shirts or logos? I'm not going to steal anyone's logo, I just want some ideas. Thanks! ~Aimee 28 w/ CF...
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    Photographer in North Dakota?

    Hi everyone! My best friend is getting married in Bismarck, ND on April 23rd. She needs an inexpensive photographer for the wedding and reception. She's a wonderful person who has been through a lot of bad things over the last 10 years and I really want to help make her special day great. If...
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    Cayston users

    I've been alternating Cayston and Tobi now for about 6 months (3 of each drug) and every time I've received my new 28 day supply of Cayston, Foundation Care Pharmacy sends me a new Altera handset. Is everyone getting this? What do we do with the old ones? I hate to just throw them out with...
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    I wanted to share this article

    A friend who is an RT sent me this article. I used to attend the Children's hospital in Denver and was treated by Dr. Frank Acurso. He's brilliant and here's proof. <a target=_blank class=ftalternatingbarlinklarge...
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    MRSA

    I have been culturing MRSA for a couple years now. I used to only culture Pseudamonas and Staph. Then it was PA and MRSA. Did my regular Staph change to MRSA? Also, and this is my important question: Can CFers spread MRSA to the general population? My cousin has a 7 month old baby and told...
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    Incontinence

    I've never wanted to bring this up in clinic for fear I'm the only sufferer, but hopefully someone here will be able to help. I have a fairly bad issue with incontinence. I'm not preg and that was the only time I could find this topic discussed before when I searched. When I do treatments I...
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    Support Groups

    I've got an idea rattling around in my head that I may want to try to start a support group in my local area. It would basically be like this board, a resource for people, only live action. I just feel like it helps to know you're not a lone if you can see each other face to face and you can...
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    Anyone on Disability

    I've been on disability for almost a year now and it's driving me nuts! I have some days where I feel real crummy and I know I wouldn't have been able to go into work, but other days when I feel okay. And then I think, "maybe I could work...maybe not at my original job, but at something." I...
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    CF and adoption

    Just out of curiosity, have any of you adopted children? I know they do background checks as well as income and health checks. I'm still a long way off from having kids, but just checking out all the options. I'm pretty sure I don't want to have kids with my genes (I know all the facts about...
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    Alternative healing practices

    I was just wondering if any of you have tried any "alternative" or homeopathic healing methods. I'm not thinking about giving up my antibiotics and traditional treatments cuz they've kept me very healthy for a long time. I've just heard people say things like acupuncture and homeopathic...
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    Anyone attend a CF camp in Illinois?

    Hey all- Did anyone from this board attended the CF camp at Epworth Springs in Litchfield, Illinois? I went for about five years (1990-1995) before they had to close (turns out people with CF shouldn't do treatments around each other and share germs- who knew, huh?). Had a lot of great friends...
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    Statistics on pregnancy

    I know that most men with CF (like 99%) are sterile because of their lack of a Vas Deferens. I'm just wondering if anyone (Julie?) has any statistics about women. How does CF affect our fertility? Does the mucus build up damage the ovaries, uterus, or any other vital organ to reproduction...
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    Just diagnosed with CFRD

    So I'm in the hospital right now and they ran a Glucose Tolerance Test on me a couple days ago. Results weren't good- I have developed diabetes. I know a lot of you have it too, so I was hoping for some help. I know NOTHING about how to take care of it. They've got a specialist coming in...
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    Just diagnosed with CFRD

    So I'm in the hospital right now and they ran a Glucose Tolerance Test on me a couple days ago. Results weren't good- I have developed diabetes. I know a lot of you have it too, so I was hoping for some help. I know NOTHING about how to take care of it. They've got a specialist coming in...
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    Excersise and weight

    Hey everyone. I posted this in the excersise board too, but I figured more people would see it here. I'm looking for tips on working out to get into shape without loosing weight. I don't really work out at all and I'd like to tone some muscle. I tried taking a yoga class one time, but the...
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    Excersise and weight

    Hey everyone. I posted this in the excersise board too, but I figured more people would see it here. I'm looking for tips on working out to get into shape without loosing weight. I don't really work out at all and I'd like to tone some muscle. I tried taking a yoga class one time, but the...
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    Working out, but not loosing weight?

    I was just wondering if anyone had some tips on eating right and exercising to tone muscle without dropping pounds. The docs at my clinic freak out if my weight fluctuates even a little bit. But I'd like to get into shape. Also, I don't want to have to buy a bunch of workout videos or...
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